The Neurodiversity Attitudes Questionnaire: Development and initial validation

Added on 20/06/2024

Type de contenu

Journal article of the type Scientific research ( ; english)

Rachel Schuck, Sunghee Choi, Kaitlynn Baiden, Patrick Dwyer*, Mirko Uljarević , The Neurodiversity Attitudes Questionnaire: Development and initial validation published in the journal "Autism", Preprint, 13 pages , doi:10.1177/13623613241245756

*One co-author is autistic. [Learn more about this mention]

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Neurodiversity refers to the idea that brain differences (including disabilities) are valuable and should be accepted. Attitudes toward neurodiversity can have real-life impacts on the lives of neurodivergent people (those whose brains do not fit society's "standard"). These impacts can include effects on daily interactions, as well as how professionals such as teachers and doctors deliver services to neurodivergent people. In order to identify negative attitudes toward neurodiversity and potentially improve them, we first need to measure these attitudes. This article describes the development of the Neurodiversity Attitudes Questionnaire (NDAQ). NDAQ development included revision of questionnaire items based on feedback from experts and neurodivergent people, systematically evaluating the way participants responded to questionnaire items, and analysis of how the NDAQ items are grouped into different factors. A preliminary analysis with 351 individuals mostly living in the United States who were currently working or planning to work in a helping profession (e.g. doctors, teachers, therapists, and so on) indicates that the NDAQ measures attitudes toward neurodiversity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the broad idea of neurodiversity, further work is still needed.


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(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic. [Learn more about this mention]


  • T. Armstrong (2012). Neurodiversity in the classroom: Strength-based strategies to help students with special needs succeed in school and life. Association for Supervision and Curriculum Development.

  • T. Asparouhov, B. Muthén (2009). "Exploratory structural equation modeling." Structural Equation Modeling: A Multidisciplinary Journal, 16(3), doi:10.1080/10705510903008204

  • California Teachers Association (n.d.). "Code of ethics." (Source)

  • A. Bailin (2019). "Clearing up some misconceptions about neurodiversity." Scientific American Blog Network. (Source)

  • E. Ballou (2018). "What the neurodiversity movement does—and doesn’t—offer." Thinking Person’s Guide to Autism. (Source)

  • E. Ballou, S. daVanport*, M. Giwa Onaiwu* (Eds.) (2021). "Sincerely, your autistic child: What people on the autism spectrum wish their parents knew about growing up, acceptance, and identity". Beacon Press.

  • R. Becker (2022). "Gender and survey participation: An event history analysis of the gender effects of survey participation in a probability-based multi-wave panel study with a sequential mixed-mode design." Methods, Data, Analyses, 16(1), Article 30, doi:10.12758/mda.2021.08

  • Behavior Analyst Certification Board (2020). "Ethics code for behavior analysts." (Source)

  • E. Bogardus (1933). "A social distance scale." Sociology & Social Research, 17, 265–271.

  • L. Bridget, M. Gibson, P. Douglas, S. Leo, J. Gruson-Wood (2023). "Weighing in: Academic writers on neurodiversity." International Journal of Disability and Social Justice, 3(3), doi:10.13169/intljofdissocjus.3.3.0072

  • R. Burkhart (2019). "Language of disability, language of disorder: An investigation of lived experiences and perspectives of individuals on the autism spectrum with respect to communicative interventions" [Independent study thesis]. The College of Wooster.

  • E. Cage, J. Di Monaco, V. Newell (2018). "Experiences of autism acceptance and mental health in autistic adults." Journal of Autism and Developmental Disorders, 48(2), doi:10.1007/s10803-017-3342-7

  • R. Chapman* (2019). "Neurodiversity theory and its discontents: Autism, schizophrenia, and the social model of disability." In R. Bluhm (Ed.), The Bloomsbury companion to philosophy of psychiatry. Bloomsbury Academic, doi:10.5040/9781350024090.ch-018

  • R. Chapman* (2020). "Neurodiversity, disability, wellbeing." In H. Rosqvist, N. Chown, A. Stenning (Eds.), Neurodiversity Studies. Routledge.

  • R. Chapman* (2020). "Defining neurodiversity for research and practice." In H. Rosqvist, N. Chown, A. Stenning (Eds.), Neurodiversity studies. Routledge.

  • L. Clark, D. Watson (2019). "Constructing validity: New developments in creating objective measuring instruments." Psychological Assessment, 31(12), doi:10.1037/pas0000626

  • A. Comrey, H. Lee (2013). A first course in factor analysis. Psychology Press.

  • IBM Corp. (2021). "IBM SPSS statistics for Windows (Version 28.0.1.0) [Computer software]".

  • L. Crow (2010). "Including all of our lives: Renewing the social model of disability." In J. Rix, M. Nind, K. Sheehy, K. Simmons, C. Walsh (Eds.), Equality, participation and inclusion 1: Diverse perspectives. Routledge.

  • C. Derguy, B. Aubé, O. Rohmer, F. Marotta, D. Loyal (2021). "Another step to school inclusion: Development and validation of the Children’s Attitudes Toward Autism Questionnaire." Autism, 25(6), doi:10.1177/13623613211000163

  • J. Drescher (2015). "Out of DSM: Depathologizing homosexuality." Behavioral Sciences, 5(4), doi:10.3390/bs5040565

  • P. Dwyer* (2022). "The neurodiversity approach(es): What are they and what do they mean for researchers?" Human Development, 66(2), doi:10.1159/000531278

  • A. Edwards, B. Hekel (2021). "Appraisal of disability attitudes and curriculum of nursing students: A literature review." International Journal of Nursing Education Scholarship, 18(1), doi:10.1515/ijnes-2021-0029

  • K. Ferenc, M. Płatos, K. Byrka, M. Król (2023). "Looking through rainbow-rimmed glasses: Taking neurodiversity perspective is related to subjective well-being of autistic adults." Autism, 27(5), doi:10.1177/13623613221135818

  • L. Findler, N. Vilchinsky, S. Werner (2007). "The multidimensional attitudes scale toward persons with disabilities (MAS): Construction and validation." Rehabilitation Counseling Bulletin, 50(3), doi:10.1177/00343552070500030401

  • K. Gillespie-Lynch, J. Bisson, S. Saade, R. Obeid, B. Kofner, A. Harrison, N. Daou, N. Tricarico, J. Delos Santos, W. Pinkava, A. Jordan (2021). "If you want to develop an effective autism training, ask autistic students to help you." Autism, 26(5), doi:10.1177/13623613211041006

  • M. Gonzalez (2021). "Dyslexia knowledge, perceived preparedness, and professional development needs of in-service educators." Annals of Dyslexia, 71(3), doi:10.1007/s11881-021-00235-z

  • A. Goreczny, E. Bender, G. Caruso, C. Feinstein (2011). "Attitudes toward individuals with disabilities: Results of a recent survey and implications of those results." Research in Developmental Disabilities, 32(5), doi:10.1016/j.ridd.2011.02.005

  • A. Hayes, J. Coutts (2020). "Use omega rather than Cronbach’s alpha for estimating reliability. But..." Communication Methods and Measures, 14(1), doi:10.1080/19312458.2020.1718629

  • L. Hu, P. Bentler (1999). "Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives." Structural Equation Modeling: A Multidisciplinary Journal, 6(1), doi:10.1080/10705519909540118

  • S. Kim (2020). "The development and pilot-testing of the Autism Attitude Acceptance Scale: An instrument measuring autism acceptance." Autism in Adulthood, 2(3), doi:10.1089/aut.2019.0066

  • S. Kim, K. Gillespie-Lynch (2023). "Do autistic people’s support needs and non-autistic people’s support for the neurodiversity movement contribute to heightened autism stigma in South Korea vs. The US?" Journal of Autism and Developmental Disorders, 53(11), doi:10.1007/s10803-022-05739-0

  • R. Kline (2016). Principles and practice of structural equation modeling (4th ed.). The Guilford Press.

  • R. Lambert, K. Imm, R. Schuck, S. Choi, A. McNiff (2021). "'UDL is the what, design thinking is the how': Designing for differentiation in mathematics." Mathematics Teacher Education and Development, 23(3).

  • G. Leader, C. Abberton, S. Cunningham, K. Gilmartin, M. Grudzien, E. Higgins, L. Joshi, S. Whelan, A. Mannion (2022). "Gastrointestinal symptoms in autism spectrum disorder: A systematic review." Nutrients, 14(7), Article 1471, doi:10.3390/nu14071471

  • H. Marsh, A. Morin, P. Parker, G. Kaur (2014). "Exploratory structural equation modeling: An integration of the best features of exploratory and confirmatory factor analysis." Annual Review of Clinical Psychology, 10, doi:10.1146/annurev-clinpsy-032813-153700

  • A. Maul (2017). "Rethinking traditional methods of survey validation." Measurement: Interdisciplinary Research and Perspectives, 15(2), doi:10.1080/15366367.2017.1348108

  • D. Morin, A. Crocker, R. Beaulieu-Bergeron, J. Caron (2013). "Validation of the attitudes toward intellectual disability—ATTID questionnaire." Journal of Intellectual Disability Research, 57(3), doi:10.1111/j.1365-2788.2012.01559.x

  • D. Morin, M. Rivard, A. Crocker, C. Boursier, J. Caron (2013). "Public attitudes towards intellectual disability: A multidimensional perspective." Journal of Intellectual Disability Research, 57(3), doi:10.1111/jir.12008

  • S. Mulholland (2016). "ADHD-specific knowledge and attitudes of teachers (ASKAT): Development and validation of a new research instrument." International Journal of Educational Research, 77, doi:10.1016/j.ijer.2016.03.010

  • L. Muthén, B. Muthén (2007). MPlus user’s guide (5th ed.). Muthén & Muthén.

  • A. Ne’eman, L. Pellicano (2022). "Neurodiversity as politics." Human Development, 66(2), doi:10.1159/000524277

  • R. Orr, N. Pang, E. Pellegrino, M. Siegler (1997). "Use of the hippocratic oath: A review of twentieth century practice and a content analysis of oaths administered in medical schools in the U.S. and Canada in 1993." The Journal of Clinical Ethics, 8(4), doi:10.1086/JCE199708409

  • E. Perry, W. Mandy, L. Hull, E. Cage (2022). "Understanding camouflaging as a response to autism-related stigma: A social identity theory approach." Journal of Autism and Developmental Disorders, 52(2), doi:10.1007/s10803-021-04987-w

  • PROMIS (2013). "PROMIS® instrument development and validation scientific standards version 2.0." (Source)

  • M. Rhemtulla, P. E. Brosseau-Liard, V. Savalei (2012). "When can categorical variables be treated as continuous? A comparison of robust continuous and categorical SEM estimation methods under suboptimal conditions." Psychological Methods, 17(3), doi:10.1037/a0029315

  • J. Roberts (2020, August 13). "On Writing Masking Goals for Autistic Middle School Girls—Stop It!" Therapist Neurodiversity Collective. (Source)

  • S. Robertson (2009). "Neurodiversity, quality of life, and autistic adults: Shifting research and professional focuses onto real-life challenges." Disability Studies Quarterly, 30(1), Article 1, doi:10.18061/dsq.v30i1.1069

  • M. Rosenberg, C. Hovland (1960). "Cognitive, affective, and behavioral components of attitude." In M. Rosenberg, C. Hovland, W. McGuire, R. Abelson, J. Brehm (Eds.), Attitude organization and change. Yale University Press.

  • G. Russell (2020). "Critiques of the neurodiversity movement." In S. Kapp (Ed.), Autistic community and the neurodiversity movement. Springer. (Source)

  • R. Schuck, D. Tagavi, K. Baiden, P. Dwyer*, Z. Williams*, A. Osuna, E. Ferguson, M. Jimenez Muñoz, S. Poyser, J. Johnson, T. Vernon (2022). "Neurodiversity and autism intervention: Reconciling perspectives through a naturalistic developmental behavioral intervention framework." Journal of Autism and Developmental Disorders, 52(10), doi:10.1007/s10803-021-05316-x

  • R. Schuck, S. Choi, A. Maul (2022). "Developing a Measure of Teachers’ Knowledge of Neurodiversity." [Conference roundtable presentation]. American Educational Research Association 2022 Annual Meeting, San Diego, CA, USA.

  • J. Sinclair (1993). "Don’t mourn for us." Our Voice, 1(3). (Source)

  • G. Smith (2008). "Does gender influence online survey participation? A record-linkage analysis of university faculty online survey response behavior (ERIC document reproduction service no. ED 501717)." (Source)

  • J. Teitcher, W. Bockting, J. Bauermeister, C. Hoefer, M. Miner, R. Klitzman (2015). "Detecting, preventing, and responding to “fraudsters” in internet research: Ethics and tradeoffs." The Journal of Law, Medicine & Ethics, 43(1), doi:10.1111/jlme.12200

  • R. VanDaalen (2021). "Development and validation of Neurodiversity Attitudes Scale" [Doctoral dissertation]. Arizona State University Library.

  • N. Walker* (2014, September 27). "Neurodiversity: Some basic terms & definitions." (Source)

  • G. Willis (2004). Cognitive interviews. Cognitive interviewing: A tool for improving questionnaire design. Sage.

  • M. Wilson (2004). Constructing measures: An item response modeling approach. Routledge.

  • M. Wolf, E. Ihm, A. Maul, A. Taves (2021). "Survey item validation." In S. Engler, M. Stausberg (Eds.), The Routledge handbook of research methods in the study of religion (2nd ed.). Routledge.

  • C. Yarrish, L. Groshon, J. Mitchell, A. Appelbaum, S. Klock, T. Winternitz, D. G. Friedman-Wheeler (2019). "Finding the signal in the noise: Minimizing responses from bots and inattentive humans in online research." The Behavior Therapist, 42(7).

  • "Thinking Person’s Guide to Autism". Neurodiversity FAQ.". (Source)


 
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