Thriving… or just surviving? Autistic journeys in higher education

Added on 17/11/2024

Type de contenu

Journal article of the type Scientific literature review ( ; english)

Chiara Horlin , Katie Almond , Alex Bowen , Ashley Robertson
Thriving… or just surviving? Autistic journeys in higher education published in the journal "Current psychiatry reports" Preprint, 6 pages , doi: 10.1007/s11920-024-01560-x

Summary/Presentation

 Purpose of Review. Here we synthesise key recent (2021–2024) research that aims to understand the experience of autistic people, both staff and students, who navigate the Higher Education (HE) environment.
Recent Findings. Autistic students and staff continue to experience a lack of flexible, consistent and personalised support within the HE context, and tensions remain between the benefits of disclosure and the discrimination that may result. Significant missed opportunities remain for greater social, emotional and practical supports for autistic members of the HE community.
Summary. Distinct barriers to both access and ‘flourishing’ for autistic people within HE remain. Personal narratives continue to describe a range of both positive and negative experiences within HE, yet it remains clear that HE may be inherently hostile in its setup, and that it takes a great deal of effort to fight against this.
 

For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.

  • A. Anderson, J. Stephenson, M. Carter (2017). "A systematic literature review of the experiences and supports of students with autism spectrum disorder in post-secondary education". Research in Autism Spectrum Disorders, 39. doi:10.1016/j.rasd.2017.04.002

  • R. Auerbach, I., P. Mortier, R. Bruffaerts, J. Alonso, C. Benjet, P. Cuijpers, K. Demyttenaere, D. Ebert, J. Greif Green, P. Hasking, E. Murray, M. Nock, S. Pinder-Amaker, N. Sampson, D. Stein, G. Vilagut, A. Zaslavsky, R. Kessler (2018). "WHO World Mental Health Surveys International College Student Project: Prevalence and distribution of mental disorders.". Journal of Abnormal Psychology, 127(7). doi:10.1037/abn0000362

  • A. Bendix (2023). "Autism rates have tripled. Is it now more common or are we. just better at diagnosis?"" NBC News.

  • M. Botha* (2021). "Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production". Front. Psychol., 12. doi:10.3389/fpsyg.2021.727542

  • E. Cage, E. McManemy (2022). "Burnt Out and Dropping Out: A Comparison of the Experiences of Autistic and Non-autistic Students During the COVID-19 Pandemic". Front. Psychol., 12. doi:10.3389/fpsyg.2021.792945

  • F. Cannizzo, C. Mauri, N. Osbaldiston (2019). "Moral barriers between work/life balance policy and practice in academia". Journal of Cultural Economy, 12(4). doi:10.1080/17530350.2019.1605400

  • T. Clements (2019) "What is autism? How the term became too broad to have meaning any more". The Guardian.

  • M. de Broize, K. Evans, A. J.O. Whitehouse, J. Wray, V. Eapen, A. Urbanowicz (2022). "Exploring the Experience of Seeking an Autism Diagnosis as an Adult". Autism in Adulthood, 4(2). doi:10.1089/aut.2021.0028

  • M. Durkin, M. Elsabbagh, J. Barbaro, M. Gladstone, F. Happe, R. Hoekstra, L. Lee, A. Rattazzi, J. Stapel‐Wax, W. Stone, H. Tager‐Flusberg, A. Thurm, M. Tomlinson, A. Shih (2015). "Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide". Autism Research, 8(5). doi:10.1002/aur.1575

  • G. Lockwood Estrin, V. Milner, D. Spain, F. Happé, E. Colvert (2021). "Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review". Rev J Autism Dev Disord, 8(4). doi:10.1007/s40489-020-00225-8

  • N. Gelbar, I. Smith, B. Reichow (2014). "Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs". J Autism Dev Disord, 44(10). doi:10.1007/s10803-014-2135-5

  • H. Goddard, A. Cook (2022). "'I Spent Most of Freshers in my Room'—A Qualitative Study of the Social Experiences of University Students on the Autistic Spectrum". J Autism Dev Disord, 52(6). doi:10.1007/s10803-021-05125-2

  • Higher Educational Statistics Agency. (2023) "Tables 15 - UK domiciled student enrolments by disability and sex 2014/15 to 2021/22"

  • A. Hill (2024) "What's behind the UK's increase in autism diagnoses?"" The Guardian.

  • S. Yoon Kim, S. Crowley (2021). "Understanding perceptions and experiences of autistic undergraduate students toward disability support offices of their higher education institutions". Research in Developmental Disabilities, 113. doi:10.1016/j.ridd.2021.103956

  • R. Lucas, E. Cage, A. James (2022). "Supporting Effective Transitions From University to Post-graduation for Autistic Students". Front. Psychol., 12. doi:10.3389/fpsyg.2021.768429

  • N. Malik-Soni, A. Shaker, H. Luck, A. Mullin, R. Wiley, M. Suzanne Lewis, J. Fuentes, T. Frazier (2022). "Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood". Pediatr Res, 91(5). doi:10.1038/s41390-021-01465-y

  • C. Mazefsky, S. Folstein, J. Lainhart (2008). "Overrepresentation of mood and anxiety disorders in adults with autism and their first‐degree relatives: what does it mean?". Autism Research, 1(3). doi:10.1002/aur.23

  • E. McPeake, K. Lamore, E. Boujut, J. El Khoury, C. Pellenq, M. Plumet, E. Cappe (2023). "'I just need a little more support': A thematic analysis of autistic students' experience of university in France". Research in Autism Spectrum Disorders, 105. doi:10.1016/j.rasd.2023.102172

  • D. Mellifont (2023). "Ableist ivory towers: a narrative review informing about the lived experiences of neurodivergent staff in contemporary higher education". Disability & Society, 38(5). doi:10.1080/09687599.2021.1965547

  • D. Milton* (2022). "A personal account of neurodiversity, academia and activism". The Routledge International Handbook of Critical Autism Studies. doi:10.4324/9781003056577-14

  • National Institute for Health and Care Excellence. (2024) "Autism in adults."

  • H. Pesonen, M. Waltz, M. Fabri, M. Lahdelma, E. Syurina (2021). "Students and graduates with autism: perceptions of support when preparing for transition from university to work". European Journal of Special Needs Education, 36(4). doi:10.1080/08856257.2020.1769982

  • G. Russell, S. Stapley, T. Newlove‐Delgado, A. Salmon, R. White, F. Warren, A. Pearson*, T. Ford (2022). "Time trends in autism diagnosis over 20 years: a UK population‐based cohort study". Child Psychology Psychiatry, 63(6). doi:10.1111/jcpp.13505

  • M. Scott, F. Sedgewick (2021). "'I have more control over my life': A qualitative exploration of challenges, opportunities, and support needs among autistic university students". Autism & Developmental Language Impairments, 6. doi:10.1177/23969415211010419

  • E. Simonoff, A. Pickles, T. Charman, S. Chandler, T. Loucas, G. Baird (2008). "Psychiatric Disorders in Children With Autism Spectrum Disorders: Prevalence, Comorbidity, and Associated Factors in a Population-Derived Sample". Journal of the American Academy of Child & Adolescent Psychiatry, 47(8). doi:10.1097/chi.0b013e318179964f

  • N. Skokauskas, L. Gallagher (2010). "Psychosis, Affective Disorders and Anxiety in Autistic Spectrum Disorder: Prevalence and Nosological Considerations". Psychopathology, 43(1). doi:10.1159/000255958

  • N. Steenkamp, R. Roberts (2020). "Does workload and institutional pressure on accounting educators affect academia at Australian universities?". Accounting & Finance, 60(1). doi:10.1111/acfi.12340

  • W. Sweileh, S. Al-Jabi, A. Sawalha, S. Zyoud (2016). "Bibliometric profile of the global scientific research on autism spectrum disorders". SpringerPlus, 5(1). doi:10.1186/s40064-016-3165-6

  • P. Thomas, W. Zahorodny, B. Peng, S. Kim, N. Jani, W. Halperin, M. Brimacombe (2012). "The association of autism diagnosis with socioeconomic status". Autism, 16(2). doi:10.1177/1362361311413397

  • S. Thompson-Hodgetts, C. Labonte, R. Mazumder, S. Phelan (2020). "Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others". Research in Autism Spectrum Disorders, 77. doi:10.1016/j.rasd.2020.101598

  • A. Turnock, K. Langley, C. R.G. Jones (2022). "Understanding Stigma in Autism: A Narrative Review and Theoretical Model". Autism in Adulthood, 4(1). doi:10.1089/aut.2021.0005

  • F. van Steensel, S. Bögels, E. de Bruin (2013). "Psychiatric Comorbidity in Children with Autism Spectrum Disorders: A Comparison with Children with ADHD". J Child Fam Stud, 22(3). doi:10.1007/s10826-012-9587-z

  • J. Vincent, K. Ralston (2024). "Uncovering employment outcomes for autistic university graduates in the United Kingdom: An analysis of population data". Autism, 28(3). doi:10.1177/13623613231182756

  • J. Vincent, M. Fabri (2022). "The Ecosystem of Competitive Employment for University Graduates with Autism". International Journal of Disability, Development and Education, 69(5). doi:10.1080/1034912x.2020.1821874

  • R. von Below, E. Spaeth, C. Horlin (2024). "Autism in Higher Education: dissonance between educators' perceived knowledge and reported teaching behaviour". International Journal of Inclusive Education, 28(6). doi:10.1080/13603116.2021.1988159


 
Summarize/Comment on/Translate this reference?