Autism community research priorities: The potential of future research to benefit autistics

Added on 07/11/2024

Type de contenu

Journal article of the type Scientific research ( ; english)

Nick Chown * , Luke Beardon , Shona Murphy * , Elsa Suckle , Joanna Baker-Rogers
Autism community research priorities: The potential of future research to benefit autistics published in the journal "Canadian journal of educational and social studies" n°3, vol.2, 18 pages , doi: 10.53103/cjess.v3i2.118

*Two co-authors had publicly identified as autistic. [Learn more about this mention]

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Summary/Presentation

Despite the enormous amounts of money spent on autism research, there has been little focus to date on what members of the autistic community believe should be prioritised by autism researchers. Our systematic review of the literature identified three published studies that had developed wide-ranging autism research priority sets. We undertook an in-depth analysis of these priorities sets to determine whether research focused on each priority had the potential to benefit the well-being of and/or emancipate autistic individuals.  For this purpose, we used published ‘inclusive research’ criteria. We also compared the three sets of autism research priorities in the context of autistic well-being and emancipation. Our findings demonstrated substantial differences between the priorities in the studies in terms of whether they might benefit and/or be emancipatory for autistic people. Autistic people were a small minority of participants in studies where participant numbers had been recorded. There has yet to be a study focused solely on understanding the autism research priorities of autistic adults.

For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.

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