When disability is defined by behavior, outcome measures should not promote 'passing'

Added on 18/10/2024

Type de contenu

Journal article of the type Perspective ( ; english)

Ari Ne’eman *
When disability is defined by behavior, outcome measures should not promote 'passing' published in the journal "AMA journal of ethics" n°23, vol.7, 7 pages , doi: 10.1001/amajethics.2021.569

*The author has publicly identified as autistic. [Learn more about this mention]

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Summary/Presentation

When disability is defined by behavior, researchers and clinicians struggle to identify appropriate measures to assess clinical progress. Some choose the reduction or elimination of diagnostic traits, implicitly defining typical appearance as the goal of service provision. Such an approach often interferes with more meaningful, person-centered goals; causes harm to people with disabilities; and is unnecessary for dealing with traits that are intrinsically harmful or personally distressing, such as self-injury. Disability stakeholders should reevaluate outcome measures that seek to eliminate disability-related traits that are stigmatized but not harmful. Using autism and the emergent neurodiversity movement as a case study, this article explores ethical challenges in selecting outcome measures in behaviorally defined disability diagnoses.

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(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.

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