Les expériences des adultes autistes précédemment diagnostiqués avec un trouble de la personnalité limite ou émotionnellement instable : une étude phénoménologique

Ajouté le 19/09/2024

Type de contenu

Article de revue du type Recherche scientifique ( ; anglais)

Bruce Tamilson , Jessica Eccles , Sebastian Shaw *
The experiences of autistic adults who were previously diagnosed with borderline or emotionally unstable personality disorder: A phenomenological study publié dans la revue "Autism" Preprint, 14 pages , doi: 10.1177/13623613241276073

*Un.e co-auteur·rice s'est publiquement identifié·e comme autiste. [En savoir plus sur cette mention]

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Résumé/Présentation

Un nombre croissant d'études s'intéressent aux liens entre l'autisme et le trouble de la personnalité borderline. Les études rapportent des différences qui se chevauchent ainsi que les difficultés à différencier ces deux diagnostics. En pratique, de nombreuses personnes, en particulier les femmes autistes, ressentent qu'elles ont été mal diagnostiquées avec un trouble de la personnalité borderline. Cette étude visait à explorer les expériences d'adultes autistes ayant précédemment reçu un diagnostic de trouble de la personnalité borderline. Il s'agit d'une étude phénoménologique interprétative. Les données ont été recueillies à l'aide d'entretiens individuels semi-structurés. Les enregistrements audio des entretiens ont été transcrits et analysés à l'aide d'une analyse phénoménologique interprétative. Dix personnes ont participé à l'étude. Toutes se sont rappelées des différences autistiques présentes depuis l'enfance qui n'avaient pas été remarquées. Dans la plupart des cas, le trouble de la personnalité borderline a été ressenti comme un mauvais diagnostic. Ce diagnostic erroné a entraîné une stigmatisation, un éclipsage diagnostique et des expériences néfastes pour nos participants. Bien qu'elles ne s'identifient pas à ce diagnostic, elles se sentaient impuissantes à le contester. En revanche, recevoir un diagnostic d'autisme a été « transformateur ». Bien que cela n'ait pas tout résolu, cela a été profondément validant. Cela leur a également permis d'être authentiques, déplaçant le focus du « traitement » et de la modification de leur personnalité pour s'adapter aux autres, vers une acceptation de leurs différences et de leur neurotype. Cela a considérablement amélioré leur santé mentale.

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(1) Les références en bleu sont des ressources référencées sur notre site.

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(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

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