Added on 04/08/2024
Journal article of the type Theoretical development ( ; english)
*One co-author has publicly identified as autistic. [Learn more about this mention]
The contrast between third- and first-personal accounts of the experiences of autistic persons has much to teach us about epistemic injustice and epistemic agency. This paper argues that bringing about greater epistemic justice for autistic people requires developing a relational account of epistemic agency. We begin by systematically identifying the many types of epistemic injustice autistic people face, specifically with regard to general assumptions regarding autistic people’s sociability or lack thereof, and by locating the source of these epistemic injustices in neuronormativity and neurotypical ignorance. We then argue that this systematic identification pushes us to construe epistemic agency as resulting from a fundamentally relational and dynamic process between an individual, others around them, and their social, cultural, or institutional environment, rather than as a fixed and inherent property of individuals. Finally, we show how our relational account of epistemic agency allows us to introduce the novel concepts of epistemic disablement and epistemic enablement. We argue that these two concepts allow us to more accurately track the mechanisms that undermine or facilitate epistemic agency, and thereby to better understand how epistemic injustice arises and to design more effective interventions to foster greater epistemic justice for autistic people.
For your information:
(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
-
P. Abberley (1987). "The Concept of Oppression and the Development of a Social Theory of Disability". Disability, Handicap & Society, 2(1). doi:10.1080/02674648766780021
-
D. Abrams, C. Lynch, K. Cheng, J. Phillips, K. Supekar, S. Ryali, L. Uddin, V. Menon (2013). "Underconnectivity between voice-selective cortex and reward circuitry in children with autism". Proc. Natl. Acad. Sci. U.S.A., 110(29). doi:10.1073/pnas.1302982110
-
D. Anastasiou, J. Kauffman (2013). "The Social Model of Disability: Dichotomy between Impairment and Disability". Journal of Medicine and Philosophy, 38(4). doi:10.1093/jmp/jht026
-
E. Anscombe (1959). "Intentions". Blackwell
-
E. Barnes (2016). "The Minority Body".
-
J. Beaudry (2016). "Beyond (Models of) Disability?". JMPHIL, 41(2). doi:10.1093/jmp/jhv063
-
E. Brandt, A. Pope (1997). "Enabling America: Assessing the role of rehabilitation science and engineering". Committee on Assessing Rehabilitation Science and Engineering, Institute of Medicine, Washington D.C.: National Academy Press.
-
J. Bruineberg, E. Rietveld (2014). "Self-organization, free energy minimization, and optimal grip on a field of affordances". Front. Hum. Neurosci., 8. doi:10.3389/fnhum.2014.00599
-
L. Carlson (2010). "The faces of intellectual disability: Philosophical reflections". Indiana University Press.
-
L. Carlson (2016). "Feminist Approaches to Cognitive Disability". Philosophy Compass, 11(10). doi:10.1111/phc3.12350
-
A. Catala* (2015). "Democracy, Trust, and Epistemic Justice". The Monist, 98(4). doi:10.1093/monist/onv022
-
A. Catala* (2019). "Multicultural Literacy, Epistemic Injustice, and White Ignorance". fpq, 5(2). doi:10.5206/fpq/2019.2.7289
-
A. Catala* (2020). "Metaepistemic Injustice and Intellectual Disability: a Pluralist Account of Epistemic Agency". Ethic Theory Moral Prac, 23(5). doi:10.1007/s10677-020-10120-0
-
C. Chevallier, G. Kohls, V. Troiani, E. Brodkin, R. Schultz (2012). "The social motivation theory of autism". Changes, 29(6), 997–1003
-
J. Dachez, M. Caroline, F. Vaslet (2016). "La différence invisible". Paris: Delcourt.
-
J. Dachez, J., M. Caroline (2020). "Invisible differences". Portland: Lion Forge.
-
D. Davidson (1963). "Actions, Reasons, and Causes". The Journal of Philosophy, 60(23). doi:10.2307/2023177
-
G. Dawson (2008). "Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder". Dev Psychopathol, 20(3). doi:10.1017/s0954579408000370
-
S. Van de Cruys, K. Evers, R. Van der Hallen, L. Van Eylen, B. Boets, L. de-Wit, J. Wagemans (2014). "Precise minds in uncertain worlds: Predictive coding in autism.". Psychological Review, 121(4). doi:10.1037/a0037665
-
S. de Haan (2020). "Enactive Psychiatry".
-
H. De Jaegher (forthcoming). "Seeing and inviting participation in autistic interactions". Transcultural Psychiatry.
-
H. De Jaegher (2013). "Embodiment and sense-making in autism". Front. Integr. Neurosci., 7. doi:10.3389/fnint.2013.00015
-
S. Dehaene (2010). "Reading in the brain: The new science of how we read". Penguin.
-
A. Donnellan, D. Hill, M. Leary (2013). "Rethinking autism: implications of sensory and movement differences for understanding and support". Front. Integr. Neurosci., 6. doi:10.3389/fnint.2012.00124
-
K. Dotson (2011). "Tracking Epistemic Violence, Tracking Practices of Silencing". Hypatia, 26(2). doi:10.1111/j.1527-2001.2011.01177.x
-
K. Dotson (2012). "A Cautionary Tale: On Limiting Epistemic Oppression". Frontiers: A Journal of Women Studies, 33(1). doi:10.5250/fronjwomestud.33.1.0024
-
Z. Drayson, A. Clark (forthcoming). "Cognitive disability and embodied, extended minds". In Wasserman and Cureton (Eds.), Oxford handbook of philosophy and disability. Oxford University Press.
-
G. Drew (2017). "An adult with an autism diagnosis: A guide for the newly diagnosed". Jessica Kingsley.
-
H. Dreyfus (2015). "Retrieving Realism".
-
S. Fletcher-Watson, C. Crompton (2019). "Autistic people may lack social motivation, without being any less human". Behav Brain Sci, 42. doi:10.1017/s0140525x18002406
-
P. Fougeyrollas, L. Beauregard (2001). "Disability: An Interactive Person-Environment Social Creation". Handbook of Disability Studies. doi:10.4135/9781412976251.n7
-
M. Fricker (2007). "Epistemic Injustice".
-
A. Frugone (2020). "II. Salient Moments in the Life of Alberto, as a Child, a Youth, a Young Man". Autism and the Myth of the Person Alone. doi:10.18574/nyu/9780814739105.003.0015
-
S. Gallagher (2018). "The Therapeutic Reconstruction of Affordances". Res Phil., 95(4). doi:10.11612/resphil.1723
-
S. Gallagher, A. Crisafi (2009). "Mental Institutions". Topoi, 28(1). doi:10.1007/s11245-008-9045-0
-
K. Gaudion, A. Hall, J. Myerson, L. Pellicano (2014). "A designer's approach: How can autistic adults with learning disabilities be involved in the design process?", International Journal of CoCreation in Design and the Arts, 11(1), 49–69
-
S. Goering (2010). "Revisiting the Relevance of the Social Model of Disability". The American Journal of Bioethics, 10(1). doi:10.1080/15265160903460913
-
A. Goldman (1970). "Theory of human action". Princeton University Press.
-
R. Harris (2015). "My autistic awakening: Unlocking the potential for a life well lived". Rowman & Littlefield.
-
C. Heyes (2016). "Imitation: Not in Our Genes". Current Biology, 26(10). doi:10.1016/j.cub.2016.03.060
-
N. Higashida* (2013). "The reason I jump". Random House.
-
V. Jaswal, N. Akhtar (2019). "Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism". Behav Brain Sci, 42. doi:10.1017/s0140525x18001826
-
I. Kedar (2012). "Ido in autismland: Climbing out of autism's silent prison". Sharon Kedar.
-
E. Kittay (1999). "Love's labor: Essays on women, equality, and dependency". Routledge.
-
J. Kiverstein, L. van Dijk, E. Rietveld (2021). "The field and landscape of affordances: Koffka's two environments revisited". Synthese, 198(S9). doi:10.1007/s11229-019-02123-x
-
A. Klin, W. Jones, R. Schultz, F. Volkmar (2003). "The enactive mind, or from actions to cognition: lessons from autism". Phil. Trans. R. Soc. Lond. B, 358(1430). doi:10.1098/rstb.2002.1202
-
G. Kohls, C. Chevallier, V. Troiani, R. Schultz (2012). "Social 'wanting' dysfunction in autism: neurobiological underpinnings and treatment implications". J Neurodevelop Disord, 4(1). doi:10.1186/1866-1955-4-10
-
J. Krueger, M. Maiese (2019). "Mental institutions, habits of mind, and an extended approach to autism". Thaumàzein, 6, 10–41
-
M. Legault*, J. Bourdon, P. Poirier (2019). "Neurocognitive Variety in Neurotypical Environments: The Source of 'Deficit' in Autism". JBBS, 09(06). doi:10.4236/jbbs.2019.96019
-
E. Liu (2017). "Neurodiversity, Neuroethics, and the Autism Spectrum". The Routledge Handbook of Neuroethics. doi:10.4324/9781315708652-30
-
L. Anne Livingston, P. Shah, V. Milner, F. Happé (2020). "Quantifying compensatory strategies in adults with and without diagnosed autism". Molecular Autism, 11(1). doi:10.1186/s13229-019-0308-y
-
H. Maturana, F. Varela (1992). "The tree of knowledge: The biological roots of understanding". Shambhala.
-
J. Medina (2013). "The Epistemology of Resistance".
-
C. Mills (1997). "The racial contract". Cornell University Press.
-
J. Morris (1991). "Pride against prejudice: Transforming attitudes to disability". Women Press.
-
P. Mundy (2016). "Autism and joint attention: Development, neuroscience, and clinical fundamentals". Guilford Press.
-
C. Nicolaidis, D. Raymaker*, E. Ashkenazy*, K. McDonald, S. Dern, A. EV Baggs*, S. Kapp*, M. Weiner, W. Cody Boisclair (2015). "'Respect the way I need to communicate with you': Healthcare experiences of adults on the autism spectrum". Autism, 19(7). doi:10.1177/1362361315576221
-
M. Oliver (1990). "The Politics of Disablement".
-
M. Oliver (1996). "Understanding Disability".
-
M. Oliver (2013). "The social model of disability: thirty years on". Disability & Society, 28(7). doi:10.1080/09687599.2013.818773
-
World Health Organization. (1980). "International classification of impairments, disabilities, and handicaps: a manual of classification relating to the consequences of disease". Geneva: WHO Publications.
-
World Health Organization. (2001). "International classification of functioning, disability and health". Geneva: WHO Publications.
-
World Health Organization. (2002). "Towards a common language for functioning, disability and health: ICF". Geneva: WHO Publications.
-
E. Di Paolo, E. Thompson. (2014). "The enactive approach". In L. Shapiro (Ed.). The Routledge handbook of embodied cognition (pp. 68–78). Routledge.
-
E. Di Paolo, T. Buhrmann, X. Barandiaran (2017). "Sensorimotor agency". Oxford Scholarship Online. doi:10.1093/acprof:oso/9780198786849.003.0006
-
S. Parsons, N. Yuill, J. Good, M. Brosnan (2020). "'Whose agenda? Who knows best? Whose voice?' Co-creating a technology research roadmap with autism stakeholders". Disability & Society, 35(2). doi:10.1080/09687599.2019.1624152
-
E. Pellicano (2020). "Commentary: Broadening the research remit of participatory methods in autism science – a commentary on Happé and Frith (2020)". Child Psychology Psychiatry, 61(3). doi:10.1111/jcpp.13212
-
G. Pohlhaus (2012). "Relational Knowing and Epistemic Injustice: Toward a Theory ofWillful Hermeneutical Ignorance". Hypatia, 27(4). doi:10.1111/j.1527-2001.2011.01222.x
-
D. Prince-Hughes (2004). "Songs of the gorilla nation: My journey through autism". Harmony Books.
-
M. Ramstead, S. Veissière, L. Kirmayer (2016). "Cultural Affordances: Scaffolding Local Worlds Through Shared Intentionality and Regimes of Attention". Front. Psychol., 7. doi:10.3389/fpsyg.2016.01090
-
J. Robledo, A. Donnellan, K. Strandt-Conroy (2012). "An exploration of sensory and movement differences from the perspective of individuals with autism". Front. Integr. Neurosci., 6. doi:10.3389/fnint.2012.00107
-
R. SCOTCH, K. SCHRINER (1997). "Disability as Human Variation: Implications for Policy". The ANNALS of the American Academy of Political and Social Science, 549(1). doi:10.1177/0002716297549001011
-
R. Suskind (2014). "Life, animated: A story of sidekicks, heroes, and autism". Kingswell.
-
S. Takao, Y. Yamani, A. Ariga (2018). "The Gaze-Cueing Effect in the United States and Japan: Influence of Cultural Differences in Cognitive Strategies on Control of Attention". Front. Psychol., 8. doi:10.3389/fpsyg.2017.02343
-
D. Tammet (2006). "Born on a blue day: Inside the mind of an extraordinary autistic savant". Hodder & Stoughton.
-
L. Terzi (2004). "The Social Model of Disability: A Philosophical Critique". J Applied Philosophy, 21(2). doi:10.1111/j.0264-3758.2004.00269.x
-
E. Thompson (2007). "Mind in life: Biology, phenomenology, and the sciences of mind". Harvard University Press.
-
J. Toro, J. Kiverstein, E. Rietveld (2020). "The Ecological-Enactive Model of Disability: Why Disability Does Not Entail Pathological Embodiment". Front. Psychol., 11. doi:10.3389/fpsyg.2020.01162
-
S. Tremain (2017). "Knowing Disability, Differently 1". The Routledge Handbook of Epistemic Injustice. doi:10.4324/9781315212043-17
-
S. Tremain (2017). "Foucault and Feminist Philosophy of Disability".
-
A. Turing (1936). "On computable numbers, with an application to the Entscheidungsproblem."" Proceedings of the London Mathematical Society, 42(2), 230–265
-
F. Varela, E. Rosch, E. Thompson (1991). "The Embodied Mind".
-
L. Verbrugge, A. Jette (1994). "The disablement process". Social Science & Medicine, 38(1). doi:10.1016/0277-9536(94)90294-1
-
J. von Uexküll (2010.) "A foray Into the worlds of animals and humans: With a theory of meaning". University of Minnesota Press.
-
G. Louise Williams* (2020). "From anonymous subject to engaged stakeholder: Enriching participant experience in autistic-language-use research". RFA, 4(2). doi:10.14324/rfa.04.2.13
-
L. Wittgenstein (1953). "The philosophical investigations". Blackwell.
-
T. Wykes (2014). "Great expectations for participatory research: what have we achieved in the last ten years?". World Psychiatry, 13(1). doi:10.1002/wps.20086
-
M. Yergeau, B. Huebner (2017). "Minding Theory of Mind". Journal of Social Philosophy, 48(3). doi:10.1111/josp.12191
This resource is cited in 2 resources referenced on the site:
- Robert Chapman & coll. (2023, en), "Neurodivergence-informed therapy".
- Mylène Legault & coll. (2024, en), "Breaking the stigma around autism: moving away from neuronormativity using epistemic justice and 4E cognition".
This resource has not (yet) been cited on Bluesky.
Summarize/Comment on/Translate this reference?