A capabilities approach to understanding and supporting autistic adulthood

Added on 05/07/2024

Type de contenu

Journal article of the type Scientific literature review ( ; english)

Elizabeth Pellicano , Unsa Fatima , Gabrielle Hall * , Melanie Heyworth * , Wenn Lawson * , Rozanna Lilley , Joanne Mahony , Marc Stears
A capabilities approach to understanding and supporting autistic adulthood published in the journal "Nature reviews psychology" n°1, vol.11, 16 pages , doi: 10.1038/s44159-022-00099-z

*Three co-authors had publicly identified as autistic. [Learn more about this mention]

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Summary/Presentation

There is little comprehensive research into autistic adulthood, and even less into the services and supports that are most likely to foster flourishing adult autistic lives. This limited research is partly because autism is largely conceived as a condition of childhood, but this focus of research has also resulted from the orthodox scientific approach to autism, which conceptualizes autistic experience almost entirely as a series of biologically derived functional deficits. Approaching autism in this way severely limits what is known about this neurodevelopmental difference, how research is conducted and the services and supports available. In this Review, we adopt an alternative research strategy: we apply Martha Nussbaum's capabilities approach, which focuses on ten core elements of a thriving human life, to research on autistic adulthood. In doing so, we identify areas where autistic adults thrive and where they often struggle, and highlight issues to which researchers, clinicians and policymakers should respond. The resulting picture is far more complex than conventional accounts of autism imply. It also reveals the importance of engaging autistic adults directly in the research process to make progress towards genuinely knowing autism and supporting flourishing autistic lives.

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(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.

  • D. Adams, K. Young (2020). "A systematic review of the perceived barriers and facilitators to accessing psychological treatment for mental health problems in individuals on the autism spectrum." Rev. J. Autism Dev. Disord., 49(33873400).

  • C. Allely (2018). "A systematic PRISMA review of individuals with autism spectrum disorder in secure psychiatric care: prevalence, treatment, risk assessment and other clinical considerations". JCP, 8(1). doi:10.1108/jcp-06-2017-0028

  • G. Alvares, K. Bebbington, D. Cleary, K. Evans, E. Glasson, M. Maybery, S. Pillar, M. Uljarević, K. Varcin, J. Wray, A. JO Whitehouse (2020). "The misnomer of 'high functioning autism': Intelligence is an imprecise predictor of functional abilities at diagnosis". Autism, 24(1). doi:10.1177/1362361319852831

  • K. Anderson, C. Sosnowy, A. Kuo, P. Shattuck (2018). "Transition of Individuals With Autism to Adulthood: A Review of Qualitative Studies". Pediatrics, 141(Supplement_4). doi:10.1542/peds.2016-4300i

  • C. Anderson, J. Kiely Law, A. Daniels, C. Rice, D. Mandell, L. Hagopian, P. Law (2012). "Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders". Pediatrics, 130(5). doi:10.1542/peds.2012-0762

  • C. Anderson, C. Butt (2018). "Young Adults on the Autism Spectrum: The Struggle for Appropriate Services". J Autism Dev Disord, 48(11). doi:10.1007/s10803-018-3673-z

  • R. Armstrong (2021). "Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital". TLDR, 26(2). doi:10.1108/tldr-09-2020-0024

  • H. Asperger (1944). "Autism and Asperger Syndrome." In U. Frith (Ed.), 37–92. Cambridge Univ. Press.

  • A. Psychiatric Association (2013). "Diagnostic and Statistical Manual of Mental Disorders".

  • G. Atherton, E. Edisbury, A. Piovesan, L. Cross (2022). "Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life". J Autism Dev Disord, 52(8). doi:10.1007/s10803-021-05235-x

  • G. Atherton, L. Cross (2018). "Seeing More Than Human: Autism and Anthropomorphic Theory of Mind". Front. Psychol., 9. doi:10.3389/fpsyg.2018.00528

  • R. Austin, G. Pisano (2017). "Neurodiversity as a competitive advantage." Harv. Bus. Rev., 95, 96–103.

  • A. Baggs* (2010). "Cultural commentary: up in the clouds and down in the valley: my richness and yours." Disabil. Stud. Q., 30(1052).

  • S. Baldwin, D. Costley, A. Warren (2014). "Employment Activities and Experiences of Adults with High-Functioning Autism and Asperger's Disorder". J Autism Dev Disord, 44(10). doi:10.1007/s10803-014-2112-z

  • S. Bargiela, R. Steward*, W. Mandy (2016). "The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype". J Autism Dev Disord, 46(10). doi:10.1007/s10803-016-2872-8

  • J. Penwell Barnett, E. Maticka‐Tyndale (2015). "Qualitative Exploration of Sexual Experiences Among Adults on the Autism Spectrum: Implications for Sex Education". Perspect Sexual Reproductive, 47(4). doi:10.1363/47e5715

  • S. Baron-Cohen (2019). "The concept of neurodiversity is dividing the autism community." Scientific American (Source)

  • S. Baron-Cohen (1995). "Mindblindness: An essay on autism and theory of mind". The MIT Press.

  • J. Bascom* (2012). "Loud Hands: Autistic People, Speaking." In Autistic Self Advocacy Network (Ed.), 177–182. Autistic Press.

  • T. Benevides, S. Shore, K. Palmer, P. Duncan, A. Plank, M. Andresen, R. Caplan*, B. Cook, D. Gassner*, B. Lory Hector*, L. Morgan, L. Nebeker, Y. Purkis, B. Rankowski, K. Wittig, S. Coughlin (2020). "Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project". Autism, 24(4). doi:10.1177/1362361320908410

  • D. Biklen (2020). "Presuming competence, belonging, and the promise of inclusion: The US experience". Prospects, 49(3-4). doi:10.1007/s11125-020-09510-0

  • G. Bird, R. Cook (2013). "Mixed emotions: the contribution of alexithymia to the emotional symptoms of autism". Transl Psychiatry, 3(7). doi:10.1038/tp.2013.61

  • L. Bishop-Fitzpatrick, E. Rubenstein (2019). "The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability". Research in Autism Spectrum Disorders, 63. doi:10.1016/j.rasd.2019.01.001

  • L. Bishop‐Fitzpatrick, A. Movaghar, J. Greenberg, D. Page, L. DaWalt, M. Brilliant, M. Mailick (2018). "Using machine learning to identify patterns of lifetime health problems in decedents with autism spectrum disorder". Autism Research, 11(8). doi:10.1002/aur.1960

  • L. Bishop‐Fitzpatrick, L. Smith DaWalt, J. Greenberg, M. Mailick (2017). "Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder". Autism Research, 10(5). doi:10.1002/aur.1753

  • M. Black, S. Mahdi, B. Milbourn, C. Thompson, A. D'Angelo, E. Ström, M. Falkmer, T. Falkmer, M. Lerner, A. Halladay, A. Gerber, C. Esposito, S. Girdler, S. Bölte (2019). "Perspectives of key stakeholders on employment of autistic adults across the united states, australia, and sweden". Autism Research, 12(11). doi:10.1002/aur.2167

  • M. Botha* (2021). "Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production". Front. Psychol., 12. doi:10.3389/fpsyg.2021.727542

  • L. Bradley, R. Shaw, S. Baron-Cohen, S. Cassidy (2021). "Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health". Autism in Adulthood, 3(4). doi:10.1089/aut.2020.0071

  • P. Bradshaw, E. Pellicano, M. van Driel, A. Urbanowicz (2019). "How Can We Support the Healthcare Needs of Autistic Adults Without Intellectual Disability?". Curr Dev Disord Rep, 6(2). doi:10.1007/s40474-019-00159-9

  • J. Brede, A. Remington, L. Kenny, K. Warren, E. Pellicano (2017). "Excluded from school: Autistic students' experiences of school exclusion and subsequent re-integration into school". Autism & Developmental Language Impairments, 2. doi:10.1177/2396941517737511

  • U. Bronfenbrenner (1994). "International Encyclopedia of Education Vol. 3 2nd ed." In T. Husen & N. Postlethwaite (Eds.), 1643–1647. Elsevier.

  • M. Brosnan, E. Chapman, C. Ashwin (2014). "Adolescents with Autism Spectrum Disorder Show a Circumspect Reasoning Bias Rather than 'Jumping-to-Conclusions'". J Autism Dev Disord, 44(3). doi:10.1007/s10803-013-1897-5

  • M. Brosnan, M. Lewton, C. Ashwin (2016). "Reasoning on the Autism Spectrum: A Dual Process Theory Account". J Autism Dev Disord, 46(6). doi:10.1007/s10803-016-2742-4

  • M. Brosnan, J. Gavin (2021). "The Impact of Stigma, Autism Label and Wording on the Perceived Desirability of the Online Dating Profiles of Men on the Autism Spectrum". J Autism Dev Disord, 51(11). doi:10.1007/s10803-020-04830-8

  • S. Brown-Lavoie, M. Viecili, J. Weiss (2014). "Sexual Knowledge and Victimization in Adults with Autism Spectrum Disorders". J Autism Dev Disord, 44(9). doi:10.1007/s10803-014-2093-y

  • T. Brugha, S. McManus, J. Bankart, F. Scott, S. Purdon, J. Smith, P. Bebbington, R. Jenkins, H. Meltzer (2011). "Epidemiology of Autism Spectrum Disorders in Adults in the Community in England". Arch Gen Psychiatry, 68(5). doi:10.1001/archgenpsychiatry.2011.38

  • S. Bury, D. Hedley, M. Uljarević, E. Gal (2020). "The autism advantage at work: A critical and systematic review of current evidence". Research in Developmental Disabilities, 105. doi:10.1016/j.ridd.2020.103750

  • H. Bush (2019). "Dimensions of Sexuality Among Young Women, With and Without Autism, With Predominantly Sexual Minority Identities". Sex Disabil, 37(2). doi:10.1007/s11195-018-9532-1

  • E. Sandra Byers, S. Nichols (2014). "Sexual Satisfaction of High-Functioning Adults with Autism Spectrum Disorder". Sex Disabil, 32(3). doi:10.1007/s11195-014-9351-y

  • E. Cage, J. Howes (2020). "Dropping out and moving on: A qualitative study of autistic people's experiences of university". Autism, 24(7). doi:10.1177/1362361320918750

  • E. Cage, Z. Troxell-Whitman (2019). "Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults". J Autism Dev Disord, 49(5). doi:10.1007/s10803-018-03878-x

  • R. Ying Cai, A. Richdale (2016). "Educational Experiences and Needs of Higher Education Students with Autism Spectrum Disorder". J Autism Dev Disord, 46(1). doi:10.1007/s10803-015-2535-1

  • L. Cameron, R. Borland, B. Tonge, K. Gray (2022). "Community participation in adults with autism: A systematic review". Research Intellect Disabil, 35(2). doi:10.1111/jar.12970

  • L. Camm-Crosbie, L. Bradley, R. Shaw, S. Baron-Cohen, S. Cassidy (2019). "'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality". Autism, 23(6). doi:10.1177/1362361318816053

  • G. Carlisle (2015). "The Social Skills and Attachment to Dogs of Children with Autism Spectrum Disorder". J Autism Dev Disord, 45(5). doi:10.1007/s10803-014-2267-7

  • S. Cassidy, P. Bradley, J. Robinson, C. Allison, M. McHugh, S. Baron-Cohen (2014). "Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study". The Lancet Psychiatry, 1(2). doi:10.1016/s2215-0366(14)70248-2

  • S. Cassidy, L. Bradley, E. Bowen, S. Wigham, J. Rodgers (2018). "Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review". Autism Research, 11(5). doi:10.1002/aur.1922

  • P. Cervantes, M. Matheis, J. Estabillo, D. Seag, K. Nelson, R. Peth-Pierce, K. Eaton Hoagwood, S. McCue Horwitz (2021). "Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research". J Autism Dev Disord, 51(8). doi:10.1007/s10803-020-04746-3

  • W. Chan, L. Smith, J. Hong, J. Greenberg, J. Lounds Taylor, M. Mailick (2018). "Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability". Autism, 22(7). doi:10.1177/1362361317703760

  • D. Yan-Ting Chee, H. Chung-yeung Lee, M. Falkmer, T. Barnett, O. Falkmer, J. Siljehav, T. Falkmer (2015). "Viewpoints on driving of individuals with and without autism spectrum disorder". Developmental Neurorehabilitation, 18(1). doi:10.3109/17518423.2014.964377

  • C. Chevallier, G. Kohls, V. Troiani, E. Brodkin, R. Schultz (2012). "The social motivation theory of autism". Trends in Cognitive Sciences, 16(4). doi:10.1016/j.tics.2012.02.007

  • A. Churchard, M. Ryder, A. Greenhill, W. Mandy (2019). "The prevalence of autistic traits in a homeless population". Autism, 23(3). doi:10.1177/1362361318768484

  • V. Courchesne, A. Meilleur, M. Poulin-Lord, M. Dawson*, I. Soulières (2015). "Autistic children at risk of being underestimated: school-based pilot study of a strength-informed assessment". Molecular Autism, 6(1). doi:10.1186/s13229-015-0006-3

  • L. Crane, R. Batty, H. Adeyinka, L. Goddard, L. Henry, E. Hill (2018). "Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals". J Autism Dev Disord, 48(11). doi:10.1007/s10803-018-3639-1

  • L. Crane, I. Davidson, R. Prosser, E. Pellicano (2019). "Understanding psychiatrists' knowledge, attitudes and experiences in identifying and supporting their patients on the autism spectrum: online survey". BJPsych open, 5(3). doi:10.1192/bjo.2019.12

  • L. Cresswell, R. Hinch, E. Cage (2019). "The experiences of peer relationships amongst autistic adolescents: A systematic review of the qualitative evidence". Research in Autism Spectrum Disorders, 61. doi:10.1016/j.rasd.2019.01.003

  • M. Csikszentmihalyi (1990). "Flow: The Psychology of Optimal Experience." Harper and Row.

  • A. Curry, K. Metzger, M. Carey, E. Sartin, P. Huang, B. Yerys (2021). "Comparison of Motor Vehicle Crashes, Traffic Violations, and License Suspensions Between Autistic and Non-Autistic Adolescent and Young Adult Drivers". Journal of the American Academy of Child & Adolescent Psychiatry, 60(7). doi:10.1016/j.jaac.2021.01.001

  • A. Curry, B. Yerys, P. Huang, K. Metzger (2018). "Longitudinal study of driver licensing rates among adolescents and young adults with autism spectrum disorder". Autism, 22(4). doi:10.1177/1362361317699586

  • C. Damiano, J. Aloi, M. Treadway, J. Bodfish, G. Dichter (2012). "Adults with autism spectrum disorders exhibit decreased sensitivity to reward parameters when making effort-based decisions". J Neurodevelop Disord, 4(1). doi:10.1186/1866-1955-4-13

  • J. Davidson, M. Smith (2012). "Emotions Matter: A Relations Approach to Emotions." In D. Spencer, K. Walby, A. Hunt (Eds.), 260–280. Univ. of Toronto.

  • R. Davis, C. Crompton (2021). "What Do New Findings About Social Interaction in Autistic Adults Mean for Neurodevelopmental Research?". Perspect Psychol Sci, 16(3). doi:10.1177/1745691620958010

  • A. de Leeuw, F. Happé, R. Hoekstra (2020). "A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe". Autism Research, 13(7). doi:10.1002/aur.2276

  • E. de Schipper, S. Mahdi, P. de Vries, M. Granlund, M. Holtmann, S. Karande, O. Almodayfer, C. Shulman, B. Tonge, V. V.C.N. Wong, L. Zwaigenbaum, S. Bölte (2016). "Functioning and disability in autism spectrum disorder: A worldwide survey of experts". Autism Research, 9(9). doi:10.1002/aur.1592

  • D. Deka, C. Feeley, A. Lubin (2016). "Travel Patterns, Needs, and Barriers of Adults with Autism Spectrum Disorder". Transportation Research Record, 2542(1). doi:10.3141/2542-02

  • M. Dekker* (1999). "On our own terms: emerging autistic culture." AUTSCAPE (Source)

  • E. Demetriou, A. Lampit, D. Quintana, S. Naismith, Y. Song, J. Pye, I. Hickie, A. Guastella (2018). "Autism spectrum disorders: a meta-analysis of executive function". Mol Psychiatry, 23(5). doi:10.1038/mp.2017.75

  • J. Dewinter, H. De Graaf, S. Begeer (2017). "Sexual Orientation, Gender Identity, and Romantic Relationships in Adolescents and Adults with Autism Spectrum Disorder". J Autism Dev Disord, 47(9). doi:10.1007/s10803-017-3199-9

  • C. Dickter, J. Burk, J. Zeman, S. Taylor (2020). "Implicit and Explicit Attitudes Toward Autistic Adults". Autism in Adulthood, 2(2). doi:10.1089/aut.2019.0023

  • K. Dunn, E. Rydzewska, C. MacIntyre, J. Rintoul, S. Cooper (2019). "The prevalence and general health status of people with intellectual disabilities and autism co‐occurring together: a total population study". J intellect Disabil Res, 63(4). doi:10.1111/jir.12573

  • M. Goldberg Edelson (2006). "Are the Majority of Children With Autism Mentally Retarded?". Focus Autism Other Dev Disabl, 21(2). doi:10.1177/10883576060210020301

  • M. Elmose (2020). "Understanding loneliness and social relationships in autism: The reflections of autistic adults". Nordic Psychology, 72(1). doi:10.1080/19012276.2019.1625068

  • E. B. Emerson, I. Davies, K. Spencer, S. Malam (2005). "Adults with Learning Difficulties in England 2003/4." National Statistics.

  • R. Evans (2011). "The Life We Choose: Shaping Autism Services in Wales." National Autistic Society.

  • M. Fardella, P. Burnham Riosa, J. Weiss (2018). "A qualitative investigation of risk and protective factors for interpersonal violence in adults on the autism spectrum". Disability & Society, 33(9). doi:10.1080/09687599.2018.1498320

  • D. Fein, M. Barton, I. Eigsti, E. Kelley, L. Naigles, R. Schultz, M. Stevens, M. Helt, A. Orinstein, M. Rosenthal, E. Troyb, K. Tyson (2013). "Optimal outcome in individuals with a history of autism". Child Psychology Psychiatry, 54(2). doi:10.1111/jcpp.12037

  • L. Fiene, C. Brownlow (2015). "Investigating interoception and body awareness in adults with and without autism spectrum disorder". Autism Research, 8(6). doi:10.1002/aur.1486

  • D. Z. Fleischer, F. Zames (2001). "The Disability Rights Movement: from Charity to Confrontation." Temple Univ. Press.

  • R. Flower, D. Hedley, J. Spoor, C. Dissanayake (2019). "An alternative pathway to employment for autistic job-seekers: a case study of a training and assessment program targeted to autistic job candidates". Journal of Vocational Education & Training, 71(3). doi:10.1080/13636820.2019.1636846

  • S. Forster, A. Pearson* (2020). "'Bullies tend to be obvious': autistic adults perceptions of friendship and the concept of 'mate crime'.". Disability & Society, 35(7). doi:10.1080/09687599.2019.1680347

  • U. Frith, F. Happé (1999). "Theory of Mind and Self‐Consciousness: What Is It Like to Be Autistic?". Mind & Language, 14(1). doi:10.1111/1468-0017.00100

  • E. Garcia (2021). "We're Not Broken: Changing the Autism Conversation." Houghton Mifflin Harcourt.

  • K. Gaudion, A. Hall, J. Myerson, L. Pellicano (2015). "A designer's approach: how can autistic adults with learning disabilities be involved in the design process?". CoDesign, 11(1). doi:10.1080/15710882.2014.997829

  • K. Gaudion, L. Pellicano (2016). "The Triad of Strengths: A Strengths-Based Approach for Designing with Autistic Adults with Additional Learning Disabilities". Lecture Notes in Computer Science. doi:10.1007/978-3-319-40409-7_26

  • H. Geurts, M. Jansen (2012). "A retrospective chart study: The pathway to a diagnosis for adults referred for ASD assessment". Autism, 16(3). doi:10.1177/1362361311421775

  • V. Gibbs, J. Hudson, Y. In (Jane) Hwang, S. Arnold, J. Trollor, E. Pellicano (2021). "Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates". Research in Autism Spectrum Disorders, 89. doi:10.1016/j.rasd.2021.101866

  • K. Gillespie-Lynch, J. Bisson, S. Saade, R. Obeid, B. Kofner, A. Johnson Harrison, N. Daou, N. Tricarico, J. Delos Santos, W. Pinkava, A. Jordan (2022). "If you want to develop an effective autism training, ask autistic students to help you". Autism, 26(5). doi:10.1177/13623613211041006

  • D. Gilmore, L. Harris, A. Longo, B. Hand (2021). "Health status of Medicare-enrolled autistic older adults with and without co-occurring intellectual disability: An analysis of inpatient and institutional outpatient medical claims". Autism, 25(1). doi:10.1177/1362361320955109

  • L. Gilmour, V. Smith, M. Schalomon (2014). "Sexuality and ASD: Current State of Research". Comprehensive Guide to Autism. doi:10.1007/978-1-4614-4788-7_27

  • C. Goodall (2018). "'I felt closed in and like I couldn't breathe': A qualitative study exploring the mainstream educational experiences of autistic young people". Autism & Developmental Language Impairments, 3. doi:10.1177/2396941518804407

  • C. Gosling, S. Moutier (2018). "Brief Report: Risk-Aversion and Rationality in Autism Spectrum Disorders". J Autism Dev Disord, 48(10). doi:10.1007/s10803-018-3616-8

  • S. Griffiths, C. Allison, R. Kenny, R. Holt, P. Smith, S. Baron‐Cohen (2019). "The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults". Autism Research, 12(10). doi:10.1002/aur.2162

  • R. Grove, R. Hoekstra, M. Wierda, S. Begeer (2018). "Special interests and subjective wellbeing in autistic adults". Autism Research, 11(5). doi:10.1002/aur.1931

  • B. Hand, A. Angell, L. Harris, L. Arnstein Carpenter (2020). "Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults". Autism, 24(3). doi:10.1177/1362361319890793

  • B. Hand, T. Benevides, H. Carretta (2020). "Suicidal Ideation and Self-inflicted Injury in Medicare Enrolled Autistic Adults With and Without Co-occurring Intellectual Disability". J Autism Dev Disord, 50(10). doi:10.1007/s10803-019-04345-x

  • F. Happé, P. Vital (2009). "What aspects of autism predispose to talent?". Phil. Trans. R. Soc. B, 364(1522). doi:10.1098/rstb.2008.0332

  • J. Hayes, T. Ford, H. Rafeeque, G. Russell (2018). "Clinical practice guidelines for diagnosis of autism spectrum disorder in adults and children in the UK: a narrative review". BMC Psychiatry, 18(1). doi:10.1186/s12888-018-1800-1

  • S. Hayward, K. McVilly, M. Stokes (2019). "'I Would Love to Just Be Myself': What Autistic Women Want at Work". Autism in Adulthood, 1(4). doi:10.1089/aut.2019.0020

  • D. Hedley, M. Uljarević, M. Wilmot, A. Richdale, C. Dissanayake (2018). "Understanding depression and thoughts of self-harm in autism: A potential mechanism involving loneliness". Research in Autism Spectrum Disorders, 46. doi:10.1016/j.rasd.2017.11.003

  • N. Henninger, J. Lounds Taylor (2013). "Outcomes in adults with autism spectrum disorders: a historical perspective". Autism, 17(1). doi:10.1177/1362361312441266

  • A. Hickey, J. Crabtree, J. Stott (2018). "'Suddenly the first fifty years of my life made sense': Experiences of older people with autism". Autism, 22(3). doi:10.1177/1362361316680914

  • T. Hirvikoski, E. Mittendorfer-Rutz, M. Boman, H. Larsson, P. Lichtenstein, S. Bölte (2016). "Premature mortality in autism spectrum disorder". Br J Psychiatry, 208(3). doi:10.1192/bjp.bp.114.160192

  • M. Hollocks, J. Wei Lerh, I. Magiati, R. Meiser-Stedman, T. Brugha (2019). "Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta-analysis". Psychol. Med., 49(4). doi:10.1017/s0033291718002283

  • C. Holyfield, K. Drager, J. Kremkow, J. Light (2017). "Systematic review of AAC intervention research for adolescents and adults with autism spectrum disorder". Augmentative and Alternative Communication, 33(4). doi:10.1080/07434618.2017.1370495

  • P. Howlin (2021). "Adults with Autism: Changes in Understanding Since DSM-111". J Autism Dev Disord, 51(12). doi:10.1007/s10803-020-04847-z

  • C. Hudson, L. Hall, K. Harkness (2019). "Prevalence of Depressive Disorders in Individuals with Autism Spectrum Disorder: a Meta-Analysis". J Abnorm Child Psychol, 47(1). doi:10.1007/s10802-018-0402-1

  • R. Hume, H. Burgess (2021). "'I'm Human After All': Autism, Trauma, and Affective Empathy". Autism in Adulthood, 3(3). doi:10.1089/aut.2020.0013

  • Y. In (Jane) Hwang, P. Srasuebkul, K. Foley, S. Arnold, J. Trollor (2019). "Mortality and cause of death of Australians on the autism spectrum". Autism Research, 12(5). doi:10.1002/aur.2086

  • Y. In (Jane) Hwang, K. Foley, J. Trollor (2017). "Aging well on the autism spectrum: the perspectives of autistic adults and carers". Int. Psychogeriatr., 29(12). doi:10.1017/s1041610217001521

  • S. Jager-Hyman, B. Maddox, S. Crabbe, D. Mandell (2020). "Mental Health Clinicians' Screening and Intervention Practices to Reduce Suicide Risk in Autistic Adolescents and Adults". J Autism Dev Disord, 50(10). doi:10.1007/s10803-020-04441-3

  • V. K. Jaswal, N. Akhtar (2018). "Being vs. appearing socially uninterested: challenging assumptions about social motivation in autism." Behav. Brain Sci., 42, 1–73.

  • J. Jivraj, L. Sacrey, A. Newton, D. Nicholas, L. Zwaigenbaum (2014). "Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review". Autism, 18(7). doi:10.1177/1362361314539858

  • E. Jones, M. Hanley, D. Riby (2020). "Distraction, distress and diversity: Exploring the impact of sensory processing differences on learning and school life for pupils with autism spectrum disorders". Research in Autism Spectrum Disorders, 72. doi:10.1016/j.rasd.2020.101515

  • C. Jose, P. George-Zwicker, L. Tardif, A. Bouma, D. Pugsley, L. Pugsley, M. Bélanger, J. Gaudet, M. Robichaud (2020). "'We are the stakeholders with the most at stake': scientific and autism community co-researchers reflect on their collaborative experience in the CONNECT project". Res Involv Engagem, 6(1). doi:10.1186/s40900-020-00233-2

  • L. Kanner (1943). "Autistic disturbances of affective contact." Nerv. Child, 2, 217–250.

  • S. Kapp* (2020). "Autistic Community and the Neurodiversity Movement". Springer.

  • A. Kasirer, N. Mashal (2014). "Verbal creativity in autism: comprehension and generation of metaphoric language in high-functioning autism spectrum disorder and typical development". Front. Hum. Neurosci., 8. doi:10.3389/fnhum.2014.00615

  • C. Kassee, S. Babinski, A. Tint, Y. Lunsky, H. Brown*, S. Ameis, P. Szatmari, M. Lai, G. Einstein (2020). "Physical health of autistic girls and women: a scoping review". Molecular Autism, 11(1). doi:10.1186/s13229-020-00380-z

  • H. Keeley, M. Redley, A. Holland, I. Clare (2008). "Participation in the 2005 general election by adults with intellectual disabilities". J intellect Disabil Res, 52(3). doi:10.1111/j.1365-2788.2007.00991.x

  • L. Kenny, S. Cribb, E. Pellicano (2019). "Childhood Executive Function Predicts Later Autistic Features and Adaptive Behavior in Young Autistic People: a 12-Year Prospective Study". J Abnorm Child Psychol, 47(6). doi:10.1007/s10802-018-0493-8

  • M. Kersten, K. Coxon, H. Lee, N. Wilson (2020). "Independent Community Mobility and Driving Experiences of Adults on the Autism Spectrum: A Scoping Review". The American Journal of Occupational Therapy, 74(5). doi:10.5014/ajot.2020.040311

  • A. Kirby, A. Bakian, Y. Zhang, D. Bilder, B. Keeshin, H. Coon (2019). "A 20‐year study of suicide death in a statewide autism population". Autism Research, 12(4). doi:10.1002/aur.2076

  • J. Kirchner, W. Ruch, I. Dziobek (2016). "Brief Report: Character Strengths in Adults with Autism Spectrum Disorder Without Intellectual Impairment". J Autism Dev Disord, 46(10). doi:10.1007/s10803-016-2865-7

  • J. F. Kras (2010). "The 'ransom notes' affair: when the neurodiversity movement came of age." Disabil. Stud. Q., 30(1065).

  • S. Jay Kuder, A. Accardo (2018). "What Works for College Students with Autism Spectrum Disorder". J Autism Dev Disord, 48(3). doi:10.1007/s10803-017-3434-4

  • R. Kuzminski, J. Netto, J. Wilson, T. Falkmer, A. Chamberlain, M. Falkmer (2019). "Linking knowledge and attitudes: Determining neurotypical knowledge about and attitudes towards autism". PLoS ONE, 14(7). doi:10.1371/journal.pone.0220197

  • K. Kõlves, C. Fitzgerald, M. Nordentoft, S. James Wood, A. Erlangsen (2021). "Assessment of Suicidal Behaviors Among Individuals With Autism Spectrum Disorder in Denmark". JAMA Netw Open, 4(1). doi:10.1001/jamanetworkopen.2020.33565

  • M. Lai, C. Kassee, R. Besney, S. Bonato, L. Hull, W. Mandy, P. Szatmari, S. Ameis (2019). "Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis". The Lancet Psychiatry, 6(10). doi:10.1016/s2215-0366(19)30289-5

  • G. Yu Hin Lam, E. Holden, M. Fitzpatrick, L. Raffaele Mendez, K. Berkman (2020). "'Different but connected': Participatory action research using Photovoice to explore well-being in autistic young adults". Autism, 24(5). doi:10.1177/1362361319898961

  • G. Yu Hin Lam, S. Sabnis, M. Migueliz Valcarlos, J. Wolgemuth (2021). "A Critical Review of Academic Literature Constructing Well-Being in Autistic Adults". Autism in Adulthood, 3(1). doi:10.1089/aut.2020.0053

  • W. Lawson* (2001). "Understanding and Working with the Spectrum of Autism: An Insider's View." Jessica Kingsley.

  • L. Foran Lewis (2016). "Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults". Archives of Psychiatric Nursing, 30(5). doi:10.1016/j.apnu.2016.03.009

  • L. Foran Lewis (2017). "A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults". J Autism Dev Disord, 47(8). doi:10.1007/s10803-017-3168-3

  • D. Li, L. Larsen, Y. Yang, L. Wang, Y. Zhai, W. Sullivan (2019). "Exposure to nature for children with autism spectrum disorder: Benefits, caveats, and barriers". Health & Place, 55. doi:10.1016/j.healthplace.2018.11.005

  • S. Lindsay, V. Osten, M. Rezai, S. Bui (2021). "Disclosure and workplace accommodations for people with autism: a systematic review". Disability and Rehabilitation, 43(5). doi:10.1080/09638288.2019.1635658

  • L. Anne Livingston, P. Shah, F. Happé (2019). "Compensatory strategies below the behavioural surface in autism: a qualitative study". The Lancet Psychiatry, 6(9). doi:10.1016/s2215-0366(19)30224-x

  • C. Lord, T. Brugha, T. Charman, J. Cusack*, G. Dumas, T. Frazier, E. Jones, R. Jones, A. Pickles, M. State, J. Lounds Taylor, J. Veenstra-VanderWeele (2020). "Autism spectrum disorder". Nat Rev Dis Primers, 6(1). doi:10.1038/s41572-019-0138-4

  • C. Lord & coll. (2021). "The Lancet Commission on the future of care and clinical research in autism." Lancet, 399(10321).

  • A. Lubin, C. Feeley (2016). "Transportation Issues of Adults on the Autism Spectrum". Transportation Research Record, 2542(1). doi:10.3141/2542-01

  • A. MacLeod, J. Allan, A. Lewis, C. Robertson (2018). "'Here I come again': the cost of success for higher education students diagnosed with autism". International Journal of Inclusive Education, 22(6). doi:10.1080/13603116.2017.1396502

  • C. Makin, V. Hill, E. Pellicano (2017). "The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study". Autism & Developmental Language Impairments, 2. doi:10.1177/2396941516684834

  • D. Mandell (2017). "A house is not a home: The great residential divide in autism care". Autism, 21(7). doi:10.1177/1362361317722101

  • D. Mandell, C. Walrath, B. Manteuffel, G. Sgro, J. Pinto-Martin (2005). "The prevalence and correlates of abuse among children with autism served in comprehensive community-based mental health settings". Child Abuse & Neglect, 29(12). doi:10.1016/j.chiabu.2005.06.006

  • D. Mason, B. Ingham, A. Urbanowicz, C. Michael, H. Birtles, M. Woodbury-Smith, T. Brown, I. James, C. Scarlett, C. Nicolaidis, J. Parr (2019). "A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults". J Autism Dev Disord, 49(8). doi:10.1007/s10803-019-04049-2

  • M. Mazurek (2014). "Loneliness, friendship, and well-being in adults with autism spectrum disorders". Autism, 18(3). doi:10.1177/1362361312474121

  • C. Maïano, C. Normand, M. Salvas, G. Moullec, A. Aimé (2016). "Prevalence of School Bullying Among Youth with Autism Spectrum Disorders: A Systematic Review and Meta‐Analysis". Autism Research, 9(6). doi:10.1002/aur.1568

  • H. McConachie, C. Wilson, D. Mason, D. Garland, J. Parr, A. Rattazzi, J. Rodgers, S. Skevington, M. Uljarevic, I. Magiati (2020). "What Is Important in Measuring Quality of Life? Reflections by Autistic Adults in Four Countries". Autism in Adulthood, 2(1). doi:10.1089/aut.2019.0008

  • C. Mercier, L. Mottron, S. Belleville (2000). "A Psychosocial Study on Restricted Interests in High Functioning Persons with Pervasive Developmental Disorders". Autism, 4(4). doi:10.1177/1362361300004004006

  • M. Micai, A. Ciaramella, T. Salvitti, F. Fulceri, L. Maria Fatta, L. Poustka, R. Diehm, G. Iskrov, R. Stefanov, Q. Guillon, B. Rogé, A. Staines, M. Rose Sweeney, A. Martin Boilson, T. Leósdóttir, E. Saemundsen, I. Moilanen, H. Ebeling, A. Yliherva, M. Gissler, T. Parviainen, P. Tani, R. Kawa, A. Vicente, C. Rasga, M. Budişteanu, I. Dale, C. Povey, N. Flores, C. Jenaro, M. Luisa Monroy, P. García Primo, T. Charman, S. Cramer, C. Kloster Warberg, R. Canal-Bedia, M. Posada, M. Luisa Scattoni, D. Schendel (2021). "Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project". Front. Psychiatry, 12. doi:10.3389/fpsyt.2021.614102

  • P. Mitchell, E. Sheppard, S. Cassidy (2021). "Autism and the double empathy problem: Implications for development and mental health". British J of Dev Psycho, 39(1). doi:10.1111/bjdp.12350

  • R. Moseley*, T. Druce, J. Turner-Cobb (2020). "'When my autism broke': A qualitative study spotlighting autistic voices on menopause". Autism, 24(6). doi:10.1177/1362361319901184

  • L. Mottron, M. Dawson*, I. Soulières, B. Hubert, J. Burack (2006). "Enhanced Perceptual Functioning in Autism: An Update, and Eight Principles of Autistic Perception". J Autism Dev Disord, 36(1). doi:10.1007/s10803-005-0040-7

  • National Council on Severe Autism (2021). "NCSA position statement on diagnostic labels." NCSA (Source)

  • National Academies of Sciences, Engineering, and Medicine (2020). "Social Isolation and Loneliness in Older Adults: Opportunities for the Health Care System." National Academies Press.

  • A. Ne'eman* (2016). "Safety versus autonomy: advocates for autistic children split over tracking devices." Vox (Source)

  • Autistic Self Advocacy Network (2011). "ASAN Toolkit on Improving Home and Community-Based Services (HCBS)" (Source)

  • S. Neumeier, L. Brown* (2020). "Torture in the Name of Treatment: The Mission to Stop the Shocks in the Age of Deinstitutionalization". Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0_14

  • A. Nuske, F. Rillotta, M. Bellon, A. Richdale (2019). "Transition to higher education for students with autism: A systematic literature review.". Journal of Diversity in Higher Education, 12(3). doi:10.1037/dhe0000108

  • M. Nussbaum (2000). "Women and Human Development".

  • M. Nussbaum (2011). "Creating Capabilities".

  • M. Oliver (1990). "The Politics of Disablement". Springer

  • G. Orsmond, M. Wyngaarden Krauss, M. Mailick Seltzer (2004). "Peer Relationships and Social and Recreational Activities Among Adolescents and Adults with Autism". J Autism Dev Disord, 34(3). doi:10.1023/b:jadd.0000029547.96610.df

  • T. Oswald, B. Winder-Patel, S. Ruder, G. Xing, A. Stahmer, M. Solomon (2018). "A Pilot Randomized Controlled Trial of the ACCESS Program: A Group Intervention to Improve Social, Adaptive Functioning, Stress Coping, and Self-Determination Outcomes in Young Adults with Autism Spectrum Disorder". J Autism Dev Disord, 48(5). doi:10.1007/s10803-017-3421-9

  • M. O’Haire (2013). "Animal-Assisted Intervention for Autism Spectrum Disorder: A Systematic Literature Review". J Autism Dev Disord, 43(7). doi:10.1007/s10803-012-1707-5

  • P. Paode (2020). "Housing for Adults with Autism and/or Intellectual and Developmental Disabilities: Shortcomings of Federal Programs." Daniel Jordan Fiddle Foundation.

  • A. Pearson*, K. Rose* (2021). "A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice". Autism in Adulthood, 3(1). doi:10.1089/aut.2020.0043

  • L. Pecora, G. Hancock, G. Mesibov, M. Stokes (2019). "Characterising the Sexuality and Sexual Experiences of Autistic Females". J Autism Dev Disord, 49(12). doi:10.1007/s10803-019-04204-9

  • M. Pelton, H. Crawford, A. Robertson, J. Rodgers, S. Baron-Cohen, S. Cassidy (2020). "Understanding Suicide Risk in Autistic Adults: Comparing the Interpersonal Theory of Suicide in Autistic and Non-autistic Samples". J Autism Dev Disord, 50(10). doi:10.1007/s10803-020-04393-8

  • N. Petrina, M. Carter, J. Stephenson (2014). "The nature of friendship in children with autism spectrum disorders: A systematic review". Research in Autism Spectrum Disorders, 8(2). doi:10.1016/j.rasd.2013.10.016

  • I. Proff, G. Williams*, L. Quadt, S. Garfinkel (2021). "Sensory processing in autism across exteroceptive and interoceptive domains.". Psychology & Neuroscience, 15(2). doi:10.1037/pne0000262

  • A. Prothmann, C. Ettrich, S. Prothmann (2009). "Preference for, and Responsiveness to, People, Dogs and Objects in Children with Autism". Anthrozoös, 22(2). doi:10.2752/175303709x434185

  • J. Rava, P. Shattuck, J. Rast, A. Roux (2017). "The Prevalence and Correlates of Involvement in the Criminal Justice System Among Youth on the Autism Spectrum". J Autism Dev Disord, 47(2). doi:10.1007/s10803-016-2958-3

  • J. Raz (1986). "The Morality of Freedom." Oxford Univ. Press.

  • F. DiGennaro Reed, J. Hirst, S. Hyman (2012). "Assessment and treatment of stereotypic behavior in children with autism and other developmental disabilities: A thirty year review". Research in Autism Spectrum Disorders, 6(1). doi:10.1016/j.rasd.2011.07.003

  • K. Reuben, C. Stanzione, J. Singleton (2021). "Interpersonal Trauma and Posttraumatic Stress in Autistic Adults". Autism in Adulthood, 3(3). doi:10.1089/aut.2020.0073

  • I. Ringbom, J. Suvisaari, A. Kääriälä, A. Sourander, M. Gissler, T. Ristikari, D. Gyllenberg (2022). "Psychiatric disorders diagnosed in adolescence and subsequent long-term exclusion from education, employment or training: longitudinal national birth cohort study". Br J Psychiatry, 220(3). doi:10.1192/bjp.2021.146

  • S. M. Robertson (2010). "Neurodiversity, quality of life, and autistic adults: shifting research and professional focuses onto real-life challenges." Disabil. Stud. Q., 30(1069).

  • K. Robertson, B. Chamberlain, C. Kasari (2003). "General Education Teachers' Relationships with Included Students with Autism". Journal of Autism and Developmental Disorders, 33(2). doi:10.1023/a:1022979108096

  • A. Robertson, D. Simmons (2015). "The Sensory Experiences of Adults with Autism Spectrum Disorder: A Qualitative Analysis". Perception, 44(5). doi:10.1068/p7833

  • A. Roestorf, D. Bowler, M. Deserno, P. Howlin, L. Klinger, H. McConachie, J. Parr, P. Powell, B. Van Heijst, H. Geurts (2019). "'Older Adults with ASD: The Consequences of Aging.' Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017". Research in Autism Spectrum Disorders, 63. doi:10.1016/j.rasd.2018.08.007

  • E. Rubenstein, L. Bishop‐Fitzpatrick (2019). "A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder". Autism Research, 12(1). doi:10.1002/aur.2010

  • F. Rumball, F. Happé, N. Grey (2020). "Experience of Trauma and PTSD Symptoms in Autistic Adults: Risk of PTSD Development Following DSM‐5 and Non‐DSM‐5 Traumatic Life Events". Autism Research, 13(12). doi:10.1002/aur.2306

  • E. Rydzewska, K. Dunn, S. Cooper (2021). "Umbrella systematic review of systematic reviews and meta-analyses on comorbid physical conditions in people with autism spectrum disorder". Br J Psychiatry, 218(1). doi:10.1192/bjp.2020.167

  • E. Rydzewska, L. Anne Hughes-McCormack, C. Gillberg, A. Henderson, C. MacIntyre, J. Rintoul, S. Cooper (2018). "Prevalence of long-term health conditions in adults with autism: observational study of a whole country population". BMJ Open, 8(8). doi:10.1136/bmjopen-2018-023945

  • M. Luisa Scattoni, M. Micai, A. Ciaramella, T. Salvitti, F. Fulceri, L. Maria Fatta, L. Poustka, R. Diehm, G. Iskrov, R. Stefanov, Q. Guillon, B. Rogé, A. Staines, M. Rose Sweeney, A. Martin Boilson, T. Leósdóttir, E. Saemundsen, I. Moilanen, H. Ebeling, A. Yliherva, M. Gissler, T. Parviainen, P. Tani, R. Kawa, A. Vicente, C. Rasga, M. Budişteanu, I. Dale, C. Povey, N. Flores, C. Jenaro, M. Luisa Monroy, P. García Primo, T. Charman, S. Cramer, C. Kloster Warberg, R. Canal-Bedia, M. Posada, D. Schendel (2021). "Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study". J Autism Dev Disord, 51(11). doi:10.1007/s10803-021-04873-5

  • M. Scott, B. Milbourn, M. Falkmer, M. Black, S. Bӧlte, A. Halladay, M. Lerner, J. Lounds Taylor, S. Girdler (2019). "Factors impacting employment for people with autism spectrum disorder: A scoping review". Autism, 23(4). doi:10.1177/1362361318787789

  • M. Scott, A. Jacob, D. Hendrie, R. Parsons, S. Girdler, T. Falkmer, M. Falkmer (2017). "Employers' perception of the costs and the benefits of hiring individuals with autism spectrum disorder in open employment in Australia". PLoS ONE, 12(5). doi:10.1371/journal.pone.0177607

  • F. Sedgewick, J. Leppanen, K. Tchanturia (2019). "The Friendship Questionnaire, autism, and gender differences: a study revisited". Molecular Autism, 10(1). doi:10.1186/s13229-019-0295-z

  • P. Shah, C. Catmur, G. Bird (2016). "Emotional decision-making in autism spectrum disorder: the roles of interoception and alexithymia". Molecular Autism, 7(1). doi:10.1186/s13229-016-0104-x

  • A. Shand, S. Close, P. Shah (2020). "Greater autism knowledge and contact with autistic people are independently associated with favourable attitudes towards autistic people". Exp Results, 1. doi:10.1017/exp.2020.46

  • P. Shattuck, G. Orsmond, M. Wagner, B. Cooper (2011). "Participation in Social Activities among Adolescents with an Autism Spectrum Disorder". PLoS ONE, 6(11). doi:10.1371/journal.pone.0027176

  • L. Shea, K. Verstreate, S. Nonnemacher, W. Song, M. Salzer (2021). "Self-reported community participation experiences and preferences of autistic adults". Autism. doi:10.1177/1362361320987682

  • S. Silberman (2015). "Neurotribes: The Legacy of Autism and How to Think Smarter About People Who Think Differently." Allen & Unwin.

  • E. Simonoff, R. Kent, D. Stringer, C. Lord, J. Briskman, S. Lukito, A. Pickles, T. Charman, G. Baird (2020). "Trajectories in Symptoms of Autism and Cognitive Ability in Autism From Childhood to Adult Life: Findings From a Longitudinal Epidemiological Cohort". Journal of the American Academy of Child & Adolescent Psychiatry, 59(12). doi:10.1016/j.jaac.2019.11.020

  • J. Sinclair (1993). "Don't mourn for us." Autism Network International (Source)

  • A. Smith (2009). "The empathy imbalance hypothesis of autism: a theoretical approach to cognitive and emotional empathy in autistic development." Psychol. Res., 59, 489–510.

  • R. Smith, J. Netto, N. Gribble, M. Falkmer (2021). "'At the End of the Day, It's Love': An Exploration of Relationships in Neurodiverse Couples". J Autism Dev Disord, 51(9). doi:10.1007/s10803-020-04790-z

  • I. Smith, S. White (2020). "Socio-emotional determinants of depressive symptoms in adolescents and adults with autism spectrum disorder: A systematic review". Autism, 24(4). doi:10.1177/1362361320908101

  • D. Solomon, D. Pantalone, S. Faja (2019). "Autism and Adult Sex Education: A Literature Review Using the Information–Motivation–Behavioral Skills Framework". Sex Disabil, 37(3). doi:10.1007/s11195-019-09591-6

  • O. Solomon, M. Lawlor (2013). "'And I look down and he is gone': Narrating autism, elopement and wandering in Los Angeles". Social Science & Medicine, 94. doi:10.1016/j.socscimed.2013.06.034

  • M. South, J. Beck, R. Lundwall, M. Christensen, E. Cutrer, T. Gabrielsen, J. Cox, R. Lundwall (2020). "Unrelenting Depression and Suicidality in Women with Autistic Traits". J Autism Dev Disord, 50(10). doi:10.1007/s10803-019-04324-2

  • D. Spain, S. Blainey (2015). "Group social skills interventions for adults with high-functioning autism spectrum disorders: A systematic review". Autism, 19(7). doi:10.1177/1362361315587659

  • E. Späth, K. Jongsma (2020). "Autism, autonomy, and authenticity". Med Health Care and Philos, 23(1). doi:10.1007/s11019-019-09909-3

  • L. Alan Sroufe, M. Rutter (1984). "The Domain of Developmental Psychopathology". Child Development, 55(1). doi:10.2307/1129832

  • T. Stacey, E. Froude, J. Trollor, K. Foley (2019). "Leisure participation and satisfaction in autistic adults and neurotypical adults". Autism, 23(4). doi:10.1177/1362361318791275

  • R. Stancliffe (2020). "Choice Availability and People with Intellectual Disability". Choice, Preference, and Disability. doi:10.1007/978-3-030-35683-5_1

  • J. Strang, L. Kenworthy, A. Dominska, J. Sokoloff, L. Kenealy, M. Berl, K. Walsh, E. Menvielle, G. Slesaransky-Poe, K. Kim, C. Luong-Tran, H. Meagher, G. Wallace (2014). "Increased Gender Variance in Autism Spectrum Disorders and Attention Deficit Hyperactivity Disorder". Arch Sex Behav, 43(8). doi:10.1007/s10508-014-0285-3

  • S. Strunz, C. Schermuck, S. Ballerstein, C. Ahlers, I. Dziobek, S. Roepke (2017). "Romantic Relationships and Relationship Satisfaction Among Adults With Asperger Syndrome and High‐Functioning Autism". J Clin Psychol, 73(1). doi:10.1002/jclp.22319

  • H. EK Sundelin, O. Stephansson, C. Hultman, J. Ludvigsson (2018). "Pregnancy outcomes in women with autism: a nationwide population-based cohort study". CLEP, Volume 10. doi:10.2147/clep.s176910

  • K. Tanner, B. Hand, G. O’Toole, A. Lane (2015). "Effectiveness of Interventions to Improve Social Participation, Play, Leisure, and Restricted and Repetitive Behaviors in People With Autism Spectrum Disorder: A Systematic Review". The American Journal of Occupational Therapy, 69(5). doi:10.5014/ajot.2015.017806

  • E. Taylor, L. Livingston, M. Callan, P. H.P. Hanel, P. Shah (2021). "Do autistic traits predict pro-environmental attitudes and behaviors, and climate change belief?". Journal of Environmental Psychology, 76. doi:10.1016/j.jenvp.2021.101648

  • L. Tereshko, R. K. Ross, L. Frazee (2021). "The effects of a procedure to decrease motor stereotypy on social interactions in a child with autism spectrum disorder." Res. Autism Spectr. Disord., 14, 367–377.

  • S. Thompson-Hodgetts, C. Labonte, R. Mazumder, S. Phelan (2020). "Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others". Research in Autism Spectrum Disorders, 77. doi:10.1016/j.rasd.2020.101598

  • M. Tregnago, N. Cheak-Zamora (2012). "Systematic review of disparities in health care for individuals with autism spectrum disorders in the United States". Research in Autism Spectrum Disorders, 6(3). doi:10.1016/j.rasd.2012.01.005

  • L. Turner-Brown*, K. S.L. Lam, T. Holtzclaw, G. Dichter, J. Bodfish (2011). "Phenomenology and measurement of circumscribed interests in autism spectrum disorders". Autism, 15(4). doi:10.1177/1362361310386507

  • B. FC van Heijst, H. Geurts (2015). "Quality of life in autism across the lifespan: A meta-analysis". Autism, 19(2). doi:10.1177/1362361313517053

  • L. Vella, H. Ring, M. RF Aitken, P. Watson, A. Presland, I. CH Clare (2018). "Understanding self-reported difficulties in decision-making by people with autism spectrum disorders". Autism, 22(5). doi:10.1177/1362361316687988

  • C. Walsh, S. Lydon, E. O’Dowd, P. O’Connor (2020). "Barriers to Healthcare for Persons with Autism: A Systematic Review of the Literature and Development of A Taxonomy". Developmental Neurorehabilitation, 23(7). doi:10.1080/17518423.2020.1716868

  • C. Walsh, S. Lydon, R. Geoghegan, C. Carey, M. Creed, L. O’Loughlin, E. Walsh, D. Byrne, P. O’Connor (2021). "Development and preliminary evaluation of a novel physician-report tool for assessing barriers to providing care to autistic patients". BMC Health Serv Res, 21(1). doi:10.1186/s12913-021-06842-1

  • C. Walsh, P. O’Connor, E. Walsh, S. Lydon (2023). "A Systematic Review of Interventions to Improve Healthcare Experiences and Access in Autism". Rev J Autism Dev Disord, 10(2). doi:10.1007/s40489-021-00279-2

  • G. Warner, J. Parr, J. Cusack* (2019). "Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People". Autism in Adulthood, 1(1). doi:10.1089/aut.2018.0003

  • M. Wehmeyer (2020). "The Importance of Self-Determination to the Quality of Life of People with Intellectual Disability: A Perspective". IJERPH, 17(19). doi:10.3390/ijerph17197121

  • J. Weiss, M. Fardella (2018). "Victimization and Perpetration Experiences of Adults With Autism". Front. Psychiatry, 9. doi:10.3389/fpsyt.2018.00203

  • E. Williams, K. Gleeson, B. Jones (2019). "How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis". Autism, 23(1). doi:10.1177/1362361317723836

  • M. Ann Winter-Messiers (2007). "From Tarantulas to Toilet Brushes". Remedial and Special Education, 28(3). doi:10.1177/07419325070280030301

  • J. Wolff, A. de-Shalit (2007). "Disadvantage". Oxford University Press

  • A. Woolard, E. Stratton, E. Demetriou, K. Boulton, E. Pellicano, N. Glozier, V. Gibbs, N. Rogerson, P. Quinn, I. Hickie, A. Guastella (2021). "Perceptions of social and work functioning are related to social anxiety and executive function in autistic adults". Autism, 25(7). doi:10.1177/13623613211013664

  • S. Woolfenden, V. Sarkozy, G. Ridley, K. Williams* (2012). "A systematic review of the diagnostic stability of Autism Spectrum Disorder". Research in Autism Spectrum Disorders, 6(1). doi:10.1016/j.rasd.2011.06.008

  • S. Woolfenden, V. Sarkozy, G. Ridley, M. Coory, K. Williams* (2012). "A systematic review of two outcomes in autism spectrum disorder – epilepsy and mortality". Develop Med Child Neuro, 54(4). doi:10.1111/j.1469-8749.2012.04223.x

  • R. Ying Yew, P. Samuel, M. Hooley, G. Mesibov, M. Stokes (2021). "A systematic review of romantic relationship initiation and maintenance factors in autism". Personal Relationships, 28(4). doi:10.1111/pere.12397

  • O. Zerbo, Y. Qian, T. Ray, S. Sidney, S. Rich, M. Massolo, L. Croen (2019). "Health Care Service Utilization and Cost Among Adults with Autism Spectrum Disorders in a U.S. Integrated Health Care System". Autism in Adulthood, 1(1). doi:10.1089/aut.2018.0004

  • D. Zimmerman, T. Ownsworth, A. O’Donovan, J. Roberts, M. Gullo (2018). "High-functioning autism spectrum disorder in adulthood: A systematic review of factors related to psychosocial outcomes". Journal of Intellectual & Developmental Disability, 43(1). doi:10.3109/13668250.2016.1262010

  • n.a. (2018). "The best research is produced when researchers and communities work together". Nature, 562(7725). doi:10.1038/d41586-018-06855-7

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