Added on 21/09/2024
Journal article of the type Editorial ( ; english)
*One co-author has publicly identified as autistic. [Learn more about this mention]
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[First lines of the editorial]
In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.
It has been 10 years since the ‘double empathy problem’ as a term was first described within the pages of an academic journal (Milton, 2012).
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(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
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R. Samil Alkhaldi, E. Sheppard, E. Burdett, P. Mitchell (2021). "Do Neurotypical People Like or Dislike Autistic People?". Autism in Adulthood, 3(3). doi:10.1089/aut.2020.0059
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D. Bolis, J. Balsters, N. Wenderoth, C. Becchio, L. Schilbach (2017). "Beyond Autism: Introducing the Dialectical Misattunement Hypothesis and a Bayesian Account of Intersubjectivity". Psychopathology, 50(6). doi:10.1159/000484353
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L. Camus, K. Macmillan, G. Rajendran, M. Stewart (2022). "'I too, need to belong': Autistic adults' perspectives on misunderstandings and well-being". PsyArXiv. doi:10.31234/osf.io/5mysh
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R. Chapman* (2019). "Autism as a Form of Life: Wittgenstein and the Psychological Coherence of Autism". Metaphilosophy, 50(4). doi:10.1111/meta.12366
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Y. Chen, L. Senande, M. Thorsen, K. Patten (2021). "Peer preferences and characteristics of same-group and cross-group social interactions among autistic and non-autistic adolescents". Autism, 25(7). doi:10.1177/13623613211005918
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H. De Jaegher (2023). "Seeing and inviting participation in autistic interactions". Transcult Psychiatry, 60(5). doi:10.1177/13634615211009627
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M. Doherty*, S. Neilson, J. O'Sullivan, L. Carravallah*, M. Johnson*, W. Cullen, S. Shaw* (2022). "Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study". BMJ Open, 12(2). doi:10.1136/bmjopen-2021-056904
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S. Eastwood, B. Evans, S. Gaigg, J. Harbord, D. Milton* (2022). "Autism through cinema: co-creation and the unmaking of knowledge". International Journal of Qualitative Studies in Education. doi:10.1080/09518398.2022.2025492
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E. Finke (2023). "The Kind of Friend I Think I Am: Perceptions of Autistic and Non-autistic Young Adults". J Autism Dev Disord, 53(8). doi:10.1007/s10803-022-05573-4
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B. Heasman, A. Gillespie (2018). "Perspective-taking is two-sided: Misunderstandings between people with Asperger's syndrome and their family members". Autism, 22(6). doi:10.1177/1362361317708287
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K. Gaudion (2014). "Design and wellbeing: Bridging the empathy gap between neurotypical designers and autistic adults". In Design for Sustainable Wellbeing and Empowerment, 61–77
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A. Lim, R. Young, N. Brewer (2022). "Autistic Adults May Be Erroneously Perceived as Deceptive and Lacking Credibility". J Autism Dev Disord, 52(2). doi:10.1007/s10803-021-04963-4
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D. Milton* (2016). "Disposable dispositions: reflections upon the work of Iris Marion Young in relation to the social oppression of autistic people". Disability & Society, 31(10). doi:10.1080/09687599.2016.1263468
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P. Mitchell, E. Sheppard, S. Cassidy (2021). "Autism and the double empathy problem: Implications for development and mental health". British J of Dev Psycho, 39(1). doi:10.1111/bjdp.12350
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E. Sheppard, D. Pillai, G. Tze-Lynn Wong, D. Ropar, P. Mitchell (2016). "How Easy is it to Read the Minds of People with Autism Spectrum Disorder?". J Autism Dev Disord, 46(4). doi:10.1007/s10803-015-2662-8
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G. Williams*, T. Wharton, C. Jagoe (2021). "Mutual (Mis)understanding: Reframing Autistic Pragmatic 'Impairments' Using Relevance Theory". Front. Psychol., 12. doi:10.3389/fpsyg.2021.616664
This resource is cited in 4 resources referenced on the site:
- Ari Ne’eman & coll. (2023, en), "A Passing problem: Evaluating harm and benefit in autism research".
- Damian Milton & coll. (2024, en), "Theorising autism".
- George Watts & coll. (2024, en), "‘A certain magic’ – autistic adults’ experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis".
- Jenny Mai Phan & coll. (2025, en), "Oxytocin in autism: Rethinking treatment and research through a neurodivergent perspective".
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