The to be, or not to be, of acting autistic

Added on 03/11/2024

Type de contenu

Journal article of the type Scientific research ( ; english)

The to be, or not to be, of acting autistic published in the journal "Autism" Preprint, 13 pages , doi: 10.1177/13623613241290270

=> Restricted and paid access

Summary/Presentation

There are an increasing number of autistic characters seen in film and television, and an increasing number of autistic individuals entering the workforce. At the intersection of media and employment, only a small proportion of autistic characters are played by autistic actors. This study examines the experiences of professional autistic actors who have played autistic characters in film and television. Secondary aims examine autistic actors’ impressions of autistic representations. Using thematic analysis grounded in transformative and postpositivist frameworks, nine autistic actors participated in interviews and discussed their experiences as professional actors, and their reactions to autism portrayals. Qualitative analysis of interview transcripts revealed three salient themes: (1) advantages and disadvantages of disclosing autism, (2) professional networks, and (3) windows and mirrors. Actors described trying to balance a desire to distance themselves from their diagnosis with a desire to build their resume and take advantage of opportunities specifically available for autistic actors. Actors benefited from professional support networks who were knowledgeable about autism and who advocated their inclusion and employment. They appreciated seeing autistic characters on the screen, but also expressed concerns with inauthentic casting and overrepresentations of stereotypical and misleading portrayals. Actors’ recommendations for future autistic characterizations are described. Lay abstract Autistic characters are becoming more common in film and television, and a growing number of production companies are making efforts to hire autistic actors to play autistic characters. The purpose of this study is to learn about the experiences of professional autistic actors who have played autistic characters in professional media productions. We also explored autistic actors’ impressions of the autistic characters they have seen on screen. We interviewed nine professional autistic actors, who discussed their experiences as professional actors playing autistic characters. Interviews revealed the following themes, including (1) the advantages and disadvantages of disclosing autism, (2) professional networks, and (3) windows and mirrors. Throughout the interviews, the actors discussed instances when they needed to identify as being autistic to take advantage of autism-focused employment opportunities, and other instances when they felt more comfortable not identifying as autistic. Actors’ professional support networks were knowledgeable about autism and advocated for the inclusion and employment of autistic actors. They appreciated the growing number of autistic characters on screen but hoped more production companies invest in authentic casting initiatives. Actors compel production companies to move away from overplayed stereotypical and misleading portrayals. The actors’ recommendations for future autistic characterizations are described. 


For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.


  • C. Allyn (2021). "Windows and mirrors: Why positive representation of disabled and LGBTQ+ people in media matters". The Lion's Pride, 14. (Source)

  • M. Ameri, L. Schur, M. Adya, F. S. Bentley, P. McKay, D. Kruse (2018). "The disability employment puzzle: A field experiment on employer hiring behavior". ILR Review, 71(2). doi:10.1177/0019793916688485

  • M. Ameri, L. Schur, M. Adya, F. Scott Bentley, P. McKay, D. Kruse (2018). "The Disability Employment Puzzle: A Field Experiment on Employer Hiring Behavior". ILR Review, 71(2). doi:10.1177/0019793917717474

  • Annenberg Inclusion Initiative (2020). "Inequality in 1,300 popular films: Examining portrayals of gender, race/ethnicity, LGBTQ & disability from 2007 to 2019". (Source)

  • Anti-Defamation League (2019). "Diversity in media and why visibility matters". ADL Education. (Source)

  • B. Bond (2021). "The Development and Influence of Parasocial Relationships With Television Characters: A Longitudinal Experimental Test of Prejudice Reduction Through Parasocial Contact". Communication Research, 48(4). doi:10.1177/0093650219900632

  • V. Braun, V. Clarke (2023). "Toward good practice in thematic analysis: Avoiding common problems and be(com)ing aknowingresearcher". International Journal of Transgender Health, 24(1). doi:10.1080/26895269.2022.2129597

  • E. Buckley, E. Pellicano, A. Remington (2021). "Higher levels of autistic traits associated with lower levels of self-efficacy and wellbeing for performing arts professionals". PLoS ONE, 16(2). doi:10.1371/journal.pone.0246423

  • E. Buckley, E. Pellicano, A. Remington (2021). "'The Real Thing I Struggle with is Other People's Perceptions': The Experiences of Autistic Performing Arts Professionals and Attitudes of Performing Arts Employers in the UK". J Autism Dev Disord, 51(1). doi:10.1007/s10803-020-04517-0

  • S. Bury, R. Zulla, J. Spoor, R. Flower, D. Nicholas, D. Hedley (2024). "An ecological systems model of employee experience in industry-led autism employment programmes". Autism, 28(6). doi:10.1177/13623613241241574

  • R. Evert Cimera, R. Cowan (2009). "The costs of services and employment outcomes achieved by adults with autism in the US". Autism, 13(3). doi:10.1177/1362361309103791

  • Calla (2021). "Employing disabled writers: A best practices guide" [White paper]. Media Access Awards. (Source)

  • Centers for Disease Control and Prevention (2024, January 25). "Autism spectrum disorder in teenagers and adults". (Source)

  • J. Cresswell (2013). "Qualitative inquiry & research design: Choosing among five approaches". SAGE.

  • J. W. Creswell (2017). "Research design: Qualitative, quantitative, and mixed methods approaches". Sage Publications.

  • M. Dean, R. Harwood, C. Kasari (2017). "The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder". Autism, 21(6). doi:10.1177/1362361316671845

  • C. Dickter, J. Burk, L. Gutermuth Anthony, H. Robertson, A. Verbalis, S. Seese, Y. Myrick, B. Anthony (2021). "Assessment of Sesame Street online autism resources: Impacts on parental implicit and explicit attitudes toward children with autism". Autism, 25(1). doi:10.1177/1362361320949346

  • M. Diener, C. Wright, C. Taylor, V. D’Astous, L. Lasrich (2020). "Dual perspectives in autism spectrum disorders and employment: Toward a better fit in the workplace". WOR, 67(1). doi:10.3233/wor-203268

  • J. Dreaver, C. Thompson, S. Girdler, M. Adolfsson, M. Black, M. Falkmer (2020). "Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers' Perspective". J Autism Dev Disord, 50(5). doi:10.1007/s10803-019-03923-3

  • M. Ezerins, L. Simon, T. Vogus, A. Gabriel, C. Calderwood, C. Rosen (2024). "Autism and Employment: A Review of the 'New Frontier' of Diversity Research". Journal of Management, 50(3). doi:10.1177/01492063231193362

  • R. Fontes, M. Pino-Juste (2022). "Portrayals of autism and social awareness: a scoping review". AIA, 8(3). doi:10.1108/aia-02-2021-0014

  • A. Garner, S. Jones*, V. Harwood (2015). "Authentic representations or stereotyped 'outliers': using the CARS2 to assess film portrayals of Autism Spectrum Disorders". International Journal of Culture and Mental Health, 8(4). doi:10.1080/17542863.2015.1041993

  • P. Gerhardt, F. Cicero, E. Mayville (2014). "Employment and Related Services for Adults with Autism Spectrum Disorders". Adolescents and Adults with Autism Spectrum Disorders. doi:10.1007/978-1-4939-0506-5_6

  • G. Guest, K. M. MacQueen, E. E. Namey (2012). "Introduction to applied thematic analysis". Applied Thematic Analysis, 3(20).

  • J. Andreas Guskos, E. Nordmann (2023). "Minorities in Streaming Services: The Impact of LGBTQ+ Character Representation On Viewers". doi:10.31234/osf.io/kaz2j

  • J. Halsall, C. Clarke, L. Crane (2021). "'Camouflaging' by adolescent autistic girls who attend both mainstream and specialist resource classes: Perspectives of girls, their mothers and their educators". Autism, 25(7). doi:10.1177/13623613211012819

  • P. Hipes (2018, May 18). "Warnermedia unveils company-wide diversity and inclusion policy, from film to TV". Deadline. (Source)

  • A. Jerrentrup, T. Mueller, U. Glowalla, M. Herder, N. Henrichs, A. Neubauer, J. Schaefer (2018). "Teaching medicine with the help of 'Dr. House'". PLoS ONE, 13(3). doi:10.1371/journal.pone.0193972

  • T. Johnson, A. Joshi (2014). "Disclosure on the Spectrum: Understanding Disclosure Among Employees on the Autism Spectrum". Ind. organ. psychol., 7(2). doi:10.1111/iops.12149

  • T. Johnson, A. Joshi (2015). "Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being.". Journal of Applied Psychology, 101(3). doi:10.1037/apl0000058

  • S. C. Jones*, C. S. Gordon, S. Mizzi (2023). "Representation of autism in fictional media: A systematic review of media content and its impact on viewer knowledge and understanding of autism". Autism, 27.

  • S. Jones*, C. Gordon, S. Mizzi (2023). "Representation of autism in fictional media: A systematic review of media content and its impact on viewer knowledge and understanding of autism". Autism, 27(8). doi:10.1177/13623613231155770

  • J. Katims (Executive Producer) (2022). "As we see it" [TV series]. Amazon Prime Video.

  • D. Lerman, B. White, C. Grob, C. Laudont (2017). "A Clinic-Based Assessment for Evaluating Job-Related Social Skills in Adolescents and Adults with Autism". Behav Analysis Practice, 10(4). doi:10.1007/s40617-017-0177-9

  • S. Lindsay, V. Osten, M. Rezai, S. Bui (2021). "Disclosure and workplace accommodations for people with autism: a systematic review". Disability and Rehabilitation, 43(5). doi:10.1080/09638288.2019.1635658

  • M. Lopera-Mármol, M. Jiménez-Morales, M. Jiménez-Morales (2023). "Narrative representation of depression, ASD, and ASPD in «Atypical», «My Mad Fat Diary» and «The End of The F***ing World»". Communication & Society, 36(1). doi:10.15581/003.36.1.17-34

  • D. M. Mertens (2023). "Research and evaluation in education and psychology: Integrating diversity with quantitative, qualitative, and mixed methods". SAGE.

  • D. Mertens (2017). "Transformative research: personal and societal". International Journal for Transformative Research, 4(1). doi:10.1515/ijtr-2017-0001

  • H. Shaul Bar Nissim, R. J. Mitte (2020). "Authentic representation in television 2018" [White paper]. Ruderman Family Foundation. (Source)

  • C. O’Connor, H. Joffe (2020). "Intercoder Reliability in Qualitative Research: Debates and Practical Guidelines". International Journal of Qualitative Methods, 19. doi:10.1177/1609406919899220

  • S. Park (2012). "Mediated Intergroup Contact: Concept Explication, Synthesis, and Application". Mass Communication and Society, 15(1). doi:10.1080/15205436.2011.558804

  • D. C. Phillips, N. C. Burbules (2000). "Postpositivism and educational research". Rowman & Littlefield.

  • T. W. Ressa, A. Goldstein (2021). "Autism in the movies: Stereotypes and their effects on neurodiverse communities". Journal of Disability Studies, 7(2).

  • R. Rosales, H. Whitlow (2019). "A component analysis of job interview training for young adults with autism spectrum disorder". Behavioral Interventions, 34(2). doi:10.1002/bin.1658

  • A. Roux, J. Rast, K. Anderson, J. Rava, P. Shuttuck (2023). "Transition into Young Adulthood: National Autism Indicators Report". A. J. Drexel Autism Institute, Drexel University.

  • P. Saperstein (2023, March 23). "Hire disabled writers, not just a disability consultant: Demands letter from dozens of creators". Variety. (Source)

  • E. Schiappa, P. Gregg, D. Hewes (2005). "The Parasocial Contact Hypothesis". Communication Monographs, 72(1). doi:10.1080/0363775052000342544

  • M. Scott, B. Milbourn, M. Falkmer, M. Black, S. Bӧlte, A. Halladay, M. Lerner, J. Lounds Taylor, S. Girdler (2019). "Factors impacting employment for people with autism spectrum disorder: A scoping review". Autism, 23(4). doi:10.1177/1362361318787789

  • P. Shattuck, S. Carter Narendorf, B. Cooper, P. Sterzing, M. Wagner, J. Lounds Taylor (2012). "Postsecondary Education and Employment Among Youth With an Autism Spectrum Disorder". Pediatrics, 129(6). doi:10.1542/peds.2011-2864

  • C. Solomon (2020). "Autism and Employment: Implications for Employers and Adults with ASD". J Autism Dev Disord, 50(11). doi:10.1007/s10803-020-04537-w

  • T. Hartman Squire, K. Kopić, D. C. Mitchell (2017). "On the challenge to create more authentic disability casting and representation on TV" [White paper]. Ruderman Family Foundation. (Source)

  • M. Sreckovic, T. Schultz, S. Kucharczyk, N. Welsh-Young (2024). "Coming out autistic at work: A review of the literature". Autism, 28(7). doi:10.1177/13623613231206420

  • S. Stern, J. Barnes (2019). "Brief Report: Does Watching The Good Doctor Affect Knowledge of and Attitudes Toward Autism?". J Autism Dev Disord, 49(6). doi:10.1007/s10803-019-03911-7

  • J. Thomas (2020–2021). "Everything’s gonna be okay" [TV series]. Freeform.

  • K. Thomson (2021). "An analysis of LGBTQ+ representation in television and film". Bridges: An Undergraduate Journal of Contemporary Connections, 5(1), Article 7. (Source)

  • C. Treweek, C. Wood, J. Martin, M. Freeth (2019). "Autistic people's perspectives on stereotypes: An interpretative phenomenological analysis". Autism, 23(3). doi:10.1177/1362361318778286

  • M. Waisman-Nitzan, E. Gal, N. Schreuer (2021). "'It's like a ramp for a person in a wheelchair': Workplace accessibility for employees with autism". Research in Developmental Disabilities, 114. doi:10.1016/j.ridd.2021.103959

  • C. Whelpley, G. Banks, J. Bochantin, R. Sandoval (2021). "Tensions on the spectrum: an inductive investigation of employee and manager experiences of autism". J Bus Psychol, 36(2). doi:10.1007/s10869-019-09676-1

  • Y. Zhong (2020). "Explaining the effects of vicarious contact in an entertainment television program about autism". (Source)


 
Summarize/Comment on/Translate this reference?