Added on 23/02/2025
Journal article of the type Perspective ( ; english)
- 9% of authors cited in the bibliography of this resource have publicly identified as autistic (10 out of 115 authors).
- 32% of references cited in this resource contain at least one author who has publicly identified as autistic (9 out of 28 references).
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Inclusive research practices are important for neurodevelopmental studies, facilitating the involvement of community members throughout the research process. Highlighting this value, we reiterate our previously proposed framework for inclusive research practice and present a selection of case studies showcasing successful implementation of inclusive approaches.
For your information:
(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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A. Alcorn, S. Fletcher-Watson, S. McGeown, F. Murray*, D. Aitken, L. Peacock, W. Mandy (2022). "Learning About Neurodiversity at School: A resource pack for primary school teachers and pupils". University of Edinburgh. (Source)
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A. Alcorn, S. Patricia McGeown, W. Mandy, D. Aitken, S. Fletcher-Watson (2023). "Learning About Neurodiversity at School (LEANS): Evaluation of the LEANS resource pack in mainstream primary schools". OSF. doi:10.31219/osf.io/fhc2k
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A. Alcorn, S. McGeown, W. Mandy, D. Aitken, S. Fletcher-Watson (2024). "Learning About Neurodiversity at School: A feasibility study of a new classroom programme for mainstream primary schools". Neurodiversity, 2. doi:10.1177/27546330241272186
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J. Davies, L. Islaam*, S. Carter*, B. Jack Michael Redmayne, K. Cooper, W. Mandy, L. Crane (2023). "Examining the support experiences of autistic young people with multiple marginalized identities in the United Kingdom". Autism in Adulthood. doi:10.1089/aut.2024.005
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J. Davies, B. Redmayne, L. Allain, L. Portway, W. Mandy, K. Cooper, L. Crane (2024). "The Codesign and Initial Evaluation of a Peer Support Program for Autistic Young Adults". Autism in Adulthood. doi:10.1089/aut.2023.0153
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S. Fletcher-Watson, K. Brook*, S. Hallett*, F. Murray*, C. Crompton (2021). "Inclusive Practices for Neurodevelopmental Research". Curr Dev Disord Rep, 8(2). doi:10.1007/s40474-021-00227-z
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E. Funnell, L. Harvey-Nguyen, D. Poulton, M. Matejko, T. Boyens, I. Jackson, G. Pavlopoulou, E. Sonuga-Barke, S. Lukito, RE-STAR Participatory Research Team (2023). "Enhancing knowledge co-production between neurodivergent young people & academic researchers to enrich experimental neuroscience". Respect for Neurodevelopment, Birkbeck, University of London.
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U. Hanemann (2015). "Learning Families: Intergenerational Approach to Literacy Teaching and Learning". UNESCO Institute for Lifelong Learning.
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J. Jagosh, A. Macaulay, P. Pluye, J. Salsberg, P. Bush, J. Henderson, E. Sirett, G. Wong, M. Cargo, C. Herbert, S. Seifer, L. Green, T. Greenhalgh (2012). "Uncovering the Benefits of Participatory Research: Implications of a Realist Review for Health Research and Practice". Milbank Quarterly, 90(2). doi:10.1111/j.1468-0009.2012.00665.x
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J. Jivraj, L. Sacrey, A. Newton, D. Nicholas, L. Zwaigenbaum (2014). "Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review". Autism, 18(7). doi:10.1177/1362361314539858
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S. Jones* (2023). "Autistics working in academia: What are the barriers and facilitators?". Autism, 27(3). doi:10.1177/13623613221118158
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C. Knight, T. Crick (2021). "The assignment and distribution of the dyslexia label: Using the UK Millennium Cohort Study to investigate the socio-demographic predictors of the dyslexia label in England and Wales". PLoS ONE, 16(8). doi:10.1371/journal.pone.0256114
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Y. Lincoln, S. Lynham, E. Guba (2011). "Paradigmatic controversies, contradictions, and emerging confluences, revisited". The Sage Handbook of Qualitative Research, 4(2).
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S. Lloyd-Evans, E. Oenga, L. Zischka, A. Mpofu-Coles, R. Woronka, M. Oveson, D. Hookway, M. Cleaver, S. Duval, E. Karanja, T. Gomma, K. Neupana, L. Ashcroft, S. Clare, D. Ma, H. Sundhararanjan, P. Watson, K. Tatys (2023). "Participatory action research: A toolkit". University of Reading.
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J. Long, H. Ballard, L. Fisher, J. Belsky (2016). "Questions That Won't Go Away in Participatory Research". Society & Natural Resources, 29(2). doi:10.1080/08941920.2015.1024368
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M. Matejko, D. Poulton, L. Harvey-Nguyen, T. Boyens, I. Jackson, G. Pavlopoulou, S. Funnell, S. Lukito, RE-STAR PR Team (2023). "Enhancing participatory neuroscience research: the RE-STAR project perspectives". (Source)
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A. Nordin, S. Kjellstrom, G. Robert, D. Masterson, K. Areskoug Josefsson (2023). "Measurement and outcomes of co-production in health and social care: a systematic review of empirical studies". BMJ Open, 13(9). doi:10.1136/bmjopen-2023-073808
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C. Parbery‐Clark, R. Nicholls, L. McSweeney, S. Sowden, J. Lally (2024). "Coproduction of a resource sharing public views of health inequalities: An example of inclusive public and patient involvement and engagement". Health Expectations, 27(1). doi:10.1111/hex.13860
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B. Redmayne, L. Allain, S. Carter*, M. Healy, L. Islaam*, L. Portway, L. Crane (2023). "Research on post-diagnostic support for autistic young people". Ambitious about Autism. (Source)
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E. J.S. Sonuga-Barke, S. Chandler, S. Lukito, M. Kakoulidou, G. Moore, N. Cooper, M. Matejko, I. Jackson, B. Balwani, T. Boyens, D. Poulton, L. Harvey-Nguyen, S. Baker, G. Pavlopoulou (2024). "Participatory translational science of neurodivergence: model for attention-deficit/hyperactivity disorder and autism research". Br J Psychiatry, 224(4). doi:10.1192/bjp.2023.151
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S. Weschke, D. Louise Franzen, A. Karolina Sierawska, L. Bonde, D. Strech, S. Gabriele Schorr (2023). "Reporting of patient involvement: a mixed-methods analysis of current practice in health research publications using a targeted search strategy". BMJ Open, 13(1). doi:10.1136/bmjopen-2022-064170
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E. Wilson, A. Kenny, V. Dickson-Swift (2018). "Ethical challenges of community based participatory research: exploring researchers' experience". International Journal of Social Research Methodology, 21(1). doi:10.1080/13645579.2017.1296714
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R. Zahir, M. Somerville, C. Tye, S. Fletcher-Watson (2024). "Community Partner Recruitment Pack". osf.io/7evsm
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R. Zahir, A. Alcorn, S. McGeown, W. Mandy, D. Aitken, F. Murray*, S. Fletcher-Watson (2024). "Short report: Evaluation of wider community support for a neurodiversity teaching programme designed using participatory methods". Autism, 28(6). doi:10.1177/13623613231211046
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