At a crossroads—reconsidering the goals of autism early behavioral intervention from a neurodiversity perspective

Added on 18/10/2024

Type de contenu

Journal article of the type Editorial ( ; english)

At a crossroads—reconsidering the goals of autism early behavioral intervention from a neurodiversity perspective published in the journal "JAMA Pediatrics" n°176, vol.9, 2 pages , doi: 10.1001/jamapediatrics.2022.2299

*One co-author has publicly identified as autistic. [Learn more about this mention]

Summary/Presentation

[First lines]

The neurodiversity perspective posits that each person has a unique brain and a unique combination of traits and abilities and asserts that many challenges faced by autistic individuals stem from a lack of fit between the characteristics of autistic people and society's expectations and biases. The neurodiversity movement is akin to a civil rights movement. Among its goals are reducing stigma, increasing accessibility, and ensuring that autistic individuals' voices are represented in decisions about autism research, policy, and clinical practice. The neurodiversity movement is having a growing influence on the scientific community, as evidenced in the recent pause in a large autism genetic study based on concerns raised by the autism community.1 It is also affecting autism practitioners as, increasingly, parents are expressing reservations about enrolling their child in early intervention programs, citing concerns that such programs do not value neurodiversity and, instead, prioritize changing their child's behavior to fit neurotypical norms.

For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.


  • E. R. Elias, C. Lord (2021). "Diagnostic stability in individuals with autism spectrum disorder: insights from a longitudinal follow-up study." J Child Psychol Psychiatry, doi:10.1111/jcpp.13551

  • K.E. MacDuffie, A.M. Estes, L.T. Harrington, et al. (2021). "Presymptomatic detection and intervention for autism spectrum disorder." Pediatrics, 147(5), e2020032250, doi:10.1542/peds.2020-032250

  • A. Orinstein, K.E. Tyson, J. Suh, et al. (2015). "Psychiatric symptoms in youth with a history of autism and optimal outcome." J Autism Dev Disord, 45(11), 3703–3714, doi:10.1007/s10803-015-2520-8

  • K. Sanderson (2021). "High-profile autism genetics project paused amid backlash." Nature, 598(7879), doi:10.1038/d41586-021-02602-7

  • L. Schreibman, G. Dawson, A.C. Stahmer, et al. (2015). "Naturalistic developmental behavioral interventions: empirically validated treatments for autism spectrum disorder." J Autism Dev Disord, 45(8), 2411–2428, doi:10.1007/s10803-015-2407-8


 
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