La neurodiversité: un concept façonné par les Blancs du Nord global?

Ajouté le 24/09/2024

Type de contenu

Article de revue du type Commentaire ( ; anglais)

Vishnu Nair , Warda Farah * , Mildred Boveda
Is neurodiversity a Global Northern White paradigm? publié dans la revue "Autism" Preprint, 8 pages , doi: 10.1177/13623613241280835

*Un.e co-auteur·rice s'est publiquement identifié·e comme autiste. [En savoir plus sur cette mention]

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Résumé/Présentation

Dans cet article, nous engageons une conversation critique avec des chercheurs sur la neurodiversité. Nous soulignons le rôle transformateur que la neurodiversité joue en créant un espace essentiel pour l'émergence de travaux académiques centrés sur les voix autistes. Malgré cette avancée, la recherche sur la neurodiversité a négligé et omis d'aborder des questions importantes liées à la géographie (Sud global) et à l'intersectionnalité (les personnes neurodivergentes racisées dans le Nord global). La première question, celle de la géographie, concerne la marginalisation des épistémologies du Sud global dans les études sur la neurodiversité. Nous nous demandons pourquoi la neurodiversité n'a pas reconnu les épistémologies indigènes et celles du Sud, et pourquoi elle considère l'évolution des études relativement récentes du Nord comme l'épicentre de la production de savoir. Deuxièmement, nous mettons en lumière la sous-représentation et l'exclusion des expériences intersectionnelles des personnes racisées dans le Nord global au sein des recherches sur la neurodiversité. L'homogénéisation de la neurodiversité en tant que « mouvement blanc de la neurodiversité » déstabilise les objectifs de justice sociale et d'émancipation de ce mouvement. En soulignant ces enjeux, nous attirons l'attention sur les systèmes de savoirs existant dans le Sud global, sur la marginalisation des travaux académiques et des voix au sein des études sur la neurodiversité, et nous accentuons la nécessité pour cette communauté académique de s'engager dans des recherches sérieuses ancrées dans les expériences intersectionnelles des personnes racisées neurodivergentes.

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(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

  • S. A. Annamma, D. Connor, B. Ferri (2013). "Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability." Race Ethnicity and Education, 16(1), 1–31. doi:10.1080/13613324.2012.730511

  • S. A. Annamma, B. A. Ferri, D. J. Connor (2018). "Disability critical race theory: Exploring the intersectional lineage, emergence, and potential futures of DisCrit in education." Review of Research in Education, 42(1), 46–71. doi:10.3102/0091732x18759041

  • B. A. Aronson, M. Boveda (2017). "The intersection of white supremacy and the education industrial complex: An analysis of #BlackLivesMatter and the criminalization of people with disabilities." Journal of Educational Controversy, 12(1), 1–20. (Source)

  • A. J. Artiles, B. Harry, D. J. Reschly, P. C. Chinn (2002). "Over-identification of students of color in special education: A critical overview." Multicultural Perspectives, 4(1), 3–10. doi:10.1207/s15327892mcp0401_2

  • M. J. Bolton (2018). "With the silence of a thousand cries: Extremes of autistic advocacy." Disability & Society, 33(6), 980–984. doi:10.1080/09687599.2018.1454381

  • M. Botha* (2021). "Academic, activist, or advocate? Angry, entangled, and emerging: A critical reflection on autism knowledge production." Frontiers in Psychology, 12, Article 727542. doi:10.3389/fpsyg.2021.727542

  • M. Botha*, K. Gillespie-Lynch (2022). "Come as you are: Examining autistic identity development and the neurodiversity movement through an intersectional lens." Human Development, 66(2), 93–112. doi:10.1159/000524123

  • M. Boveda, G. Reyes, B. Aronson (2023). "Disciplined to access the general education curriculum: Girls of color, disabilities, and specialized education programming." Curriculum Inquiry, 49(4), 405–425.

  • M. Brea-Spahn, V. K. Nair, C. Bauler (2022). "What is the impact of this? Resisting the censure of critical conversations, collective action and transformation in speech and language therapy." (Source)

  • L. X. Z. Brown* (2017). "Ableist shame and disruptive bodies: Survivorship at the intersection of queer, trans, and disabled existence." In A. J. Johnson, J. R. Nelson, E. M. Lund (Eds.), Religion, disability, and interpersonal violence (pp. 163–178). Springer.

  • M. Bulman (2020). "‘He will die out there’: Severely autistic man facing deportation to Jamaica." Independent. (Source)

  • S. Canagarajah (2023). "A decolonial crip linguistics." Applied Linguistics, 44(1), 1–21. doi:10.1093/applin/amac042

  • R. Chapman*, H. Carel (2022). "Neurodiversity, epistemic injustice, and the good human life." Journal of Social Philosophy, 53, 614–631. doi:10.1111/josp.12456

  • Y. Cheng, B. Tekola, A. Balasubramanian, L. Crane, K. Leadbitter (2023). "Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships." Autism, 27(3), 573–577. doi:10.1177/13623613231159165

  • B. Coard (1971). "How the West Indian child is made educationally sub-normal in the British school system." New Beacon Books.

  • K. W. Crenshaw (2013). "Mapping the margins: Intersectionality, identity politics, and violence against women of color." In M. A. Fineman (Ed.), The public nature of private violence (pp. 93–118). Routledge.

  • J. Davidson, M. Orsini (Eds.) (2013). "Worlds of autism: Across the spectrum of neurological difference." University of Minnesota Press.

  • G. Divan, C. H. Chiang, M. Villalobos, M. Bakare, R. A. Hoekstra (2024). "Shifting the centre of gravity: Towards a truly global representation in autism research." Autism, 28(1), 3–5. doi:10.1177/13623613231214644

  • N. Erevelles (2014). "Crippin’ Jim Crow: Disability, dis-location, and the school-to-prison pipeline." In L. Ben-Moshe, C. Chapman, A. C. Carey (Eds.), Disability incarcerated: Imprisonment and disability in the United States and Canada (pp. 81–99). Palgrave Macmillan.

  • N. Erevelles, A. Minear (2010). "Unspeakable offenses: Untangling race and disability in discourses of intersectionality." Journal of Literary & Cultural Disability Studies, 4(2), 127–145. doi:10.3828/jlcds.2010.11

  • S. Fletcher-Watson (2022). "Transdiagnostic research and the neurodiversity paradigm: Commentary on the transdiagnostic revolution in neurodevelopmental disorders by Astle et al." Journal of Child Psychology and Psychiatry, 63(4), 418–420. doi:10.1111/jcpp.13589

  • A. Ghai (2002). "Disability in the Indian context: Post-colonial perspectives." In M. Corker, T. Shakespeare (Eds.), Disability/postmodernity: Embodying disability theory (pp. 88–100). Continuum.

  • S. Grech (2011). "Recolonising debates or perpetuated coloniality? Decentring the spaces of disability, development and community in the global South." International Journal of Inclusive Education, 15(1), 87–100. doi:10.1080/13603116.2010.496198

  • S. Grech (2015). "Decolonising Eurocentric disability studies: Why colonialism matters in the disability and global South debate." Social Identities, 21(1), 6–21. doi:10.1080/13504630.2014.995347

  • S. Grech, K. Soldatic (2015). "Disability and colonialism: (Dis)encounters and anxious intersectionalities." Social Identities, 21(1), 1–5. doi:10.1080/13504630.2014.995394

  • R. Grosfoguel (2013). "The structure of knowledge in westernised universities: Epistemic racism/sexism and the four genocides/epistemicides." Human Architecture: Journal of the Sociology of Self-knowledge, 1(1), 73–90.

  • E. Guest (2020). "Autism from different points of view: Two sides of the same coin." Disability & Society, 35(1), 156–162. doi:10.1080/09687599.2019.1596199

  • B. L. Hall, R. Tandon (2017). "Decolonization of knowledge, epistemicide, participatory research and higher education." Research for All, 1(1), 6–19. doi:10.18546/rfa.01.1.02

  • J. Henner, O. Robinson (2023). "Unsettling languages, unruly bodyminds: A crip linguistics manifesto." Journal of Critical Study of Communication and Disability, 1(1), 7–37. doi:10.48516/jcscd_2023vol1iss1.4

  • H. Hickey, D. L. Wilson (2017). "Whānau hauā: Reframing disability from an Indigenous perspective." MAI Journal: New Zealand Journal of Indigenous Scholarship, 6(1), 82–94. doi:10.20507/maijournal.2017.6.1.7

  • N. Ineese-Nash (2020). "Disability as a colonial construct: The missing discourse of culture in conceptualizations of disabled Indigenous children." Canadian Journal of Disability Studies, 9(3), 28–51. doi:10.15353/cjds.v9i3.645

  • S. K. Kapp* (2013). "Navajo and autism: The beauty of harmony." In M. Moore (Ed.), Moving beyond boundaries in disability studies (pp. 77–88). Routledge.

  • A. Lorde (Ed.) (1984). "The master’s tools will never dismantle the master’s house." In Sister outsider. The Crossing Press.

  • L. L. Lovern (2017). "Indigenous perspectives on difference: A case for inclusion." Journal of Literary & Cultural Disability Studies, 11(3), 303–320. doi:10.3828/jlcds.2017.24

  • L. L. Lovern (2022). "Indigenous Concepts of Difference: An alternative to Western disability labeling." Disability Studies Quarterly, 41(4). doi:10.18061/dsq.v41i4.8468

  • N. V. Mallipeddi, R. A. VanDaalen (2022). "Intersectionality within critical autism studies: A narrative review." Autism in Adulthood, 4(4), 281–289. doi:10.1089/aut.2021.001

  • H. Meekosha (2011). "Decolonising disability: Thinking and acting globally." Disability & Society, 26(6), 667–682. doi:10.1080/09687599.2011.602860

  • N. Menon (2015). "Is feminism about ‘women’? A critical view on intersectionality from India." Economic and Political Weekly, 50, 37–44.

  • D. E. Milton* (2020). "Neurodiversity past and present-an introduction to the neurodiversity reader." In D. Milton, D. Murray, S. Ridout, N. Martin, R. Mills (Eds.), The neurodiversity reader (pp. 3–6). Pavilion.

  • V. K. Nair, W. Farah*, I. Cushing (2023). "A critical analysis of standardized testing in speech and language therapy." Language, Speech, and Hearing Services in Schools, 54(3), 781–793.

  • C. Nkomo, E. Pagnamenta, V. Nair, K. Chadd, The Royal College of Speech and Language Therapists (2022). "Analysing diversity, equity and inclusion in speech and language therapy." (Source)

  • M. G. Onaiwu* (2020). "I, too, sing neurodiversity." Ought: The Journal of Autistic Culture, 2(1), 58–67.

  • J. Oyeri (2021). "My autism journey." (Source)

  • A. Quijano (2000). "Coloniality of power and eurocentrism in Latin America." International Sociology, 15(2), 215–232.

  • M. Rozsa (2020). "Young, Black, autistic and imprisoned: Matthew Rushin’s story is sadly not unique." (Source)

  • A. Saxe (2017). "The theory of intersectionality: A new lens for understanding the barriers faced by autistic women." Canadian Journal of Disability Studies, 6(4), 153–178. doi:10.15353/cjds.v6i4.386

  • M. M. Sefotho (2021). "Basotho ontology of disability: An afrocentric onto-epistemology." Heliyon, 7(3), Article e06540. doi:10.1016/j.heliyon.2021.e06540

  • V. Shiva (1993). "Monocultures of the mind." Palgrave Macmillan.

  • L. R. Strand (2017). "Charting relations between intersectionality theory and the neurodiversity paradigm." Disability Studies Quarterly, 37(2). doi:10.18061/dsq.v37i2.5374

  • T. Vance (2019). "What’s in a word: Autism and White privilege." (Source)

  • N. Walker* (2012). "Throw away the master’s tools: Liberating ourselves from the pathology paradigm." In J. Bascom (Ed.), Loud hands: Autistic people, speaking (pp. 225–237). The Autistic Press.

  • N. Walker* (n.d.-b). "Throw away the master’s tools: Liberating ourselves from the pathology paradigm." (Source)

  • B. Yu, R. Horton, B. Munson, B. L. Newkirk-Turner, V. E. Johnson, R. Khamis-Dakwar, M. Muñoz, Y. D. Hyter (2022). "Making race visible in the speech, language, and hearing sciences: A critical discourse analysis." American Journal of Speech-Language Pathology, 31(2), 578–600. doi:10.1044/2021_ajslp-20-00384


 
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