Added on 19/08/2024
Journal article of the type Editorial ( ; english)
*The author has publicly identified as autistic. [Learn more about this mention]
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The neurodiversity movement has historically been led by and composed of autistic and other neurodivergent advocates and activists, with little involvement from neurotypical stakeholders. Now, as the neurodiversity movement gains traction within the wider autism community, we are beginning to see a positive shift in attitudes towards autism in neurotypical stakeholders. Strengths-based approaches to intervention and support are increasingly accepted as best practice, and treatment goals are increasingly focused on issues of key concern for the autistic community, as opposed to the normalisation of autistic people. The activism of neurodiversity advocates has gained recognition from leading autism researchers (Nicolaidis, 2012; Pellicano and Stears, 2011), and the neurodiversity paradigm informs the work of collaborative research teams such as the US-based Academic Autistic Spectrum Partnership in Research and Education (AASPIRE), Australia’s Cooperative Research Centre for Living with Autism (Autism CRC) and the United Kingdom’s Centre for Research in Autism and Education (CRAE).
But as with any social justice movement, the neurodiversity movement is not without critics. As an advocate of the neurodiversity paradigm, I welcome informed and respectful debate regarding my beliefs and activism. The neurodiversity movement is, arguably, still in its infancy. Dishearteningly, though, as more members of the autism community become aware of the neurodiversity movement, I find myself encountering not nuanced and sophisticated criticism, but instead a swathe of misinformed arguments against a fictional conceptualisation of ‘neurodiversity’ that is not the paradigm to which I subscribe. Misinformation about neurodiversity is perhaps compounded by the proliferation of autism researchers, professionals, parents and even autistic people adopting what has been described as ‘neurodiversity lite’ (Neumeier, 2018): employing the rhetoric of the neurodiversity movement without fully understanding the assumptions that are the foundation of the neurodiversity paradigm. While it is encouraging to see the wider autism community embracing the concept of neurodiversity, in order to truly facilitate the evolution of the neurodiversity movement, it is vital that all its proponents – and, just as importantly, critics –have a deep and nuanced understanding of its key assumptions.
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(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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A. Fenton, T. Krahn (2007) "Autism, neurodiversity and equality beyond the ‘normal’". Journal of Ethics in Mental Health 2(2): 1–6.
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L. French, E. M. Kennedy (2018). "Annual Research Review: Early intervention for infants and young children with, or at‐risk of, autism spectrum disorder: a systematic review". Child Psychology Psychiatry, 59(4). doi:10.1111/jcpp.12828
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P. Jaarsma, S. Welin (2012). "Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement". Health Care Anal, 20(1). doi:10.1007/s10728-011-0169-9
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P. Jaarsma, S. Welin (2015). "Autism, Accommodation and Treatment: A Rejoinder to Chong‐Ming Lim's Critique". Bioethics, 29(9). doi:10.1111/bioe.12183
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C. Nicolaidis (2012). "What can physicians learn from the neurodiversity movement?" American Medical Association Journal of Ethics, 14(6): 503–510, doi:10.1001/virtualmentor.2012.14.6.oped1-1206
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M. Oliver (1996). "Understanding Disability". Chatham: Mackays of Chatham.
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E. Pellicano, M. Stears (2011). "Bridging autism, science and society: moving toward an ethically informed approach to autism research". Autism Research, 4(4). doi:10.1002/aur.201
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S. Reindal (2008). "A social relational model of disability: a theoretical framework for special needs education?". European Journal of Special Needs Education, 23(2). doi:10.1080/08856250801947812
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N. Walker* (2012). "Loud Hands: Autistic People, Speaking".
This resource is cited in 14 resources referenced on the site:
- Jac den Houting & coll. (2021, en), "‘I’m not just a guinea pig’: Academic and community perceptions of participatory autism research".
- Kristen Bottema-Beutel & coll. (2021, en), "Avoiding ableist language: suggestions for autism researchers".
- Kathy Leadbitter & coll. (2021, en), "Autistic self-advocacy and the neurodiversity movement: implications for autism early intervention research and practice".
- Patrick Dwyer (2022, en), "The neurodiversity approach(es): what are they and what do they mean for researchers?".
- Elizabeth Pellicano & coll. (2022, en), "Shifting from 'normal science' to neurodiversity in autism science".
- Monique Botha & coll. (2022, en), "'Autism research is in crisis': A mixed method study of researcher’s constructions of autistic people and autism research".
- Tori Haar & coll. (2024, en), "'We have so much to offer': Community members' perspectives on autism research".
- Rachel Schuck & coll. (2024, en), "The Neurodiversity Attitudes Questionnaire: Development and initial validation".
- Rhylee Sulek & coll. (2024, en), "Community priorities for outcomes targeted during professional supports for autistic children and their families".
- Florence Neville & coll. (2024, en), "Reacting, retreating, regulating, and reconnecting: how autistic adults in the United Kingdom use time alone for well-being".
- Mirela Zaneva & coll. (2024, en), "Introduction to Neurodiversity: An Annotated Reading List".
- Lynnette Hersh & coll. (2024, en), "Community member views on autism intervention: Effects of closeness to autistic people with intellectual disabilities and nonspeaking autistic people".
- Diana Tan & coll. (2024, en), "Reporting community involvement in autism research: Findings from the journal Autism ".
- Patrick Dwyer & coll. (2024, en), "Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions".
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