A critical reflection on definitions of autistic well-being

Added on 01/07/2024

Type de contenu

Journal article of the type Commentary ( ; english)

Michele Deakin, Stephanie Petty, Brett Heasman, Lorna Hamilton , A critical reflection on definitions of autistic well-being published in the journal "Brain and behavior", Preprint, 3 pages , doi:10.1002/brb3.3572

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Our ongoing systematic literature review of psychological well-being interventions for autistic adults highlighted that the concept of well- being has been poorly operationalized for autistic people in clinical literature. Our investigation aims to contribute a novel review of how well psychological well-being interventions are designed for autis- tic adults. While assumptions around the definition of autism have been critiqued extensively in literature (Heasman & Parfitt, 2023) our review of 69 studies found that the concept of “well-being”, as it applies to autistic people, has received comparatively little attention. We raise three issues with the current oversimplification of well-being when it is understood as a return to “normal” functioning through the remediation of ill-being. We suggest that a way forward is to embrace contemporary theorizing of both being autistic (Chapman, 2021; Kourti, 2021) and of experiencing wellness vulnerabilities (van Os et al., 2019). A review of what is meant by autistic well-being would inform clinical and research practices.


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(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic. [Learn more about this mention]


  • S. Au-Yeung, L. Bradley, A. Robertson, R. Shaw, S. Baron-Cohen, S. Cassidy (2019). "Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults". Autism, 23(6). doi:10.1177/1362361318818167

  • M. Ayres, J. Parr, J. Rodgers, D. Mason, L. Avery, D. Flynn (2018). "A systematic review of quality of life of adults on the autism spectrum". Autism, 22(7). doi:10.1177/1362361317714988

  • C. Babb, J. Brede, C. Jones, M. Elliott, C. Zanker, K. Tchanturia, L. Serpell, W. Mandy, J. Fox (2021). "'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals". Autism. doi:10.1177/1362361321991257

  • S. Cassidy, L. Bradley, E. Bowen, S. Wigham, J. Rodgers (2018). "Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review". Autism Research, 11(5). doi:10.1002/aur.1922

  • R. Chapman*, H. Carel (2022). "Neurodiversity, epistemic injustice, and the good human life". Journal of Social Philosophy, 53(4). doi:10.1111/josp.12456

  • R. Dodge, A. Daly, J. Huyton, L. Sanders (2013). "The challenge of defining wellbeing". Intnl. J. Wellbeing, 2(3). doi:10.5502/ijw.v2i3.4

  • B. Heasman, L. Parfitt (2023). "Theoretical problems with oversimplifying autistic diversity into a single category". J Theory Soc Behav, 53(3). doi:10.1111/jtsb.12388

  • M. Hollocks, J. Wei Lerh, I. Magiati, R. Meiser-Stedman, T. Brugha (2019). "Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta-analysis". Psychol. Med., 49(4). doi:10.1017/s0033291718002283

  • M. Kourti (2021). "A Critical Realist Approach on Autism: Ontological and Epistemological Implications for Knowledge Production in Autism Research". Front. Psychol., 12. doi:10.3389/fpsyg.2021.713423

  • G. Yu Hin Lam, S. Sabnis, M. Migueliz Valcarlos, J. Wolgemuth (2021). "A Critical Review of Academic Literature Constructing Well-Being in Autistic Adults". Autism in Adulthood, 3(1). doi:10.1089/aut.2020.0053

  • P. Langdon, G. Murphy, L. Shepstone, E. C.F. Wilson, D. Fowler, D. Heavens, A. Russell, A. Rose, A. Malovic, L. Mullineaux (2016). "The People with Asperger syndrome and anxiety disorders (PAsSA) trial: a pilot multicentre, single-blind randomised trial of group cognitive–behavioural therapy". BJPsych open, 2(2). doi:10.1192/bjpo.bp.115.002527

  • NICE (2021). "Autism. Recognition referral diagnosis and management of adults on the autism spectrum National Clinical Guideline Number 142". (Source)

  • J. Pahnke, T. Hirvikoski, J. Bjureberg, S. Bölte, J. Jokinen, B. Bohman, T. Lundgren (2019). "Acceptance and commitment therapy for autistic adults: An open pilot study in a psychiatric outpatient context". Journal of Contextual Behavioral Science, 13. doi:10.1016/j.jcbs.2019.04.002

  • A. Pearson*, K. Rose* (2021). "A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice". Autism in Adulthood, 3(1). doi:10.1089/aut.2020.0043

  • S. Petty, S. Lambarth, L. Hamilton (2023). "Rethinking anxiety and depression for autistic adults through personal narratives: A mixed‐method analysis of blog data". Couns and Psychother Res. doi:10.1002/capr.12729

  • S. Petty (2023). "The SAGE handbook of social justice in the psychological therapies".

  • J. Rodgers, K. Farquhar, D. Mason, S. Brice, S. Wigham, B. Ingham, M. Freeston, J. Parr (2020). "Development and Initial Evaluation of the Anxiety Scale for Autism-Adults". Autism in Adulthood, 2(1). doi:10.1089/aut.2019.0044

  • "Scottish Intercollegiate Guidelines Network. (2016).Assessment diagnosis and interventions for autism spectrum disorders A national clinical guideline. SIGN publication no. 145."

  • E. Sonuga‐Barke (2023). "Paradigm 'flipping' to reinvigorate translational science: Outlining a neurodevelopmental science framework from a 'neurodiversity' perspective". Child Psychology Psychiatry, 64(10). doi:10.1111/jcpp.13886

  • M. Stewart, L. Barnard, J. Pearson, R. Hasan, G. O’Brien (2006). "Presentation of depression in autism and Asperger syndrome". Autism, 10(1). doi:10.1177/1362361306062013

  • J. van Os, S. Guloksuz, T. Willem Vijn, A. Hafkenscheid, P. Delespaul (2019). "The evidence‐based group‐level symptom‐reduction model as the organizing principle for mental health care: time for change?". World Psychiatry, 18(1). doi:10.1002/wps.20609

  • S. Wigham, S. Barton, J. Parr, J. Rodgers (2017). "A Systematic Review of the Rates of Depression in Children and Adults With High-Functioning Autism Spectrum Disorder". Journal of Mental Health Research in Intellectual Disabilities, 10(4). doi:10.1080/19315864.2017.1299267


 
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