The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory

Added on 19/06/2024

Type de contenu

Journal article of the type Theoretical development ( ; english)

The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory published in the journal "Autism" Preprint, 4 pages , doi: 10.1177/13623613241237871

*All co-authors had publicly identified as autistic. [Learn more about this mention]

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Summary/Presentation

This letter discusses the origins of the concept and theory of neurodiversity. It is important to correctly attribute concept and theories to the people who developed them. For some time, the concept of neurodiversity has primarily been attributed to one person, Judy Singer. We consider the available evidence and show that the concept and theory in fact has multiple origins. We draw particular attention to recent archival findings that show the concept of 'neurological diversity' was being used years earlier than previously thought. 'Neurodiversity' means the same thing as 'neurological diversity' and does not change the theory in any way. We conclude that both the concept of neurological diversity or neurodiversity, and the body of theory surrounding it, should be understood as having been collectively developed by neurodivergent people.

For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.


  • S. Antonetta (2007). "A mind apart: Travels in a neurodiverse world". Tarcherperigee.

  • Baggs. (n.d.). "Cousins, ACs, autistics and cousins, autistic cousins, etc. as small as a world and as large as alone".  (Source)

  • H. Blume (1997). "‘Autism & the internet’ or ‘it’s the wiring, stupid’. Media in Transition". (Source)

  • H. Blume (1997). "Autistics, freed from face-to-face encounters, are communicating in cyberspace". New York Times. (Source)

  • H. Blume (1998). "Neurodiversity: On the neurological underpinnings of geekdom". The Atlantic. (Source)

  • B. Chamak, B. Bonniau (2013). "Autism and social movements in France: A comparative perspective". Worlds of Autism, 1, 239–257.

  • P. Collins (1991). "Black feminist thought: Knowledge, consciousness, and the politics of empowerment". Routledge.

  • P. Collins (2011)."Intersectionality as critical social theory". Duke University Press. (Source)

  • P Collins (2017). "Intersectionality and epistemic injustice". In Kidd I. J., Medina J., Pohlaus G. Jr (Eds.), The Routledge handbook of epistemic injustice (pp. 115–124). Routledge. .

  • M. Dekker* (2023). "A correction on the origin of the term ‘neurodiversity’. Independent living on the autistic spectrum: Where those who are different find that they’re not alone". Martijn ‘McDutchie’ Dekker [Blog]. (Source)

  • I. Eidle (2023) "Who really coined neurodiversity?"" [Video]. (Source)

  • J. Harris (2023) "The mother of neurodiversity: How Judy Singer changed the world". The Guardian. (Source) (accessed 1 September 2023).

  • A. Kirby (2004). "The adolescent with developmental coordination disorder (DCD)"". Jessica Kingsley Publishers.

  • S. Pripas-Kapit (2020). "Historicizing Jim Sinclair’s ‘don’t mourn for us’: A cultural and intellectual history of neurodiversity’s first manifesto". In Kapp S. K. (Ed.), Autistic community and the neurodiversity movement: Stories from the frontline (pp. 23–39). Palgrave Macmillan.

  • S. Silberman (2015). "Neurotribes: The legacy of autism and how to think smarter about people who think differently". Allen & Unwin.

  • J. Sinclair (1993). "Don’t mourn for us". Our Voice, 1(3). (Source)

  • J. Sinclair (2005). "Autism network international: The development of a community and its culture". ANI. (Source)

  • J. Singer (1999). "‘Why can’t you be normal for once in your life? From a ‘problem with no name’ to a new category of disability’". In Corker M., French S. (Eds.), Disability discourse (pp. 59–67). Open University Press.

  • J. Singer (2016). "NeuroDiversity: The birth of an idea". Self-published, Amazon.

  • J. Singer (2020). "Taster: Explaining neurodiversity. Reflections on Neurodiversity" [Blog]. (Source)

  • J. Singer (2021). "Neurodiversity: It’s politics, not science! . . . or . . . It’s the name of a social justice movement, not a diagnosis. Reflections on Neurodiversity" [Blog]. (Source)

  • L. Tisoncik (2020). "Autistics.org and finding our voices as an activist movement". In Kapp S. K. (Ed.), Autistic community and the neurodiversity movement (pp. 65–76). Palgrave Macmillan. 

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