Added on 13/12/2024
Journal article of the type Perspective ( ; english)
*The author has publicly identified as autistic. [Learn more about this mention]
[First lines]
Autistic people are generally seen as lacking in ability to share common interests with others, disconnected from social participation and fellowship, and inaccessible to social transmission of behaviors and attitudes. These are core aspects of what has been described as autistic "aloneness," "withdrawal," and "disconnectedness," autistic people "living in their own worlds," being "trapped" inside "shells" or behind "invisible walls," and many similar terms used by neurotypical (NT) people to describe their perception that autistic people are unable to be "together" with other people. (For examples see Frith, 1992; Maurice, 1994; Kaufman, 1995; Claiborne Park, 1968; Tustin, 1990).
For autistic people the situation is not so clear-cut. Some of us, at some times in our lives (generally early childhood), really aren't aware of other people or their activities or their attempts to connect with us. Others of us are aware of the people around us, but find them difficult or impossible to understand. Some of us have sensory sensitivities that make being around other people distressing to us, either because of the people themselves (unwanted touching, loud talking, perfumes and other overwhelming scents), or because of sensory features of the environments in which we encounter other people. Some of us aren't interested in the same things the people around us are interested in, and we don't have a natural impulse to take interest in things just because we observe that other people find them interesting. Some of us are keenly interested in other people and their interests and activities, but we don't know how to engage with other people around those shared interests.
For your information:
(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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A. P. (2009). "Small Talk." Wellsphere. (Source)
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M. Aston (n.d.). "Cassandra Affective Deprivation Disorder." (Source)
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Autism Network International (n.d. a). "Introducing ANI." (Source)
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Autism Network International (n.d. b). "Autism Network International presents Autreat." (Source)
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Autism Network International (2009). "Autreat 2010: Call for Proposals." (Source)
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Autreat Planning Committee (n.d.). "Policy Regarding On-Site Manager's Discretion to Make Executive Decisions about People Attending Autreat." (Source)
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Autscape (2009). "Expectations." (Source)
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A. Baggs* (2006a). "Lessons on Inclusion from a Segregated School, Version 2 (from memory, not an exact reproduction of the first one)." (Source)
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L. Broun (1996). "The Experience of Teaching a Congregated Class of Autistic Children." In Education Committee of Autism Society Ontario (ed.), Navigating the Special Education System In Ontario - A Handbook for Parents of Children with Autism/PDD, Willowdale, Ontario: Autism Society Ontario.
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C. Park (1968). "The Siege." Gerrards Cross, UK: Colin Smythe.
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L. J. Cohen (2006). "Autreat." Aspies — A Place for Self-Advocacy. (Source)
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S. Cousins (1993). "Neural connections in Toronto." Our Voice: The Newsletter of Autism Network International, 1(3).
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D. Debbaudt (2002). "Section A: A Definition & A Law Enforcement Handout." Avoiding Unfortunate Situations. (Source)
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T. J. Foden (2008). "Sibling Studies: The Good, the Bad, and the Contradictory." IAN Community. (Source)
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K. French (1993). "My Personal Holiday." Our Voice: The Newsletter of Autism Network International, 1(3).
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U. Frith (1992). "Autism: Explaining the Enigma." Malden, MA: Blackwell Publishing.
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J. E. Helms (1995). "An Update of Helms's White and People of Color Racial Identity Models." In Ponterotto, J. G., Casas, J. M., Suzuki, L. A., and Alexander, C. M. (eds.), Handbook of Multicultural Counseling, Thousand Oaks, CA: Sage.
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A. Judd (2009). "Death Highlights Lack of Regulation at 'Psychoeducational' Schools." The Atlanta Journal-Constitution, July 27, 2009. (Source)
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B. N. Kaufman (1995). "Son Rise: The Miracle Continues." Tiburon, CA: H J Kramer.
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H. Lane (1992). "The Mask of Benevolence: Disabling the Deaf Community." New York: Alfred A. Knopf.
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K. Maurice (1994). "Let Me Hear Your Voice: A Family's Triumph over Autism." New York: Ballantine Books.
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J. McNabb (2001). "I Don’t Want To Be A Pioneer I Just Want To Be Me." (Source)
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J. Meyerding, with the collaboration of K. B., P. Clark, and M. Comm (1998). "Why Are We So Unfriendly? Or: Hello, Friend, Now Please Go Away." (Source)
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Muskie (2002). "Institute for the Study of the Neurologically Typical." (Source)
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P. Schwarz (1999). "The Autism Community as a Neurological Diaspora: Some Cultural Parallels and Some Practical Responses." Presentation at Autreat 1999: Telling Our Stories, August 22-25, 1999, Canadaigua NY.
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J. P. Shapiro (1991). "No Pity: People with Disabilities Forging a New Civil Rights Movement." New York: Times Books.
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S. Shelly (2003). "Cousinhood: Who cares and other questions." Presentation at Autreat 2003: Transforming Our World, June 29-July 2, 2003, Brantingham, NY.
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J. Sinclair* (1995). "Cognitive, Communication, and Interpersonal Deficits of Non-Autistic People." Presentation at MAAPing the Future, September 15-16, 1995, Indianapolis, Indiana.
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J. Sinclair* (1998). "Concerns about inclusion from within the disability community, compiled by Jim Sinclair, 1998." (Source)
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J. Sinclair* (2004). "The Nature and Functions of Boundaries, Rules, and Social Conventions." Presentation at Autreat, July 1, 2004, Philadelphia, PA.
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J. Sinclair* (2005). "The History of ANI." (Source)
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J. Smith (n.d. a). "Living With Executive Dysfunction." (Source)
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J. Smith (n.d. b). "You're not Autistic!" (Source)
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J. Smith (2005). "You Have It So Good." (Source)
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D. Spicer (1998). "A Way of Describing Autism." (Source)
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F. Tustin (1990). "The Protective Shell in Children and Adults." London: Karnac Books.
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E. Van der Klift, N. Kunc (1994). "Hell-Bent on Helping: Benevolence, Friendship, and the Politics of Help." In Thousand, J., Villa, R., and Nevin, A. (eds.), The Practical Guide to Empowering Students, Teachers, and Families, Baltimore: Paul Brookes.
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D. Williams (1994). "Somebody Somewhere." New York: Times Books.
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WrongPlanet.net (2008). "What does small talk mean?" (Source)
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Z. Zaks (2006). "Life and Love: Positive Strategies for Autistic Adults." Shawnee Mission, KS: Autism Asperger Publishing Company.
This resource is cited in 8 resources referenced on the site:
- Kristen Gillespie-Lynch & coll. (2017, en), "Whose expertise is it? Evidence for autistic adults as critical autism experts".
- Hanna Bertilsdotter Rosqvist & coll. (2019, en), "Doing it differently: emancipatory autism studies within a neurodiverse academic space".
- Patrick Dwyer (2022, en), "The neurodiversity approach(es): what are they and what do they mean for researchers?".
- Elizabeth Pellicano & coll. (2022, en), "A capabilities approach to understanding and supporting autistic adulthood".
- Alena Valderrama & coll. (2022, en), "For autistic persons by autistic persons: acceptability of a structured peer support service according to key stakeholders".
- Hanna Bertilsdotter Rosqvist & coll. (2023, en), "Being, knowing, and doing: importing theoretical toolboxes for autism studies".
- Will Mandy (2023, en), "The old and the new way of understanding autistic lives: Reflections on the life of Donald Triplett, the first person diagnosed as autistic".
- Stéphanie Fecteau & coll. (2024, en), "'Not a trouble': A mixed-method study of autism-related language preferences by French-Canadian adults from the autism community".
This resource has not (yet) been cited on Bluesky.
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