'Je dois recharger mes batteries sociales': points de vue de jeunes adultes autistes sur la Qualité de vie

Ajouté le 05/07/2024

Type de contenu

Article de revue du type Recherche scientifique ( ; anglais)

Elisabeth Overland , Åshild Lappegard Hauge , Stian Orm , Merete Glenne Oie , Erik Winther Skogli , Elizabeth Pellicano , Per Normann Andersen
'I have to charge my social battery': Perspectives from autistic young adults on Quality of Life publié dans la revue "Autism" n°28, vol.6, 13 pages , doi: 10.1177/13623613241245578

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Résumé/Présentation

Dans cette étude, nous avons demandé à un groupe de jeunes adultes autistes de décrire ce qui est important pour leur qualité de vie. Les 14 participants (âgés de 21 à 29 ans) ont été recrutés dans le cadre d'une étude de suivi de 10 ans menée auprès de personnes autistes. Lors des entretiens, nos participants ont décrit l'importance d'entretenir des relations avec la famille, les amis et les animaux de compagnie. Avoir des activités significatives et être capable de s'immerger dans des intérêts particuliers était également considéré comme important pour une bonne qualité de vie. Les intérêts avaient également guidé leur choix quant aux études et aux activités professionnelles. Ils ont également évoqué comment les problèmes de communication avec les professionnels, le harcèlement et la surcharge sensorielle et émotionnelle pouvaient avoir un impact négatif sur la qualité de vie. Les interventions futures devraient se concentrer sur la manière dont les professionnels peuvent aider les personnes autistes à se connecter aux personnes/animaux et à des activités significatives, car les participants ont décrit cela comme important pour avoir une bonne qualité de vie. Ces résultats peuvent être utiles pour améliorer la façon dont les passions et les intérêts peuvent être considérés comme des opportunités de carrière universitaire et professionnelle pour les personnes autistes. Les recherches et interventions futures devraient également examiner les obstacles à la communication entre les personnes autistes et les professionnels, ainsi que la manière dont la compréhension bilatérale peut être améliorée.

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