Une approche par les capacités pour comprendre et soutenir les personnes autistes à l'âge adulte

Ajouté le 05/07/2024

Type de contenu

Article de revue du type Revue de la littérature ( ; anglais)

A capabilities approach to understanding and supporting autistic adulthood publié dans la revue "Nature reviews psychology" n°1, vol.11, 16 pages , doi: 10.1038/s44159-022-00099-z

*Trois co-auteur·rices se sont publiquement identifié·es comme autistess. [En savoir plus sur cette mention]

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Résumé/Présentation

Il existe peu de recherches approfondies sur les personnes autistes à l'âge adulte, et encore moins sur les services et les soutiens les plus susceptibles de favoriser une vie adulte autiste épanouie. Cette recherche limitée est en partie due au fait que l'autisme est largement conçu comme une condition de l'enfance, mais cette orientation de la recherche résulte également de l'approche scientifique orthodoxe de l'autisme, qui conceptualise l'expérience autistique presque entièrement comme une série de déficits fonctionnels d'origine biologique. Aborder l’autisme de cette manière limite considérablement ce que l’on sait de cette différence neurodéveloppementale, la manière dont la recherche est menée et les services et soutiens disponibles. Dans cette revue, nous adoptons une stratégie de recherche alternative : nous appliquons l'approche des capacités de Martha Nussbaum, qui se concentre sur dix éléments fondamentaux d'une vie humaine épanouie, à la recherche sur les personnes autistes à l'âge adulte. Ce faisant, nous identifions les domaines dans lesquels les adultes autistes prospèrent et dans lesquels ils rencontrent souvent des difficultés, et mettons en évidence les problèmes auxquels les chercheurs, les cliniciens et les décideurs politiques devraient répondre. Le tableau qui en résulte est bien plus complexe que ne le suggèrent les récits conventionnels sur l’autisme. Il révèle également l’importance d’impliquer directement les adultes autistes dans le processus de recherche afin de progresser vers une véritable connaissance de l’autisme et de soutenir des vies autistes épanouies.

Pour information:

(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.


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