Added on 13/08/2024
Journal article of the type Editorial ( ; english)
*Two co-authors had publicly identified as autistic. [Learn more about this mention]
- 11% of authors cited in the bibliography of this resource have publicly identified as autistic (18 out of 160 authors).
- 28% of references cited in this resource contain at least one author who has publicly identified as autistic (20 out of 71 references).
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In response to Vivanti’s ‘Ask The Editor…’ paper [Journal of Autism and Developmental Disorders, 50(2), 691–693], we argue that the use of language in autism research has material consequences for autistic people including stigmatisation, dehumanisation, and violence. Further, that the debate in the use of person-first language versus identity-first language should centre first and foremost on the needs, autonomy, and rights of autistic people, so in to preserve their rights to self-determination. Lastly, we provide directions for future research.
For your information:
(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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S. Griffiths, C. Allison, R. Kenny, R. Holt, P. Smith, S. Baron‐Cohen (2019). "The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults". Autism Research, 12(10). doi:10.1002/aur.2162
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F. Happé, U. Frith (2020). "Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research". Child Psychology Psychiatry, 61(3). doi:10.1111/jcpp.13176
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G. Vivanti (2020). "Ask the Editor: What is the Most Appropriate Way to Talk About Individuals with a Diagnosis of Autism?". J Autism Dev Disord, 50(2). doi:10.1007/s10803-019-04280-x
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This resource is cited in 7 resources referenced on the site:
- Monique Botha & coll. (2022, en), "'Autism research is in crisis': A mixed method study of researcher’s constructions of autistic people and autism research".
- Robert Chapman & coll. (2023, en), "Neurodivergence-informed therapy".
- Desiree Jones & coll. (2023, en), "Mindshift in autism: a call to professionals in research, clinical, and educational settings".
- Matthew Zajic & coll. (2024, en), "Person- and identity-first language in autism research: a systematic analysis of abstracts from 11 autism journals".
- Stéphanie Fecteau & coll. (2024, en), "'Not a trouble': A mixed-method study of autism-related language preferences by French-Canadian adults from the autism community".
- Mirela Zaneva & coll. (2024, en), "Introduction to Neurodiversity: An Annotated Reading List".
- Kathryn Urbaniak & coll. (2024, en), "Disability barriers autistic girls face in secondary education: A systematic review".
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