'Survivants du verre de mer': témoignages de personnes autistes sur leurs expériences éducatives

Ajouté le 19/06/2024

Type de contenu

Article de revue du type Témoignage (février 2024 ; anglais)

Jacqui Shepherd , Beth Sutton * , Simon Smith * , Marysia Szlenkier *

'Sea-glass survivors': Autistic testimonies about education experiences publié dans la revue "British Journal of Special Education" Preprint, 14 pages , doi: 10.1111/1467-8578.12506

*Trois co-auteur·rices se sont publiquement identifié·es comme autistess. [En savoir plus sur cette mention]

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Résumé/Présentation

Cet article est différent. Les témoignages originaux de trois adultes autistes qui réfléchissent à leurs expériences éducatives sont reproduits dans leur intégralité. Ces récits ont évolué à partir d’un webinaire qui a exploré la « voix » autiste à travers des présentations de recherche et des expériences vécues, et cet article co-écrit cherche à communiquer ces réflexions à un public plus large. Les témoignages sont rassemblés, interprétés et analysés à travers le prisme du modèle social du handicap, mettant en lumière les systèmes capacitistes dans lesquels ces adultes ont dû opérer. Tous partagent le défi d’essayer de s’intégrer dans un système éducatif construit socialement et 'neuronormativement', connaissant la marginalisation, le manque de compréhension et le manque de soutien approprié. Cependant, les trois auteurs émergent comme plus que des « survivants de verre de mer », patinés et usés, ayant développé des stratégies de survie, mais démontrent leur détermination à améliorer la vie de ceux qui suivent leur sillage. Cet article attire l’attention sur la nécessité d’écouter plus fréquemment les personnes autistes, mais surtout de les impliquer en tant qu’architectes du changement pour l’avenir. L'article a été co-créé par trois personnes autistes, qui s'identifient comme neurodivergentes, en discussion et en collaboration avec l'auteur principal qui est un allié de l'autisme, un chercheur sur l'autisme et l'éducation, et parent d'un fils autiste.

Pour information:

(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

DfE (Department for Education) & DoH (Department of Health) (2015). "Special educational needs and disability code of practice: 0 to 25 years".

NAS (National Autistic Society) (2021). "Education report".

NAS (National Autistic Society) (2023). "Education report".

UN (United Nations) (1989). "Convention on the rights of the child".

UN (United Nations) (2006). "Convention on the rights of persons with disabilities, general comment no. 4 on the right to inclusive education".

UN (United Nations) (2015). "Sustainable development goals".

UNESCO (United Nations Educational, Scientific and Cultural Organization) (1994). "The Salamanca statement and framework for action on special needs education".

WHO (World Health Organization) (2022). "International statistical classification of diseases and related health problems".

A. Psychiatric Association (2013). "Diagnostic and Statistical Manual of Mental Disorders".

C. Barnes (2002). "Disability studies today".

L. Beardon (2017). "Perspectives on autism blog: for the love of inclusion".

S. Bellini (2004). "Social Skill Deficits and Anxiety in High-Functioning Adolescents With Autism Spectrum Disorders". Focus Autism Other Dev Disabl, 19(2). doi:10.1177/10883576040190020201

V. Braun, V. Clarke (2006). "Using thematic analysis in psychology". Qualitative Research in Psychology, 3(2). doi:10.1191/1478088706qp063oa

N. Chown*, J. Baker-Rogers, L. Hughes, K. Nicola Cossburn, P. Byrne (2018). "The 'High Achievers' project: an assessment of the support for students with autism attending UK universities". Journal of Further and Higher Education, 42(6). doi:10.1080/0309877x.2017.1323191

N. Chown*, N. Beavan (2012). "Intellectually capable but socially excluded? A review of the literature and research on students with autism in further education". Journal of Further and Higher Education, 36(4). doi:10.1080/0309877x.2011.643771

A. Cook, J. Ogden, N. Winstone (2018). "Friendship motivations, challenges and the role of masking for girls with autism in contrasting school settings". European Journal of Special Needs Education, 33(3). doi:10.1080/08856257.2017.1312797

J. Cusack* (2017). "Participation and the gradual path to a better life for autistic people". Autism, 21(2). doi:10.1177/1362361316680155

A. DePape, S. Lindsay (2016). "Lived Experiences From the Perspective of Individuals With Autism Spectrum Disorder". Focus Autism Other Dev Disabl, 31(1). doi:10.1177/1088357615587504

J. Dolmage (2017). "Academic Ableism". Ann Arbor: University of Michigan Press

C. Ellis (2000). "Handbook of qualitative research".

S. Fletcher-Watson, J. Adams*, K. Brook*, T. Charman, L. Crane, J. Cusack*, S. Leekam, D. Milton*, J. Parr, E. Pellicano (2019). "Making the future together: Shaping autism research through meaningful participation". Autism, 23(4). doi:10.1177/1362361318786721 [Consulter la référence]

S. Fletcher‐Watson (2016). "Autistic person, or person with autism?".

N. Gelbar, I. Smith, B. Reichow (2014). "Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs". J Autism Dev Disord, 44(10). doi:10.1007/s10803-014-2135-5

C. Goodall (2018). "'I felt closed in and like I couldn't breathe': A qualitative study exploring the mainstream educational experiences of autistic young people". Autism & Developmental Language Impairments, 3. doi:10.1177/2396941518804407

T. Grandin (1986). "Emergence, labeled autistic".

A. Grant*, H. Kara (2021). "Considering the Autistic advantage in qualitative research: the strengths of Autistic researchers". Contemporary Social Science, 16(5). doi:10.1080/21582041.2021.1998589

G. Guldberg (2021). "Investigation of the causes and implications of exclusion for autistic children and young people".

P. Haug (2017). "Understanding inclusive education: ideals and reality". Scandinavian Journal of Disability Research, 19(3). doi:10.1080/15017419.2016.1224778

J. Hebron, N. Humphrey (2014). "Exposure to bullying among students with autism spectrum conditions: A multi-informant analysis of risk and protective factors". Autism, 18(6). doi:10.1177/1362361313495965

N. Hodge, E. Rice, L. Reidy (2019). "'They're told all the time they're different': how educators understand development of sense of self for autistic pupils". Disability & Society, 34(9-10). doi:10.1080/09687599.2019.1594700

F. Horgan, N. Kenny, P. Flynn (2023). "A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools". Autism, 27(2). doi:10.1177/13623613221105089

L. Kenny, C. Hattersley, B. Molins, C. Buckley, C. Povey, E. Pellicano (2016). "Which terms should be used to describe autism? Perspectives from the UK autism community". Autism, 20(4). doi:10.1177/1362361315588200 [Consulter la référence]

S. Yoon Kim, S. Crowley (2021). "Understanding perceptions and experiences of autistic undergraduate students toward disability support offices of their higher education institutions". Research in Developmental Disabilities, 113. doi:10.1016/j.ridd.2021.103956

B. Kolk (2015). "The body keeps the score: brain, mind, and body in the healing of trauma".

K. Leadbitter, K. Leneh Buckle*, C. Ellis, M. Dekker* (2021). "Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice". Front. Psychol., 12. doi:10.3389/fpsyg.2021.635690 [Consulter la référence]

R. Lilley (2015). "Trading places: Autism Inclusion Disorder and school change". International Journal of Inclusive Education, 19(4). doi:10.1080/13603116.2014.935813

R. Long, A. Stabler (2022). "'This is NOT okay:' Building a creative collective against academic ableism". Journal of Curriculum and Pedagogy, 19(4). doi:10.1080/15505170.2021.1926374

A. MacLeod, J. Allan, A. Lewis, C. Robertson (2018). "'Here I come again': the cost of success for higher education students diagnosed with autism". International Journal of Inclusive Education, 22(6). doi:10.1080/13603116.2017.1396502

S. McCowan*, S. Shaw*, M. Doherty*, B. Grosjean*, P. Blank, M. Kinnear (2021). "Vive la difference! Celebrating and supporting autistic psychiatrists with autistic doctors international". BJPsych open, 7(S1). doi:10.1192/bjo.2021.157

E. McPeake, K. Lamore, E. Boujut, J. El Khoury, C. Pellenq, M. Plumet, E. Cappe (2023). "'I just need a little more support': A thematic analysis of autistic students' experience of university in France". Research in Autism Spectrum Disorders, 105. doi:10.1016/j.rasd.2023.102172

D. E.M. Milton* (2012). "On the ontological status of autism: the 'double empathy problem'". Disability & Society, 27(6). doi:10.1080/09687599.2012.710008 [Consulter la référence]

D. Murray*, M. Lesser*, W. Lawson* (2005). "Attention, monotropism and the diagnostic criteria for autism". Autism, 9(2). doi:10.1177/1362361305051398 [Consulter la référence]

M. Oliver (1990). "The Politics of Disablement". Basingstoke: Macmillan.

M. Oliver (2013). "The social model of disability: thirty years on". Disability & Society, 28(7). doi:10.1080/09687599.2013.818773

T. Shakespeare (2014). "Disability rights and wrongs revisited".

S. Shaw*, A. Fossi, L. Carravallah*, K. Rabenstein, W. Ross, M. Doherty* (2023). "The experiences of autistic doctors: a cross-sectional study". Front. Psychiatry, 14. doi:10.3389/fpsyt.2023.1160994

J. Slater (2017). "The Palgrave handbook of disabled children's childhood studies".

C. StEvens (2024). "The lived experience of autistic teachers: a review of the literature". International Journal of Inclusive Education, 28(9). doi:10.1080/13603116.2022.2041738

B. Sutton* (2021). "'I like you being here'". HAU: Journal of Ethnographic Theory, 11(2). doi:10.1086/717106

C. Thomas (2004). "How is disability understood? An examination of sociological approaches". Disability & Society, 19(6). doi:10.1080/0968759042000252506

R. Wood (2021). "Autism, intense interests and support in school: from wasted efforts to shared understandings". Educational Review, 73(1). doi:10.1080/00131911.2019.1566213

R. Wood, L. Crane, F. Happé, R. Moyse (2024). "Learning from autistic teachers: lessons about change in an era of COVID-19". Educational Review, 76(5). doi:10.1080/00131911.2022.2103521

R. Wood, F. Happé (2023). "What are the views and experiences of autistic teachers? Findings from an online survey in the UK". Disability & Society, 38(1). doi:10.1080/09687599.2021.1916888

R. Woods* (2017). "Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt". Disability & Society, 32(7). doi:10.1080/09687599.2017.1328157

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