Mindshift in autism: a call to professionals in research, clinical, and educational settings

Added on 11/06/2024

Type de contenu

Journal article of the type Perspective ( ; english)

Mindshift in autism: a call to professionals in research, clinical, and educational settings published in the journal "Frontiers in psychiatry" n°14, 6 pages , doi: 10.3389/fpsyt.2023.1251058

*Two co-authors had publicly identified as autistic. [Learn more about this mention]

- 14% of authors cited in the bibliography of this resource have publicly identified as autistic (21 out of 155 authors).
- 41% of references cited in this resource contain at least one author who has publicly identified as autistic (27 out of 66 references).

=> Unrestricted access and free

Summary/Presentation

Autistic people often have poor outcomes over the life course, including in health, education, employment, and community inclusion. Many professionals working with Autistic adults in research, clinical, and educational settings devote their careers to trying to improve such outcomes. However, we maintain that real progress cannot happen without a fundamental mindshift. The status quo for professionals is to view autism as an illness. Instead, the neurodiversity movement encourages us to value and embrace autism as an aspect of human diversity and asks us to view Autistic people as a marginalized group that experiences significant disparities. While some professionals may be adopting language and concepts from the neurodiversity movement, we argue that making this mindshift fundamentally changes our practice across research, clinical, and educational settings. In this perspective, we call on professionals to embrace this mindshift to reduce discrimination and stigma, halt the spread of harmful ideologies, and help Autistic adults live fulfilling lives. 

For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.


  • APA (2022). "Diagnostic and statistical manual of mental disorders".

  • Q. Almeqdad, A. Alodat, M. Alquraan, M. Mohaidat, A. Al-Makhzoomy (2023). "The effectiveness of universal design for learning: A systematic review of the literature and meta-analysis". Cogent Education, 10(1). doi:10.1080/2331186x.2023.2218191

  • P. Berne, A. Levins Morales, D. Langstaff, S. Invalid (2018). "Ten Principles of Disability Justice". WSQ, 46(1-2). doi:10.1353/wsq.2018.0003

  • M. Botha* (2021). "Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production". Front. Psychol., 12. doi:10.3389/fpsyg.2021.727542

  • R. Buijsman, S. Begeer, A. Scheeren (2023). "'Autistic person' or 'person with autism'? Person-first language preference in Dutch adults with autism and parents". Autism, 27(3). doi:10.1177/13623613221117914

  • M. James Capp (2017). "The effectiveness of universal design for learning: a meta-analysis of literature between 2013 and 2016". International Journal of Inclusive Education, 21(8). doi:10.1080/13603116.2017.1325074

  • A. Cotán, A. Aguirre, B. Morgado, N. Melero (2021). "Methodological Strategies of Faculty Members: Moving toward Inclusive Pedagogy in Higher Education". Sustainability, 13(6). doi:10.3390/su13063031

  • S. Craven (2020). "A Pedagogy of Community". Transformations: The Journal of Inclusive Scholarship and Pedagogy, 30(2). doi:10.5325/trajincschped.30.2.0127

  • K. Crenshaw (1989). "Demarginalizing the intersection of race and sex: a black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics". University of Chicago Legal Forum

  • L. Florian (2015). "Conceptualising Inclusive Pedagogy: The Inclusive Pedagogical Approach in Action". International Perspectives on Inclusive Education. doi:10.1108/s1479-363620150000007001

  • M. Foucault (1980). "Power/knowledge: selected interviews and other writings".

  • K. Gillespie-Lynch, D. Bublitz, A. Donachie, V. Wong, P. Brooks, J. D’Onofrio (2017). "'For a Long Time Our Voices have been Hushed': Using Student Perspectives to Develop Supports for Neurodiverse College Students". Front. Psychol., 8. doi:10.3389/fpsyg.2017.00544

  • J. Hall, J. MacDonnell, C. McConnell, J. Jones (2022). "Student–staff partnerships for diversifying and decolonising the higher education curriculum". Equity in Education & Society, 1(3). doi:10.1177/27526461221109870

  • E. Han, K. Scior, K. Avramides, L. Crane (2022). "A systematic review on autistic people's experiences of stigma and coping strategies". Autism Research, 15(1). doi:10.1002/aur.2652

  • P. Howlin (2021). "Adults with Autism: Changes in Understanding Since DSM-111". J Autism Dev Disord, 51(12). doi:10.1007/s10803-020-04847-z

  • J. Hughes (2016). "Nothing about us without us: increasing neurodiversity in disability and social justice advocacy groups". Autistic Self Advocacy Network

  • R. Hume (2022). "Show Me the Real You: Enhanced Expression of Rogerian Conditions in Therapeutic Relationship Building with Autistic Adults". Autism in Adulthood, 4(2). doi:10.1089/aut.2021.0065

  • W. James, C. Bustamante, K. Lamons, E. Scanlon, J. Chini (2020). "Disabling barriers experienced by students with disabilities in postsecondary introductory physics". Phys. Rev. Phys. Educ. Res., 16(2). doi:10.1103/physrevphyseducres.16.020111

  • S. Kapp* (2018). "Social Support, Well-being, and Quality of Life Among Individuals on the Autism Spectrum". Pediatrics, 141(Supplement_4). doi:10.1542/peds.2016-4300n

  • C. Tom Keating, L. Hickman, J. Leung, R. Monk*, A. Montgomery, H. Heath, S. Sowden (2023). "Autism‐related language preferences of English‐speaking individuals across the globe: A mixed methods investigation". Autism Research, 16(2). doi:10.1002/aur.2864

  • L. Linares (2011). "Revisiting validation theory: theoretical foundations, applications, and extensions". Enroll Manage J. 2:12–33

  • S. Lukes (2021). "Power: a radical view". London: Bloomsbury Publishing

  • M. Lyman (2016) & coll. (2016) "What keeps students with disabilities from using accommodations in postsecondary education? A qualitative review.". J Postsecondary Educ Disabil. 29:123–40

  • Y. Mbaki, E. Todorova, P. Hagan (2021). "Diversifying the medical curriculum as part of the wider decolonising effort: A proposed framework and self‐assessment resource toolbox". The Clinical Teacher, 18(5). doi:10.1111/tct.13408

  • D. Meadows (1999). "Leverage points: places to intervene in a system". Hartland VT: Sustainability Institute

  • A. Meyer (2014). "CAST: universal design for learning: theory & practice". Lynnfield, MA: CAST Professional Publishing

  • D. Milton*, N. Martin, P. Melham (2016). "Beyond reasonable adjustment: autistic-friendly spaces and universal design". In: D Milton and N Martin, editors. Autism and intellectual disabilities in adults Vol. 1. Hove: Pavilion Publishing and Media (2016). 81–5.

  • A. Moriña, I. Orozco (2020). "Planning and implementing actions for students with disabilities: Recommendations from faculty members who engage in inclusive pedagogy". International Journal of Educational Research, 103. doi:10.1016/j.ijer.2020.101639

  • J. Henrik Nieminen (2023). "Unveiling ableism and disablism in assessment: a critical analysis of disabled students' experiences of assessment and assessment accommodations". High Educ, 85(3). doi:10.1007/s10734-022-00857-1

  • A. Sewell, A. Kennett, V. Pugh (2022). "Universal Design for Learning as a theory of inclusive practice for use by educational psychologists". Educational Psychology in Practice, 38(4). doi:10.1080/02667363.2022.2111677

  • M. Shore (2018). "Autistic adults and other stakeholders engage together (AASET), engagement and compensation guide". (Source)

  • M. Slade (2017). "Implementing shared decision making in routine mental health care". World Psychiatry, 16(2). doi:10.1002/wps.20412

  • J. Spratt, L. Florian (2015). "Inclusive pedagogy: From learning to action. Supporting each individual in the context of 'everybody'". Teaching and Teacher Education, 49. doi:10.1016/j.tate.2015.03.006

  • M. Strömberg, L. Liman, P. Bang, K. Igelström (2022). "Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings". Autism in Adulthood, 4(1). doi:10.1089/aut.2020.0074

  • A. Taboas, K. Doepke, C. Zimmerman (2023). "Preferences for identity-first versus person-first language in a US sample of autism stakeholders". Autism, 27(2). doi:10.1177/13623613221130845

  • A. Turnock, K. Langley, C. R.G. Jones (2022). "Understanding Stigma in Autism: A Narrative Review and Theoretical Model". Autism in Adulthood, 4(1). doi:10.1089/aut.2021.0005

  • B. FC van Heijst, H. Geurts (2015). "Quality of life in autism across the lifespan: A meta-analysis". Autism, 19(2). doi:10.1177/1362361313517053


 
Summarize/Comment on/Translate this reference?