Il est temps de changer la façon dont nous mesurons la qualité de vie et le bien-être des personnes autistes : une revue systématique

Ajouté le 07/07/2024

Type de contenu

Article de revue du type Revue de la littérature ( ; anglais)

Time to change how we measure quality of life and well‐being in autism: a systematic review publié dans la revue "Review journal of autism and developmental disorders" Preprint, 16 pages , doi: 10.1007/s40489-024-00440-7

*Quatre co-auteur·rices se sont publiquement identifié·es comme autistess. [En savoir plus sur cette mention]

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Résumé/Présentation

Cette revue examine les méthodes utilisées pour rendre compte de la qualité de vie et/ou du bien-être des personnes autistes. Une recherche dans quatre bases de données (juin 2023) a identifié 256 études rapportant la qualité de vie et/ou le bien-être d'au moins une personne autiste. La qualité des études variait. Les résultats ont été synthétisés sur qui a fait rapport, sur qui a fait l'objet de rapport, comment les informations ont été obtenues, y compris les aménagements et la participation communautaire. Un tiers des études a utilisé des informateurs par procuration, plus de 80 % ont utilisé des mesures génériques de la qualité de vie et/ou du bien-être, les personnes autistes souffrant de déficience intellectuelle et de troubles de la communication étaient sous-représentées, un quart a inclus des aménagements et peu d'études ont inclus l'implication communautaire. Malgré les recherches croissantes sur la qualité de vie et le bien-être des personnes autistes, des recherches plus accessibles et inclusives sont nécessaires pour comprendre l’expérience des personnes autistes.

Pour information:

(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.


  • R. Tennant, L. Hiller, R. Fishwick, S. Platt, S. Joseph, S. Weich, J. Parkinson, J. Secker, S. Stewart-Brown (2007). "Health and Quality of Life the Warwick-edinburgh Mental Well-being Scale (wemwbs): Development and Uk Validation". doi:10.1186/1477-7525-5-63" target="_blank">(Source)

  • D. Adams, M. Clark, D. Keen (2019). "Using self‐report to explore the relationship between anxiety and quality of life in children on the autism spectrum". Autism Research 12. doi:10.1002/aur.2155

  • S. Arnstein's (2020). "Ladder of Citizen Participation". Revue_ACOMPLETER doi:ACOMPLETER

  • M. Ayres, J. Parr, J. Rodgers, D. Mason, L. Avery, D. Flynn (2018). "A systematic review of quality of life of adults on the autism spectrum". Autism 22. doi:10.1177/1362361317714988

  • K. Bailey, K. Frost, K. Casagrande, B. Ingersoll (2019). "The relationship between social experience and subjective well-being in autistic college students: A mixed methods study". Autism 24. doi:10.1177/1362361319892457

  • P. Barneveld, H. Swaab, S. Fagel, H. van Engeland, L. de Sonneville (2014). "Quality of life: a case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood.". Comprehensive psychiatry doi:10.1016/j.comppsych.2013.08.001

  • J. Beadle‐Brown, G. Murphy, M. Di'Terlizzi (2009). "Quality of Life for the Camberwell Cohort". Journal of Applied Research in Intellectual Disabilities 22. doi:10.1111/j.1468-3148.2008.00473.x

  • K. Beck, L. Terhorst, C. Greco, J. Kulzer, E. Skidmore, M. McCue (2023). "Item Understanding of Common Quality of Life Measures for use with Autistic Adults". Journal of Autism and Developmental Disorders doi:10.1007/s10803-023-05945-4

  • L. Berkovits, C. Moody, J. Blacher (2019). "'I don't feel different. But then again, I wouldn't know what it feels like to be normal': Perspectives of Adolescents with Autism Spectrum Disorder". Journal of Autism and Developmental Disorders 50. doi:10.1007/s10803-019-04309-1

  • A. Berástegui, Â. Santos, G. Suárez (2021). "The reporters' agreement in assessing the quality of life of young people with intellectual disabilities.". Research in developmental disabilities 116. doi:10.1016/j.ridd.2021.104026

  • C. Bigby, E. Bould, J. Beadle‐Brown (2018). "Comparing costs and outcomes of supported living with group homes in Australia*". Journal of Intellectual & Developmental Disability 43. doi:10.3109/13668250.2017.1299117

  • L. Bishop-Fitzpatrick, L. Smith DaWalt, J. Greenberg, M. Mailick (2017). "Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder". Autism Research 10. doi:10.1002/aur.1753

  • P. Boström, M. Broberg (2018). "Protection and restriction: A mixed‐methods study of self‐reported well‐being among youth with intellectual disabilities". Journal of Applied Research in Intellectual Disabilities 31. doi:10.1111/jar.12364

  • E. Byers, S. Nichols, S. Voyer, G. Reilly (2013). "Sexual well-being of a community sample of high-functioning adults on the autism spectrum who have been in a romantic relationship". Autism 17. doi:10.1177/1362361311431950

  • J. Błeszyński (2018). "The Quality of Life of Pupils with Autism Spectrum Disorders – Comparative Research on Mainstream Integrated Education and Special Education Institutions in Poland". The New Educational Review doi:10.15804/tner.2018.52.2.22

  • R. Cai, V. Gibbs, A. Love, A. Robinson, L. Fung, L. Brown* (2022). "'Self-compassion changed my life': The self-compassion experiences of autistic and non-autistic adults and its relationship with mental health and psychological wellbeing". Journal of Autism and Developmental Disorders 53. doi:10.1007/s10803-022-05668-y

  • S. Capp, D. Mason, E. Colvert, J. Agnew-Blais, F. Happé (2022). "COVID-19 and Perceived Changes to Quality of Life, Anxiety, Depression, and Loneliness in Autistic and Other Neurodivergent U.K. Adults.". Autism in adulthood : challenges and management doi:10.1089/aut.2021.0078

  • R. Charlton, G. McQuaid, G. Wallace (2022). "Social support and links to quality of life among middle-aged and older autistic adults". Autism 27. doi:10.1177/13623613221081917

  • L. Chezan, J. Liu, E. Drasgow, R. Ding, A. Magana (2022). "The Quality of Life for Children with Autism Spectrum Disorder Scale: Factor Analysis, MIMIC Modeling, and Cut-Off Score Analysis". Journal of Autism and Developmental Disorders 53. doi:10.1007/s10803-022-05610-2

  • L. Chezan, J. Liu, J. Cholewicki, E. Drasgow, R. Ding, A. Warman (2021). "A Psychometric Evaluation of the Quality of Life for Children with Autism Spectrum Disorder Scale". Journal of Autism and Developmental Disorders 52. doi:10.1007/s10803-021-05048-y

  • J. Cholewicki, E. Drasgow, L. Chezan (2019). "Parental Perception of Quality of Life for Children with Autism Spectrum Disorder". Journal of Developmental and Physical Disabilities doi:10.1007/s10882-019-09660-w

  • E. Clarke, K. Sterrett, C. Lord (2021). "Work and well‐being: Vocational activity trajectories in young adults with autism spectrum disorder". Autism Research 14. doi:10.1002/aur.2606

  • G. Cramer, G. Young, S. Singh, J. McGuire, D. Kim (2021). "Evidence that collaborative action between local health departments and nonprofit hospitals helps foster healthy behaviors in communities: a multilevel study". BMC Health Services Research 21. doi:10.1186/s12913-020-05996-8

  • J. Cuesta-Gómez, R. De la Fuente-Anuncibay, R. Vidriales-Fernández, M. Teresa Ortega-Camarero (2022). "The quality of life of people with ASD through physical activity and sports". Heliyon 8. doi:10.1016/j.heliyon.2022.e09193

  • M. Deserno, D. Borsboom, S. Begeer, H. Geurts (2017). "Multicausal systems ask for multicausal approaches: A network perspective on subjective well-being in individuals with autism spectrum disorder". Autism 21. doi:10.1177/1362361316660309

  • M. Diodati (2019). "Recreation as a Related Service: Focusing on the Quality of Life of Students With Disabilities". Proceedings of the 2019 AERA Annual Meeting doi:10.3102/1436834

  • E. Domellöf, L. Hedlund, P. Ödman (2014). "Health-related quality of life of children and adolescents with functional disabilities in a northern Swedish county". Quality of Life Research 23. doi:10.1007/s11136-013-0613-4

  • E. Emerson, D. Felce, R. Stancliffe (2013). "Issues concerning self-report data and population-based data sets involving people with intellectual disabilities.". Intellectual and developmental disabilities doi:10.1352/1934-9556-51.5.333

  • N. Eslami, T. Movahed, M. Asadi (2018). "Parents' Perceptions of the Oral Health-related Quality of Life of their Autistic Children in Iran.". The Journal of clinical pediatric dentistry doi:10.17796/1053-4625-42.6.3

  • K. Evers, J. Maljaars, H. Schepens, G. Vanaken, I. Noens (2022). "Conceptualization of quality of life in autistic individuals". Developmental Medicine & Child Neurology 64. doi:10.1111/dmcn.15205

  • K. Ferenc, K. Byrka, M. Król (2021). "Painted with different brushes—An exploratory study of psychological well-being and attitudes towards autism perceived by adolescents with autism spectrum conditions and their mothers". Research in Autism Spectrum Disorders 87. doi:10.1016/j.rasd.2021.101826

  • A. Fleming, M. Leahy (2014). "Using the International Classification of Functioning to Conceptualize Quality of Life Among Rehabilitation Services Recipients". Rehabilitation Research, Policy, and Education 28. doi:10.1891/2168-6653.28.1.2

  • K. Foley, K. Foley, A. Blackmore, S. Girdler, S. Girdler, M. O'Donnell, R. Glauert, G. Llewellyn, H. Leonard (2012). "To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Wellbeing". Child Indicators Research 5. doi:10.1007/s12187-011-9134-2

  • S. Folta, L. Bandini, A. Must, J. Pelletier, K. Ryan, C. Curtin (2022). "Exploring leisure time use and impact on well-being among transition-age autistic youth". Research in Autism Spectrum Disorders doi:10.1016/j.rasd.2022.101996

  • C. Friedman (2021). "The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities". Disability and Health Journal 14. doi:10.1016/j.dhjo.2021.101117

  • D. García-Villamisar, J. Dattilo, J. Matson (2013). "Quality of Life as a Mediator between Behavioral Challenges and Autistic Traits for Adults with Intellectual Disabilities.". Research in Autism Spectrum Disorders 7. doi:10.1016/j.rasd.2012.12.009

  • J. Grey, V. Totsika, R. Hastings (2018). "Living with family: perceptions of health and subjective well‐being of adults with an intellectual disability". Journal of Intellectual Disability Research 62. doi:10.1111/jir.12479

  • R. Grove, R. Hoekstra, M. Wierda, S. Begeer (2018). "Special interests and subjective wellbeing in autistic adults". Autism Research 11. doi:10.1002/aur.1931

  • A. Günal, G. Bumin, M. Huri (2019). "The Effects of Motor and Cognitive Impairments on Daily Living Activities and Quality of Life in Children with Autism". Journal of Occupational Therapy, Schools, & Early Intervention 12. doi:10.1080/19411243.2019.1604286

  • B. Hamm, P. Mirenda (2006). "Post-school quality of life for individuals with developmental disabilities who use AAC". Augmentative and Alternative Communication 22. doi:10.1080/07434610500395493

  • M. Harmens, F. Sedgewick, H. Hobson (2022). "Autistic women's diagnostic experiences: Interactions with identity and impacts on well-being". Women's Health 18. doi:10.1177/17455057221137477

  • M. Harmens, F. Sedgewick, H. Hobson (2021). "The Quest for Acceptance: A Blog-Based Study of Autistic Women's Experiences and Well-Being During Autism Identification and Diagnosis.". Autism in adulthood : challenges and management doi:10.1089/aut.2021.0016

  • G. Hebblewhite, N. Hutchinson, K. Galvin (2020). "Adults with intellectual disabilities' lived experiences of wellbeing and the internet: a descriptive phenomenological study". Disability & Society 37. doi:10.1080/09687599.2020.1829554

  • A. Helles, A. Helles, I. Gillberg, C. Gillberg, E. Billstedt (2017). "Asperger syndrome in males over two decades: Quality of life in relation to diagnostic stability and psychiatric comorbidity". Autism 21. doi:10.1177/1362361316650090

  • L. Graham Holmes, C. Zampella, C. Clements, J. McCleery, B. Maddox, J. Parish-Morris, M. Udhnani, R. Schultz, J. Miller (2020). "A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum". Autism Research 13. doi:10.1002/aur.2275

  • M. Hosozawa, W. Mandy, N. Cable, E. Flouri (2020). "The Role of Decision-Making in Psychological Wellbeing and Risky Behaviours in Autistic Adolescents Without ADHD: Longitudinal Evidence from the UK Millennium Cohort Study". Journal of Autism and Developmental Disorders 51. doi:10.1007/s10803-020-04783-y

  • M. Hossain, N. Khan, A. Sultana, P. Ma, E. McKyer, H. Ahmed, N. Purohit (2020). "Prevalence of comorbid psychiatric disorders among people with autism spectrum disorder: An umbrella review of systematic reviews and meta-analyses". Psychiatry Research 287. doi:10.31124/advance.11497014.v1

  • B. Howard, E. Cohn, G. Orsmond (2006). "Understanding and negotiating friendships". Autism 10. doi:10.1177/1362361306068508

  • E. Ikeda, C. Krägeloh, T. Water, E. Hinckson (2015). "An Exploratory Study of Self-reported Quality of Life in Children with Autism Spectrum Disorder and Intellectual Disability". Child Indicators Research 9. doi:10.1007/s12187-015-9307-5

  • E. Ikeda, E. Hinckson, C. Krägeloh (2014). "Assessment of quality of life in children and youth with autism spectrum disorder: a critical review". Quality of Life Research 23. doi:10.1007/s11136-013-0591-6

  • J. Jamshidi, P. Schofield, J. Gatt, J. Fullerton (2022). "Phenotypic and genetic analysis of a wellbeing factor score in the UK Biobank and the impact of childhood maltreatment and psychiatric illness". Translational Psychiatry 12. doi:10.1038/s41398-022-01874-5

  • R. Khanna, K. Jariwala-Parikh, D. West-Strum, R. Mahabaleshwarkar (2014). "Health-related quality of life and its determinants among adults with autism". Research in Autism Spectrum Disorders 8. doi:10.1016/j.rasd.2013.11.003

  • A. Knüppel, G. Telléus, H. Jakobsen, M. Lauritsen (2018). "Quality of life in adolescents and adults with autism spectrum disorder: Results from a nationwide Danish survey using self-reports and parental proxy-reports.". Research in developmental disabilities 83. doi:10.1016/j.ridd.2018.09.004

  • R. Kooijmans, G. Mercera, P. Langdon, X. Moonen (2022). "The adaptation of self-report measures to the needs of people with intellectual disabilities: A systematic review.". Clinical Psychology: Science and Practice doi:10.1037/cps0000058

  • G. Lam, S. Sabnis, M. Migueliz Valcarlos, J. Wolgemuth (2021). "A Critical Review of Academic Literature Constructing Well-Being in Autistic Adults.". Autism in adulthood : challenges and management doi:10.1089/aut.2020.0053

  • G. Lam, E. Holden, M. Fitzpatrick, L. Raffaele Mendez, K. Berkman (2020). "'Different but connected': Participatory action research using Photovoice to explore well-being in autistic young adults". Autism 24. doi:10.1177/1362361319898961

  • C. Lebenhagen (2020). "Including Speaking and Nonspeaking Autistic Voice in Research.". Autism in adulthood : challenges and management doi:10.1089/aut.2019.0002

  • L. Lin, P. Huang (2019). "Quality of life and its related factors for adults with autism spectrum disorder". Disability and Rehabilitation 41. doi:10.1080/09638288.2017.1414887

  • R. Loomes, L. Hull, W. Mandy (2017). "What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis.". Journal of the American Academy of Child and Adolescent Psychiatry doi:10.1016/j.jaac.2017.03.013

  • M. López-Espejo, A. Nuñez, M. Ruz, V. Saez, O. Moscoso, R. Escobar (2022). "Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents". Journal of Autism and Developmental Disorders 53. doi:10.1007/s10803-022-05689-7

  • M. Maenner, Z. Warren, A. Robinson Williams, E. Amoakohene, A. Bakian, D. Bilder, M. Durkin, R. Fitzgerald, S. Furnier, M. Hughes, C. Ladd-Acosta, D. McArthur, E. Pas, A. Salinas, A. Vehorn, S. Williams, A. Esler, A. Grzybowski, J. Hall-Lande, R. Nguyen, K. Pierce, W. Zahorodny, A. Hudson, L. Hallas, K. Mancilla, M. Patrick, J. Shenouda, K. Sidwell, M. Dirienzo, J. Gutierrez, M. Spivey, M. Lopez, S. Pettygrove, Y. Schwenk, A. Washington, K. Shaw (2023). "Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020". MMWR Surveillance Summaries 72. doi:10.15585/mmwr.ss7202a1

  • D. Mason, J. Mackintosh, H. McConachie, J. Rodgers, T. Finch, J. Parr (2019). "Quality of life for older autistic people: The impact of mental health difficulties". Research in Autism Spectrum Disorders doi:10.1016/j.rasd.2019.02.007

  • D. Mason, H. McConachie, D. Garland, A. Petrou, J. Rodgers, J. Parr (2018). "Predictors of quality of life for autistic adults". Autism Research 11. doi:10.1002/aur.1965

  • H. McConachie, C. Wilson, D. Mason, D. Garland, J. Parr, A. Rattazzi, J. Rodgers, S. Skevington, M. Uljarević, I. Magiati (2020). "What Is Important in Measuring Quality of Life? Reflections by Autistic Adults in Four Countries.". Autism in adulthood : challenges and management doi:10.1089/aut.2019.0008

  • H. McConachie, D. Mason, J. Parr, D. Garland, C. Wilson, J. Rodgers (2017). "Enhancing the Validity of a Quality of Life Measure for Autistic People". Journal of Autism and Developmental Disorders 48. doi:10.1007/s10803-017-3402-z

  • T. McDonald (2017). "Discriminative and Criterion Validity of the Autism Spectrum Identity Scale (ASIS)". Journal of Autism and Developmental Disorders 47. doi:10.1007/s10803-017-3221-2

  • G. McQuaid, C. Weiss, A. Job Said, K. Pelphrey, N. Lee, G. Wallace (2022). "Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults". Autism Research 15. doi:10.1002/aur.2779

  • O. Medvedev, C. Landhuis (2018). "Exploring constructs of well-being, happiness and quality of life". PeerJ 6. doi:10.7717/peerj.4903

  • P. Moss, W. Mandy, P. Howlin (2017). "Child and Adult Factors Related to Quality of Life in Adults with Autism". Journal of Autism and Developmental Disorders 47. doi:10.1007/s10803-017-3105-5

  • J. Ocloo, R. Matthews* (2016). "From tokenism to empowerment: progressing patient and public involvement in healthcare improvement". BMJ Quality & Safety 25. doi:10.1136/bmjqs-2015-004839

  • R. O’Connor, N. van den Bedem, E. Blijd-Hoogewys, L. Stockmann, C. Rieffe (2022). "Friendship quality among autistic and non-autistic (pre-) adolescents: Protective or risk factor for mental health?". Autism 26. doi:10.1177/13623613211073448

  • M. Page, J. McKenzie, P. Bossuyt, I. Boutron, T. Hoffmann, C. Mulrow, L. Shamseer, J. Tetzlaff, E. Akl, S. Brennan, R. Chou, J. May Glanville, J. Grimshaw, A. Hrõbjartsson, M. Lalu, T. Li, E. Loder, E. Mayo-Wilson, S. McDonald, L. McGuinness, L. Stewart, J. Thomas, A. Tricco, V. Welch, P. Whiting, D. Moher (2020). "The PRISMA 2020 statement: an updated guideline for reporting systematic reviews". Systematic Reviews 10. doi:10.1186/s13643-021-01626-4

  • M. Potvin, L. Snider, P. Prelock, S. Wood-Dauphinee, E. Kehayia (2015). "Health-related quality of life in children with high-functioning autism". Autism 19. doi:10.1177/1362361313509730

  • D. Preece, I. Lessner Lištiaková (2021). "'There Isn't Really Anything around Here…': Autism, Education and the Experience of Families Living in Rural Coastal England". Education Sciences doi:10.3390/educsci11080397

  • L. Roche, D. Adams, M. Clark (2020). "Research priorities of the autism community: A systematic review of key stakeholder perspectives". Autism 25. doi:10.1177/1362361320967790

  • R. Rodogno, K. Krause-Jensen, R. Ashcroft (2016). "'Autism and the good life': a new approach to the study of well-being". Journal of Medical Ethics 42. doi:10.1136/medethics-2016-103595

  • A. Roestorf, P. Howlin, D. Bowler (2022). "Ageing and autism: A longitudinal follow-up study of mental health and quality of life in autistic adults". Frontiers in Psychology 13. doi:10.3389/fpsyg.2022.741213

  • R. Ryan, E. Deci (2001). "On happiness and human potentials: a review of research on hedonic and eudaimonic well-being.". Annual review of psychology 52. doi:10.1146/annurev.psych.52.1.141

  • D. Saldaña, R. Álvarez, S. Lobatón, A. María López, M. Moreno, M. Rojano (2009). "Objective and subjective quality of life in adults with autism spectrum disorders in southern Spain". Autism 13. doi:10.1177/1362361309103792

  • R. Sandercock, E. Lamarche, M. Klinger, L. Klinger (2019). "Assessing the convergence of self-report and informant measures for adults with autism spectrum disorder". Autism 24. doi:10.1177/1362361320942981

  • K. Seers, R. Hogg (2022). "'Fake it 'till you make it': Authenticity and wellbeing in late diagnosed autistic women". Feminism & Psychology 33. doi:10.1177/09593535221101455

  • R. Sheldrick, E. Neger, D. Shipman, E. Perrin (2012). "Quality of life of adolescents with autism spectrum disorders: concordance among adolescents' self-reports, parents' reports, and parents' proxy reports". Quality of Life Research 21. doi:10.1007/s11136-011-9916-5

  • D. Shipman, R. Sheldrick, E. Perrin (2011). "Quality of Life in Adolescents With Autism Spectrum Disorders: Reliability and Validity of Self-Reports". Journal of Developmental & Behavioral Pediatrics 32. doi:10.1097/dbp.0b013e318203e558

  • S. Smit, J. Hopper (2022). "Love, Joy, and a Lens of Childhood Trauma: Exploring Factors That Impact the Mental Health and Well-Being of Autistic Parents via Iterative Phenomenological Analysis.". Autism in adulthood : challenges and management doi:10.1089/aut.2021.0101

  • G. Soke, M. Maenner, D. Christensen, M. Kurzius-Spencer, L. Schieve (2018). "Prevalence of Co-occurring Medical and Behavioral Conditions/Symptoms Among 4- and 8-Year-Old Children with Autism Spectrum Disorder in Selected Areas of the United States in 2010". Journal of Autism and Developmental Disorders 48. doi:10.1007/s10803-018-3521-1

  • R. Stancliffe, K. Lakin, S. Taub, G. Chiri, S. Byun (2009). "Satisfaction and sense of well being among Medicaid ICF/MR and HCBS recipients in six states.". Intellectual and developmental disabilities doi:10.1352/1934-9556-47.2.63

  • F. van Steensel, S. Bögels, C. Dirksen (2012). "Anxiety and Quality of Life: Clinically Anxious Children With and Without Autism Spectrum Disorders Compared". Journal of Clinical Child & Adolescent Psychology 41. doi:10.1080/15374416.2012.698725

  • H. Tager-Flusberg, C. Kasari (2013). "Minimally Verbal School‐Aged Children with Autism Spectrum Disorder: The Neglected End of the Spectrum". Autism Research 6. doi:10.1002/aur.1329

  • L. Tavernor, E. Barron, J. Rodgers, H. McConachie (2013). "Finding out what matters: validity of quality of life measurement in young people with ASD.". Child: care, health and development doi:10.1111/j.1365-2214.2012.01377.x

  • E. Taylor, L. Livingston, R. Clutterbuck, M. Callan, P. Shah (2023). "Psychological strengths and well-being: Strengths use predicts quality of life, well-being and mental health in autism". Autism 27. doi:10.1177/13623613221146440

  • M. Tobin, K. Drager, L. Richardson (2014). "A systematic review of social participation for adults with autism spectrum disorders: Support, social functioning, and quality of life ☆". Research in Autism Spectrum Disorders 8. doi:10.1016/j.rasd.2013.12.002

  • V. Totsika, D. Felce, M. Kerr, R. Hastings (2010). "Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism". Journal of Autism and Developmental Disorders 40. doi:10.1007/s10803-010-0975-1

  • Z. Williams*, C. Cascio, T. Woynaroski (2022). "Measuring subjective quality of life in autistic adults with the PROMIS global–10: Psychometric study and development of an autism-specific scoring method". Autism 27. doi:10.1177/13623613221085364

  • Z. Williams*, K. Gotham (2021). "Assessing general and autism‐relevant quality of life in autistic adults: A psychometric investigation using item response theory". Autism Research 14. doi:10.1002/aur.2519

  • N. Yau, S. Anderson, I. Smith (2023). "How is psychological wellbeing experienced by autistic women? Challenges and protective factors: A meta-synthesis". Research in Autism Spectrum Disorders doi:10.1016/j.rasd.2022.102101

  • B. Yerys, G. McQuaid, N. Lee, G. Wallace (2022). "Co-occurring ADHD symptoms in autistic adults are associated with less independence in daily living activities and lower subjective quality of life". Autism 26. doi:10.1177/13623613221112198

  • H. Zazzi, R. Faragher (2018). "'Visual clutter' in the classroom: voices of students with Autism Spectrum Disorder". International Journal of Developmental Disabilities 64. doi:10.1080/20473869.2018.1468619

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