Ajouté le 07/11/2024
Article de revue du type Recherche scientifique ( ; anglais)
*Deux co-auteur·rices se sont publiquement identifié·es comme autistess. [En savoir plus sur cette mention]
Malgré les sommes énormes dépensées pour la recherche sur l'autisme, il y a eu peu de focus à ce jour sur ce que les membres de la communauté autiste estiment devoir être priorisé par les chercheurs en autisme. Notre revue systématique de la littérature a identifié trois études publiées qui avaient élaboré des ensembles de priorités de recherche sur l'autisme à large échelle. Nous avons entrepris une analyse approfondie de ces ensembles de priorités afin de déterminer si la recherche axée sur chaque priorité avait le potentiel de bénéficier au bien-être des personnes autistes et/ou de les émanciper. À cette fin, nous avons utilisé des critères de recherche 'inclusive' publiés. Nous avons également comparé les trois ensembles de priorités de recherche sur l'autisme dans le contexte du bien-être et de l'émancipation des personnes autistes. Nos résultats ont démontré des différences substantielles entre les priorités des études en termes de potentiel bénéfique et/ou émancipateur pour les personnes autistes. Les personnes autistes représentaient une petite minorité de participants dans les études où les chiffres de participation avaient été enregistrés. Il n'existe pas encore d'étude consacrée uniquement à la compréhension des priorités de recherche en autisme des adultes autistes.
Pour information:
(1) Les références en bleu sont des ressources référencées sur notre site.
(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.
(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.
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