Supporting autistic refugees in the UK using the HOPE(S) model

Added on 08/09/2024

Type de contenu

Journal article of the type Perspective ( ; english)

Max Read, Alexis Quinn* , Supporting autistic refugees in the UK using the HOPE(S) model published in the journal "Learning disability practice", Preprint, 8 pages , doi:10.7748/ldp.2024.e2248

*One co-author is autistic. [Learn more about this mention]

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Refugees are likely to have experienced considerable trauma in their life, even more so if they are autistic. The ‘hostile environment’ created in the UK to reduce the number of refugees claiming asylum is likely to have exacerbated the difficulties experienced by refugees, including in terms of access to healthcare services. Refugees detained under the Mental Health Act 1983 may experience restrictive practices and therefore be exposed to additional trauma or re-traumatisation. This article focuses in particular on the harmful effects of solitary confinement on autistic refugees and discusses how healthcare professionals can use the HOPE(S) model to support this population.


For your information:

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(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site;

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic. [Learn more about this mention]


  • A. Zif, H. Kienzler (2022). "Structural barriers to refugee, asylum seeker and undocumented migrant healthcare access. Perceptions of Doctors of the World caseworkers in the UK." SSM-Mental Health, 2, doi:10.1016/j.ssmmh.2022.100088

  • S. Baldwin, D. Costley (2016). "The experiences and needs of female adults with high-functioning autism spectrum disorder." Autism, 20(4), doi:10.1177/1362361315590805

  • M. Botha*, D.M. Frost (2020). "Extending the minority stress model to understand mental health problems experienced by the autistic population." Society and Mental Health, 10(1), doi:10.1177/2156869318804297

  • L.L. Brons (2015). "Othering, an analysis." Transcience, 6(1).

  • Care Quality Commission (2022). "Monitoring the Mental Health Act in 2021 to 2022". Care Quality Commission, London.

  • S. Cassidy, L. Bradley, R. Shaw et al. (2018). "Risk markers for suicidality in autistic adults." Molecular Autism, 9, doi:10.1186/s13229-018-0226-4

  • M. Crastnopol (2015). "Micro-Trauma: A Psychoanalytic Understanding of Cumulative Psychic Injury". Routledge, London.

  • Department for Education, Department of Health and Social Care (2021). "The National Strategy for Autistic Children, Young People and Adults: 2021 to 2026". www.gov.uk/government/publications/national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026/the-national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026

  • Department of Health (2015). "Mental Health Act 1983: Code of Practice". assets.publishing.service.gov.uk/media/5a80a774e5274a2e87dbb0f0/MHA_Code_of_Practice.PDF

  • Department of Health and Social Care (2023). "Baroness Hollins’ Final Report: My Heart Breaks – Solitary Confinement in Hospital Has No Therapeutic Benefit for People with a Learning Disability and Autistic People." www.gov.uk/government/publications/independent-care-education-and-treatment-reviews-final-report-2023/baroness-hollins-final-report-my-heart-breaks-solitary-confinement-in-hospital-has-no-therapeutic-benefit-for-people-with-a-learning-disability-an

  • N. Doyle, A. McDowall, U. Waseem (2022). "Intersectional stigma for autistic people at work: a compound adverse impact effect on labor force participation and experiences of belonging." Autism in Adulthood, 4(4), doi:10.1089/aut.2021.0082

  • D. Dunn, J.D. de la Garza, D.R. Jones et al. (2023). "Awkward but so what: differences in social trait preferences between autistic and non-autistic adults." Neurodiversity, 1, doi:10.1177/27546330231203833

  • D.A. Gibson, H. Eick, S. Meddings et al. (2023). "Why am I still in hospital? Evaluation of delayed discharges from two learning disability assessment and treatment units in England." Tizard Learning Disability Review, 28(1/2), doi:10.1108/TLDR-07-2022-0015

  • O. Golan, N. Haruvi-Lamdan, N. Laor et al. (2022). "The comorbidity between autism spectrum disorder and post-traumatic stress disorder is mediated by brooding rumination." Autism, 26(2), doi:10.1177/13623613211035240

  • S. Grassian (2006). "Psychiatric effects of solitary confinement." Washington University Journal of Law and Policy, 22.

  • M. Grundy-Bowers, M. Read (2019). "Developing cultural competence in caring for LGBTQI+ patients." Nursing Standard, 35(2), doi:10.7748/ns.2019.e11390

  • L. Guenther (2013). "Solitary Confinement: Social Death and Its Afterlives". University of Minnesota Press, Minneapolis MN.

  • C. Haney (2019). "Solitary confinement, loneliness, and psychological harm." In J. Lobel, P.S. Smith (Eds) Solitary Confinement: Effects, Practices, and Pathways Toward Reform. Oxford University Press, Oxford, 129-152.

  • C. Haney (2020). "The science of solitary: expanding the harmfulness narrative." Northwestern University Law Review, 115(1).

  • T. Hirvikoski, E. Mittendorfer-Rutz, M. Boman et al. (2016). "Premature mortality in autism spectrum disorder." British Journal of Psychiatry, 208(3), doi:10.1192/bjp.bp.114.160192

  • D.C. Hocking (2021). "To strive, to seek, to find, and not to yield: narratives on the road to asylum." Transcultural Psychiatry, 58(2), doi:10.1177/1363461520901639

  • N. Haruvi-Lamdan, D. Horesh, S. Zohar et al. (2020). "Autism spectrum disorder and post-traumatic stress disorder: an unexplored co-occurrence of conditions." Autism, 24(4), doi:10.1177/1362361320912143

  • D.-L. Ida (2020). "Multiplicity and neurodiversity – Exploring potential in Deleuzoguattarian social theory for furthering a paradigm shift." In D. Milton, S. Rideout, N. Martin et al. (Eds) The Neurodiversity Reader: Exploring Concepts, Lived Experiences and Implications for Practice. Pavilion, Shoreham-by-Sea, 78-93.

  • N.K. Jensen, K.S. Johansen, M. Kastrup et al. (2014). "Patient experienced continuity of care in the psychiatric healthcare system – A study including immigrants, refugees and ethnic Danes." International Journal of Environmental Research and Public Health, 11(9), doi:10.3390/ijerph110909739

  • Joint Committee on Human Rights (2019). "The Detention of Young People with Learning Disabilities and/or Autism". publications.parliament.uk/pa/jt201919/jtselect/jtrights/121/121.pdf

  • C.M. Kerns, C.J. Newschaffer, S.J. Berkowitz (2015). "Traumatic childhood events and autism spectrum disorder." Journal of Autism and Developmental Disorders, 45(11), doi:10.1007/s10803-015-2392-y

  • Y. Lin, Y. Gu, Y. Xu et al. (2022). "Autistic spectrum traits detection and early screening: a machine learning based eye movement study." Journal of Child and Adolescent Psychiatric Nursing, 35(1), doi:10.1111/jcap.12346

  • E. Mangrio, K. Sjögren Forss (2017). "Refugees’ experiences of healthcare in the host country: a scoping review." BMC Health Services Research, 17(1), doi:10.1186/s12913-017-2731-0

  • E. McGreevy, A. Quinn*, R. Law et al. (2024). "An experience sensitive approach to care with and for autistic children and young people in clinical services." Journal of Humanistic Psychology, doi:10.1177/00221678241232442

  • D. Mearns, M. Cooper (2018). "Working at Relational Depth in Counselling and Psychotherapy". Second edition. SAGE, London.

  • Mersey Care NHS Foundation Trust (2024). "HOPE(S) Model." www.merseycare.nhs.uk/hopes-model

  • T. Michael, S.L. Halligan, D.M. Clark et al. (2007). "Rumination in posttraumatic stress disorder." Depression and Anxiety, 24(5), doi:10.1002/da.20228

  • P. Mitchell, E. Sheppard, S. Cassidy (2021). "Autism and the double empathy problem: implications for development and mental health." British Journal of Developmental Psychology, 39(1), doi:10.1111/bjdp.12350

  • R. Morris, A. Greenblatt, M. Saini (2019). "Healthcare providers’ experiences with autism: a scoping review." Journal of Autism and Developmental Disorders, 49(6), doi:10.1007/s10803-019-03912-6

  • National Institute for Health and Care Excellence (2024). "How is Hepatitis B Transmitted?" cks.nice.org.uk/topics/hepatitis-b/background-information/transmission

  • A.C. Nowak, Y. Namer, C. Hornberg (2022). "Health care for refugees in Europe: a scoping review." International Journal of Environmental Research and Public Health, 19(3), doi:10.3390/ijerph19031278

  • A. Pearson*, K. Rose* (2021). "A conceptual analysis of autistic masking: understanding the narrative of stigma and the illusion of choice." Autism in Adulthood, 3(1), doi:10.1089/aut.2020.0043

  • T. Pollard, N. Howard (2021). "Mental healthcare for asylum-seekers and refugees residing in the United Kingdom: a scoping review of policies, barriers, and enablers." International Journal of Mental Health Systems, 15(1), doi:10.1186/s13033-021-00473-z

  • A. Quinn* (2018). "Unbroken: Learning to Live Beyond Diagnosis". Welbeck Balance, London.

  • A. Quinn*, A. Wood, K.-M. Lodge et al. (2023). "Listening to the experts: person-centred approaches to supporting autistic people and people with an intellectual disability in the mental health system." BJPsych Advances, 29(5), doi:10.1192/bja.2023.31

  • K. Reiter-Scheidl, I. Papousek, H.K. Lackner et al. (2018). "Aggressive behavior after social exclusion is linked with the spontaneous initiation of more action-oriented coping immediately following the exclusion episode." Physiology and Behavior, 195, doi:10.1016/j.physbeh.2018.08.001

  • F. Rumball, F. Happé, N. Grey (2020). "Experience of trauma and PTSD symptoms in autistic adults: risk of PTSD development following DSM-5 and non-DSM-5 traumatic life events." Autism Research, 13(12), doi:10.1002/aur.2306

  • N.J. Sasson, D.J. Faso, J. Nugent et al. (2017). "Neurotypical peers are less willing to interact with those with autism based on thin slice judgments." Scientific Reports, 7, doi:10.1038/srep40700

  • S. Schwartz, I.H. Meyer (2010). "Mental health disparities research: the impact of within and between group analyses on tests of social stress hypotheses." Social Science and Medicine, 70(8), doi:10.1016/j.socscimed.2009.11.032

  • R. Scott, E. Forde, C. Wedderburn (2021). "Refugee, migrant and asylum seekers’ experience of accessing and receiving primary healthcare in a UK City of Sanctuary." Journal of Immigrant and Minority Health, 24(1), doi:10.1007/s10903-021-01227-2

  • R. Shawahna, B. Fahed, D. Qadri et al. (2017). "Awareness and knowledge of autism spectrum disorders among pharmacists: a cross-sectional study in Palestinian pharmacy practice." Journal of Autism and Developmental Disorders, 47(6), doi:10.1007/s10803-017-3085-5

  • A. Shefcyk (2015). "Count us in: addressing gender disparities in autism research." Autism, 19(2), doi:10.1177/1362361314566585

  • J.L. Sheffler, I. Stanley, N. Sachs-Ericsson (2020). "ACEs and mental health outcomes." In G.J. Asmundson, T.O. Afifi (Eds) Adverse Childhood Experiences. Academic Press, Cambridge MA, 47-69.

  • A. Sweeney, B. Filson, A. Kennedy et al. (2018). "A paradigm shift: relationships in trauma-informed mental health services." BJPsych Advances, 24(5), doi:10.1192/bja.2018.29

  • H. Toch (1977). "Living in Prison: The Ecology of Survival". Free Press, New York NY.

  • F. van den Boogert, B. Sizoo, P. Spaan et al. (2021). "Sensory processing and aggressive behavior in adults with autism spectrum disorder." Brain Sciences, 11(1), doi:10.3390/brainsci11010095

  • C. Walsh, P. O’Connor, E. Walsh et al. (2023). "A systematic review of interventions to improve healthcare experiences and access in autism." Review Journal of Autism and Developmental Disorders, 10(2), doi:10.1007/s40489-021-00279-2

  • J. Wångdahl, P. Lytsy, L. Mårtensson et al. (2015). "Health literacy and refugees’ experiences of the health examination for asylum seekers – A Swedish cross-sectional study." BMC Public Health, 15, doi:10.1186/s12889-015-2513-8

  • J.H. Ward, E. Weir, C. Allison et al. (2023). "Increased rates of chronic physical health conditions across all organ systems in autistic adolescents and adults." Molecular Autism, 14, doi:10.1186/s13229-023-00565-2

  • World Health Organization (2022). "Refugee and Migrant Health." www.who.int/news-room/fact-sheets/detail/refugee-and-migrant-health


 
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