'Une tempête parfaite': Expériences autistes de la ménopause et du milieu de vie

Ajouté le 10/11/2024

Type de contenu

Article de revue du type Recherche scientifique ( ; anglais)

Miranda Brady , Christine Jenkins * , Julie Gamble-Turner , Rachel Moseley * , Margaret Janse van Rensburg , Rose Matthews *
'A perfect storm': Autistic experiences of menopause and midlife publié dans la revue "Autism" n°28, vol.6, 14 pages , doi: 10.1177/13623613241244548

*Trois co-auteur·rices se sont publiquement identifié·es comme autistess. [En savoir plus sur cette mention]

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Résumé/Présentation

Des recherches antérieures indiquent que la ménopause peut être une transition extrêmement difficile pour certaines personnes autistes. Cette étude s'intéresse à la façon dont les personnes autistes vivent la ménopause et comment elles peuvent mieux accéder aux services, au soutien et à l'information ; des Associés de recherche communautaire autistes ont joué un rôle important à chaque étape de la recherche. Des groupes de discussion en ligne et des entretiens ont été menés avec 24 participants autistes vivant au Canada (n = 13) ou au Royaume-Uni (n = 11) et ayant une expérience de la transition ménopausique. Les transcriptions ont été codées et analysées par quatre membres de l'équipe à l'aide d'une analyse thématique réflexive. Quatre thèmes et huit sous-thèmes ont été identifiés : (1) Complexité, multiplicité et intensité des symptômes (0 sous-thèmes) ; (2) Convergence des expériences de vie et des difficultés à la mi-vie (trois sous-thèmes) ; (3) Importance du savoir et de la connexion (deux sous-thèmes) ; et (4) Obstacles au soutien et aux soins (trois sous-thèmes). Les limitations incluent un biais potentiel de l'échantillon vers des expériences difficiles de la ménopause. La majorité de notre échantillon a eu un diagnostic tardif ou une découverte tardive de l'autisme, et leurs expériences pourraient ne pas être généralisables aux populations autistes plus larges. Cette recherche pourrait aider les personnes autistes à se préparer à la ménopause et à reconnaître les symptômes plus tôt. Entendre parler des expériences d'autres personnes pourrait permettre aux personnes autistes en difficulté face à la ménopause de savoir qu'elles ne sont pas seules.

Pour information:

(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

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