Added on 30/06/2024
Journal article of the type Commentary ( ; english)
*One co-author has publicly identified as autistic. [Learn more about this mention]
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Bottema-Beutel, Crowley, Sandbank, and Woynaroski (Journal of Child Psychology and Psychiatry, 2020) have performed a Herculean and invaluable task in their investigation of conflicts of interest (COIs) in nonpharmacological early autism intervention research. Drawing on a meta-analysis of 150 articles reporting group designs, they found COIs in 105 (70%), only 6 (5.7%) of which had fully accurate COI statements. Most reports had no COI statements, but among the 48 (32%) which did, the majority of those declaring no COIs had detectable COIs (23 of 30; 77%). Thus, COI reporting in the literature examined is routinely missing, misleading, and/or incomplete; accurate reporting is the exception rather than the rule. That 120 of the 150 reports were published in 2010 or later, compared to 6 pre-2000, tells us this is not about practices confined to decades past. Instead, it reflects and is a telling indictment of established standards in autism intervention research.
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(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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K. Bottema-Beutel, S. Crowley (2020). "Synthesizing classroom intervention effects for autistic students: Commentary on Watkins et al., 2019." Research in Autism Spectrum Disorders, 76, 101586. doi:10.1016/j.rasd.2020.101586
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P. Cuijpers, I. A. Cristea (2016). "How to prove that your therapy is effective, even when it is not: A guideline." Epidemiology and Psychiatric Sciences, 25, 428–435. doi:10.1017/s2045796015000864
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L. French, E. M. Kennedy (2018). "Annual Research Review: Early intervention for infants and young children with, or at-risk of, autism spectrum disorder: A systematic review." Journal of Child Psychology and Psychiatry, 59, 444–456. doi:10.1111/jcpp.12828
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Jon. Green, S. Garg (2018). "Annual Research Review: The state of autism intervention science: Progress, target psychological and biological mechanisms and future prospects." Journal of Child Psychology and Psychiatry, 59, 424–443. doi:10.1111/jcpp.12892
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C. Heneghan, B. Goldacre, K. R. Mahtani (2017). "Why clinical trial outcomes fail to translate into benefits for patients." Trials, 18, 122. doi:10.1186/s13063-017-1870-2
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R. M. Jones, C. Carberry, A. Hamo, C. Lord (2017). "Placebo-like response in absence of treatment in children with autism." Autism Research, 10, 1567–1572. doi:10.1002/aur.1798
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L. C. Milner, M. K. Cho (2014). "Focusing on cause or cure? Priorities and stakeholder presence in childhood psychiatry research." AJOB Empirical Bioethics, 5, 44–55. doi:10.1080/21507716.2013.811315
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B. Reichow, F. R. Volkmar, D. V. Cicchetti (2008). "Development of the evaluative method for evaluating and determining evidence-based practices in autism." Journal of Autism and Developmental Disorders, 38, 1311–1319. doi:10.1007/s10803-007-0517-7
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M. Rodgers, D. Marshall, M. Simmonds, A. Le Couteur, M. Biswas, K. Wright, D. Rai, S. Palmer, L. Stewart, R. Hodgson (2020). "Interventions based on early intensive applied behaviour analysis for autistic children: A systematic review and cost-effectiveness analysis." Health Technology Assessment, 24, 1–306. doi: 10.3310/hta24350
This resource is cited in 1 resource referenced on the site:
- Elizabeth Pellicano & coll. (2022, en), "Shifting from 'normal science' to neurodiversity in autism science".
This resource has not (yet) been cited on Bluesky.
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