Added on 11/06/2024
Journal article of the type Perspective ( ; english)
*Two co-authors had publicly identified as autistic. [Learn more about this mention]
- 14% of authors cited in the bibliography of this resource have publicly identified as autistic (21 out of 155 authors).
- 41% of references cited in this resource contain at least one author who has publicly identified as autistic (27 out of 66 references).
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Autistic people often have poor outcomes over the life course, including in health, education, employment, and community inclusion. Many professionals working with Autistic adults in research, clinical, and educational settings devote their careers to trying to improve such outcomes. However, we maintain that real progress cannot happen without a fundamental mindshift. The status quo for professionals is to view autism as an illness. Instead, the neurodiversity movement encourages us to value and embrace autism as an aspect of human diversity and asks us to view Autistic people as a marginalized group that experiences significant disparities. While some professionals may be adopting language and concepts from the neurodiversity movement, we argue that making this mindshift fundamentally changes our practice across research, clinical, and educational settings. In this perspective, we call on professionals to embrace this mindshift to reduce discrimination and stigma, halt the spread of harmful ideologies, and help Autistic adults live fulfilling lives.
For your information:
(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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APA (2022). "Diagnostic and statistical manual of mental disorders".
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Q. Almeqdad, A. Alodat, M. Alquraan, M. Mohaidat, A. Al-Makhzoomy (2023). "The effectiveness of universal design for learning: A systematic review of the literature and meta-analysis". Cogent Education, 10(1). doi:10.1080/2331186x.2023.2218191
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P. Berne, A. Levins Morales, D. Langstaff, S. Invalid (2018). "Ten Principles of Disability Justice". WSQ, 46(1-2). doi:10.1353/wsq.2018.0003
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M. Botha* (2021). "Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production". Front. Psychol., 12. doi:10.3389/fpsyg.2021.727542
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H. Brown*, A. Stahmer, P. Dwyer*, S. Rivera (2021). "Changing the story: How diagnosticians can support a neurodiversity perspective from the start". Autism, 25(5). doi:10.1177/13623613211001012
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R. Buijsman, S. Begeer, A. Scheeren (2023). "'Autistic person' or 'person with autism'? Person-first language preference in Dutch adults with autism and parents". Autism, 27(3). doi:10.1177/13623613221117914
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M. James Capp (2017). "The effectiveness of universal design for learning: a meta-analysis of literature between 2013 and 2016". International Journal of Inclusive Education, 21(8). doi:10.1080/13603116.2017.1325074
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A. Cotán, A. Aguirre, B. Morgado, N. Melero (2021). "Methodological Strategies of Faculty Members: Moving toward Inclusive Pedagogy in Higher Education". Sustainability, 13(6). doi:10.3390/su13063031
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S. Craven (2020). "A Pedagogy of Community". Transformations: The Journal of Inclusive Scholarship and Pedagogy, 30(2). doi:10.5325/trajincschped.30.2.0127
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K. Crenshaw (1989). "Demarginalizing the intersection of race and sex: a black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics". University of Chicago Legal Forum
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L. Croen, O. Zerbo, Y. Qian, M. Massolo, S. Rich, S. Sidney, C. Kripke (2015). "The health status of adults on the autism spectrum". Autism, 19(7). doi:10.1177/1362361315577517
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L. Florian (2015). "Conceptualising Inclusive Pedagogy: The Inclusive Pedagogical Approach in Action". International Perspectives on Inclusive Education. doi:10.1108/s1479-363620150000007001
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M. Foucault (1980). "Power/knowledge: selected interviews and other writings".
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K. Gillespie-Lynch, D. Bublitz, A. Donachie, V. Wong, P. Brooks, J. D’Onofrio (2017). "'For a Long Time Our Voices have been Hushed': Using Student Perspectives to Develop Supports for Neurodiverse College Students". Front. Psychol., 8. doi:10.3389/fpsyg.2017.00544
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K. Gillespie-Lynch, P. Brooks, F. Someki, R. Obeid, C. Shane-Simpson, S. Kapp*, N. Daou, D. Shane Smith (2015). "Changing College Students' Conceptions of Autism: An Online Training to Increase Knowledge and Decrease Stigma". J Autism Dev Disord, 45(8). doi:10.1007/s10803-015-2422-9
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J. Hall, J. MacDonnell, C. McConnell, J. Jones (2022). "Student–staff partnerships for diversifying and decolonising the higher education curriculum". Equity in Education & Society, 1(3). doi:10.1177/27526461221109870
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E. Han, K. Scior, K. Avramides, L. Crane (2022). "A systematic review on autistic people's experiences of stigma and coping strategies". Autism Research, 15(1). doi:10.1002/aur.2652
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P. Howlin (2021). "Adults with Autism: Changes in Understanding Since DSM-111". J Autism Dev Disord, 51(12). doi:10.1007/s10803-020-04847-z
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J. Hughes (2016). "Nothing about us without us: increasing neurodiversity in disability and social justice advocacy groups". Autistic Self Advocacy Network
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R. Hume (2022). "Show Me the Real You: Enhanced Expression of Rogerian Conditions in Therapeutic Relationship Building with Autistic Adults". Autism in Adulthood, 4(2). doi:10.1089/aut.2021.0065
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W. James, C. Bustamante, K. Lamons, E. Scanlon, J. Chini (2020). "Disabling barriers experienced by students with disabilities in postsecondary introductory physics". Phys. Rev. Phys. Educ. Res., 16(2). doi:10.1103/physrevphyseducres.16.020111
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D. Jones, K. DeBrabander, N. Sasson (2021). "Effects of autism acceptance training on explicit and implicit biases toward autism". Autism. doi:10.1177/1362361320984896
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D. Jones, K. Morrison, K. DeBrabander, R. Ackerman, A. Pinkham, N. Sasson (2021). "Greater Social Interest Between Autistic and Non-autistic Conversation Partners Following Autism Acceptance Training for Non-autistic People". Front. Psychol., 12. doi:10.3389/fpsyg.2021.739147
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S. Kapp* (2018). "Social Support, Well-being, and Quality of Life Among Individuals on the Autism Spectrum". Pediatrics, 141(Supplement_4). doi:10.1542/peds.2016-4300n
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S. Kapp* (2020). "Introduction". Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0_1
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S. Kapp*, K. Gillespie-Lynch, L. Sherman, T. Hutman (2012). "Deficit, difference, or both? Autism and neurodiversity.". Developmental Psychology, 49(1). doi:10.1037/a0028353
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C. Tom Keating, L. Hickman, J. Leung, R. Monk*, A. Montgomery, H. Heath, S. Sowden (2023). "Autism‐related language preferences of
English ‐speaking individuals across the globe: A mixed methods investigation". Autism Research, 16(2). doi:10.1002/aur.2864
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L. Linares (2011). "Revisiting validation theory: theoretical foundations, applications, and extensions". Enroll Manage J. 2:12–33
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S. Lukes (2021). "Power: a radical view". London: Bloomsbury Publishing
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M. Lyman (2016) & coll. (2016) "What keeps students with disabilities from using accommodations in postsecondary education? A qualitative review.". J Postsecondary Educ Disabil. 29:123–40
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Y. Mbaki, E. Todorova, P. Hagan (2021). "Diversifying the medical curriculum as part of the wider decolonising effort: A proposed framework and self‐assessment resource toolbox". The Clinical Teacher, 18(5). doi:10.1111/tct.13408
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K. McDonald, D. Raymaker* (2013). "Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research". Am J Public Health, 103(12). doi:10.2105/ajph.2013.301286
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D. Meadows (1999). "Leverage points: places to intervene in a system". Hartland VT: Sustainability Institute
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A. Meyer (2014). "CAST: universal design for learning: theory & practice". Lynnfield, MA: CAST Professional Publishing
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D. Milton*, N. Martin, P. Melham (2016). "Beyond reasonable adjustment: autistic-friendly spaces and universal design". In: D Milton and N Martin, editors. Autism and intellectual disabilities in adults Vol. 1. Hove: Pavilion Publishing and Media (2016). 81–5.
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R. Monk*, A. J.O. Whitehouse, H. Waddington (2022). "The use of language in autism research". Trends in Neurosciences, 45(11). doi:10.1016/j.tins.2022.08.009
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A. Moriña, I. Orozco (2020). "Planning and implementing actions for students with disabilities: Recommendations from faculty members who engage in inclusive pedagogy". International Journal of Educational Research, 103. doi:10.1016/j.ijer.2020.101639
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C. Nicolaidis (2013). "What Can Physicians Learn from the Neurodiversity Movement?". AMA Journal of Ethics, 14(6). doi:10.1001/virtualmentor.2012.14.6.oped1-1206
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C. Nicolaidis, C. Calliope Kripke, D. Raymaker* (2014). "Primary Care for Adults on the Autism Spectrum". Medical Clinics of North America, 98(5). doi:10.1016/j.mcna.2014.06.011
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C. Nicolaidis, D. Raymaker*, E. Ashkenazy*, K. McDonald, S. Dern, A. EV Baggs*, S. Kapp*, M. Weiner, W. Cody Boisclair (2015). "'Respect the way I need to communicate with you': Healthcare experiences of adults on the autism spectrum". Autism, 19(7). doi:10.1177/1362361315576221
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C. Nicolaidis, D. Raymaker*, K. McDonald, S. Kapp*, M. Weiner, E. Ashkenazy*, M. Gerrity, C. Kripke, L. Platt, A. Baggs* (2016). "The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers". J GEN INTERN MED, 31(10). doi:10.1007/s11606-016-3763-6
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C. Nicolaidis (2019). "What Does Inclusion Mean in Research and Scholarship on Autism in Adulthood?". Autism in Adulthood, 1(2). doi:10.1089/aut.2019.29001.cjn
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J. Henrik Nieminen (2023). "Unveiling ableism and disablism in assessment: a critical analysis of disabled students' experiences of assessment and assessment accommodations". High Educ, 85(3). doi:10.1007/s10734-022-00857-1
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D. Raymaker* (2020). "Shifting the System: AASPIRE and the Loom of Science and Activism". Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0_10
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H. Bertilsdotter Rosqvist*, M. Botha*, K. Hens, S. O’Donoghue*, A. Pearson*, A. Stenning* (2023). "Cutting our own keys: New possibilities of neurodivergent storying in research". Autism, 27(5). doi:10.1177/13623613221132107
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A. Sewell, A. Kennett, V. Pugh (2022). "Universal Design for Learning as a theory of inclusive practice for use by educational psychologists". Educational Psychology in Practice, 38(4). doi:10.1080/02667363.2022.2111677
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M. Shore (2018). "Autistic adults and other stakeholders engage together (AASET), engagement and compensation guide". (Source)
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M. Slade (2017). "Implementing shared decision making in routine mental health care". World Psychiatry, 16(2). doi:10.1002/wps.20412
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J. Spratt, L. Florian (2015). "Inclusive pedagogy: From learning to action. Supporting each individual in the context of 'everybody'". Teaching and Teacher Education, 49. doi:10.1016/j.tate.2015.03.006
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M. Strömberg, L. Liman, P. Bang, K. Igelström (2022). "Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings". Autism in Adulthood, 4(1). doi:10.1089/aut.2020.0074
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A. Taboas, K. Doepke, C. Zimmerman (2023). "Preferences for identity-first versus person-first language in a US sample of autism stakeholders". Autism, 27(2). doi:10.1177/13623613221130845
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A. Turnock, K. Langley, C. R.G. Jones (2022). "Understanding Stigma in Autism: A Narrative Review and Theoretical Model". Autism in Adulthood, 4(1). doi:10.1089/aut.2021.0005
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A. Urbanowicz, C. Nicolaidis, J. den Houting*, S. Shore, K. Gaudion, S. Girdler, R. James Savarese (2019). "An Expert Discussion on Strengths-Based Approaches in Autism". Autism in Adulthood, 1(2). doi:10.1089/aut.2019.29002.aju
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B. FC van Heijst, H. Geurts (2015). "Quality of life in autism across the lifespan: A meta-analysis". Autism, 19(2). doi:10.1177/1362361313517053
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N. Walker*, D. Raymaker* (2021). "Toward a Neuroqueer Future: An Interview with Nick Walker". Autism in Adulthood, 3(1). doi:10.1089/aut.2020.29014.njw
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