Trente ans après Sinclair: Une revue exploratoire des définitions et conceptualisations de la neurodiversité dans la recherche empirique

Ajouté le 01/02/2025

Type de contenu

Article de revue du type Revue de la littérature ( ; anglais)

Helen McLennan , Rachel Aberdein * , Beth Saggers , Jenna Gillett-Swan
Thirty years on from Sinclair: A scoping review of neurodiversity definitions and conceptualisations in empirical research publié dans la revue "Review journal of autism and developmental disorders" Preprint, 16 pages , doi: 10.1007/s40489-025-00493-2

*Un.e co-auteur·rice s'est publiquement identifié·e comme autiste. [En savoir plus sur cette mention]

- 8% des auteur·rices cités dans la bibliographie de cette ressource se sont publiquement identifié·es comme autistes (23 sur 274 auteur·rices).
- 24% des références citées dans cette ressource contiennent au moins un·e auteur·rice publiquement identifié·e comme autiste (28 sur 118 références).

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Résumé/Présentation

Une revue de recherche est bénéfique pour contribuer au débat sur la conceptualisation de la neurodiversité. Ainsi, l'objectif de cette étude était d'identifier comment la neurodiversité a été définie et conceptualisée dans la recherche empirique. Une revue de la portée des recherches mettant la neurodiversité au centre de l'attention a été menée, en accédant à 10 bases de données. Les concepts clés liés à la neurodiversité ont été rassemblés à partir de 46 articles, et une analyse comparative constante a été utilisée pour générer les résultats. Les résultats positionnent la neurodiversité comme une variation humaine naturelle, aux côtés de sept autres catégories. Ces résultats ont été comparés aux travaux théoriques et aux premiers principes de la neurodiversité, en particulier ceux introduits par Jim Sinclair il y a 30 ans. Bien qu'un certain consensus existe dans le domaine, des contrastes et des débats persistent, notamment en ce qui concerne l'alignement de la neurodiversité avec les modèles du handicap.  

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(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

  • H. Angulo-Jiménez, L. DeThorne (2019). "Narratives About Autism: An Analysis of YouTube Videos by Individuals Who Self-Identify as Autistic". Am J Speech Lang Pathol, 28(2). doi:10.1044/2018_ajslp-18-0045

  • H. Arksey, L. O'Malley (2005). "Scoping studies: towards a methodological framework". International Journal of Social Research Methodology, 8(1). doi:10.1080/1364557032000119616

  • T. Armstrong (2010). "Neurodiversity: Discovering the extraordinary gifts of autism, ADHD, dyslexia, and other brain differences." Da Capo.

  • T. Armstrong (2017). "Neurodiversity: The future of special education?" Educational Leadership, 74(7).

  • A. Psychiatric Association (2013). "Diagnostic and Statistical Manual of Mental Disorders".

  • C. Bailey (2023). "'Neurodivergent literacies': exploring autistic adults' 'ruling passions' and embracing neurodiversity through classroom literacies". Literacy, 57(2). doi:10.1111/lit.12320

  • M. B. Bakan (2014). "The musicality of stimming: Promoting neurodiversity in the ethnomusicology of autism." MUSICultures, 41(2). (Source)

  • M. Bakan (2015). "'Don't Go Changing to Try and Please Me': Combating Essentialism through Ethnography in the Ethnomusicology of Autism". Ethnomusicology, 59(1). doi:10.5406/ethnomusicology.59.1.0116

  • D. Lee Baker (2011). "The Politics of Neurodiversity". Lynne Rienner Publishers.

  • M. Berghs, K. Atkin, H. Graham, C. Hatton, C. Thomas (2016). "Implications for public health research of models and theories of disability: a scoping study and evidence synthesis". Public Health Res, 4(8). doi:10.3310/phr04080

  • H. Blume (1998). "Neurodiversity: On the neurological underpinnings of geekdom." The Atlantic. (Source)

  • K. Boundy (2008). "'Are you sure, sweetheart, that you want to be well?': An exploration of the neurodiversity movement." Radical Psychology: A Journal of Psychology, Politics & Radicalism, 7(2).

  • S. Branton, A. Villamil, J. Lansing Reed (2023). "Branding Neurodiversity: A Critical Discourse Analysis of Communicative Capitalism and Change Empowerment Among Neurodiversity Workforce Intermediaries". Journal of Public Relations Research, 35(5-6). doi:10.1080/1062726x.2023.2244619

  • A. Veras Morais Brilhante, L. Maria de Andrade Filgueira, S. Verter Marinho Uchôa Lopes, N. Barreto Saraiva Vilar, L. Rocha Mesquita Nóbrega, A. Juarina Magalhães Verissimo Pouchain, L. Carlos Gabriele Sucupira (2021). "'Eu não sou um anjo azul': a sexualidade na perspectiva de adolescentes autistas". Ciênc. saúde coletiva, 26(2). doi:10.1590/1413-81232021262.40792020

  • S. Bury, R. Jellett, A. Haschek, M. Wenzel, D. Hedley, J. Spoor (2023). "Understanding language preference: Autism knowledge, experience of stigma and autism identity". Autism, 27(6). doi:10.1177/13623613221142383

  • B. Büdy (2021). "Embracing Neurodiversity by Increasing Learner Agency in Nonmajor Chemistry Classes". J. Chem. Educ., 98(12). doi:10.1021/acs.jchemed.1c00247

  • M. Ariel Cascio (2012). "Neurodiversity: Autism Pride Among Mothers of Children with Autism Spectrum Disorders". Intellectual and Developmental Disabilities, 50(3). doi:10.1352/1934-9556-50.3.273

  • M. Chapple, P. Davis, J. Billington, J. Anthony Myrick, C. Ruddock, R. Corcoran (2021). "Overcoming the Double Empathy Problem Within Pairs of Autistic and Non-autistic Adults Through the Contemplation of Serious Literature". Front. Psychol., 12. doi:10.3389/fpsyg.2021.708375

  • K. Cherry, E. Vander Hoeven, T. Patterson, M. Lumley (2021). "Defining and measuring 'psychological flexibility': A narrative scoping review of diverse flexibility and rigidity constructs and perspectives". Clinical Psychology Review, 84. doi:10.1016/j.cpr.2021.101973

  • C. Constantino (2018). "What Can Stutterers Learn from the Neurodiversity Movement?". Semin Speech Lang, 39(04). doi:10.1055/s-0038-1667166

  • R. Cooper, K. Cooper, A. Russell, L. Smith (2021). "'I'm Proud to be a Little Bit Different': The Effects of Autistic Individuals' Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem". J Autism Dev Disord, 51(2). doi:10.1007/s10803-020-04575-4

  • J. M. Corbin, A. L. Strauss (2015). "Basics of qualitative research: Techniques and procedures for developing grounded theory" (4th ed.). SAGE.

  • A. Day (2022). "Disabling and criminalising systems? Understanding the experiences and challenges facing incarcerated, neurodivergent children in the education and youth justice systems in England". Forensic Science International: Mind and Law, 3. doi:10.1016/j.fsiml.2022.100102

  • L. DeThorne, K. Searsmith (2021). "Autism and Neurodiversity: Addressing Concerns and Offering Implications for the School-Based Speech-Language Pathologist". Perspect ASHA SIGs, 6(1). doi:10.1044/2020_persp-20-00188

  • J. Egner (2019). "'The Disability Rights Community was Never Mine': Neuroqueer Disidentification". Gender & Society, 33(1). doi:10.1177/0891243218803284

  • K. Ferenc, K. Byrka, M. Ewa Król (2021). "Painted with different brushes—An exploratory study of psychological well-being and attitudes towards autism perceived by adolescents with autism spectrum conditions and their mothers". Research in Autism Spectrum Disorders, 87. doi:10.1016/j.rasd.2021.101826

  • K. Ferenc, K. Byrka, M. Ewa Król (2023). "The spectrum of attitudes towards the spectrum of autism and its relationship to psychological distress in mothers of children with autism". Autism, 27(1). doi:10.1177/13623613221081185

  • K. Ferenc, M. Płatos, K. Byrka, M. Ewa Król (2023). "Looking through rainbow-rimmed glasses: Taking neurodiversity perspective is related to subjective well-being of autistic adults". Autism, 27(5). doi:10.1177/13623613221135818

  • M. Garner (2021). "Dyslexia Primer for Social Work". ASW, 21(1). doi:10.18060/24035

  • B. G. Glaser (1992). "Basics of grounded theory analysis." Sociology Press.

  • E. Griffin, D. Pollak (2009). "Student experiences of neurodiversity in higher education: insights from the BRAINHE project". Dyslexia, 15(1). doi:10.1002/dys.383

  • J. Guberman (2023). "#ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity". ACM Trans. Comput.-Hum. Interact., 30(3). doi:10.1145/3569891

  • S. Halder, S. Marie Bruyere (2022). "Self-reported impediments at home, school, and community: autistic adults' first-person accounts of their life trajectories and derived pathways". International Journal of Developmental Disabilities, 68(6). doi:10.1080/20473869.2021.1917111

  • F. Happé, U. Frith (2020). "Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research". Child Psychology Psychiatry, 61(3). doi:10.1111/jcpp.13176

  • B. Hart (2014). "Autism parents & neurodiversity: Radical translation, joint embodiment and the prosthetic environment". BioSocieties, 9(3). doi:10.1057/biosoc.2014.20

  • E. Hotez, J. Rava, A. Kuo (2023). "Brief research report: Investigating neurodiversity acceptance in the college classroom: an exploratory study". Front. Educ., 8. doi:10.3389/feduc.2023.1223175

  • J. Hughes (2021). "Does the heterogeneity of autism undermine the neurodiversity paradigm?". Bioethics, 35(1). doi:10.1111/bioe.12780

  • P. Jaarsma, S. Welin (2012). "Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement". Health Care Anal, 20(1). doi:10.1007/s10728-011-0169-9

  • N. Lawson Jacobs (2023). "Speaking with Us, Not for Us: Neurodiversity, Theology and Justice". Journal of Disability & Religion, 27(4). doi:10.1080/23312521.2023.2249448

  • A. Jaysane‐Darr (2020). "Enabling and disabling emotional diversity: Negotiating autism spectrum disorder in therapeutic encounters". Children & Society, 34(4). doi:10.1111/chso.12374

  • J. Go Jefferies, W. Ahmed (2022). "Marketing #neurodiversity for well-being". JCM, 39(6). doi:10.1108/jcm-03-2021-4520

  • S. Kapp* (2020). "Autistic Community and the Neurodiversity Movement". Springer Nature.

  • S. Kapp* (2022). "Models of helping and coping with autism". The Routledge International Handbook of Critical Autism Studies. doi:10.4324/9781003056577-25

  • S. Kapp* (2023). "Profound Concerns about 'Profound Autism': Dangers of Severity Scales and Functioning Labels for Support Needs". Education Sciences, 13(2). doi:10.3390/educsci13020106

  • T. Karaminis, C. Gabrielatos, U. Maden-Weinberger, G. Beattie (2023). "Portrayals of autism in the British press: A corpus-based study". Autism, 27(4). doi:10.1177/13623613221131752

  • T. Kenna (2023). "Neurodiversity in the city: Exploring the complex geographies of belonging and exclusion in urban space". Geographical Journal, 189(2). doi:10.1111/geoj.12512

  • P. Koi (2021). "Genetics on the neurodiversity spectrum: Genetic, phenotypic and endophenotypic continua in autism and ADHD". Studies in History and Philosophy of Science Part A, 89. doi:10.1016/j.shpsa.2021.07.006

  • R. Lambert, E. Harriss (2022). "Insider accounts of dyslexia from research mathematicians". Educ Stud Math, 111(1). doi:10.1007/s10649-021-10140-2

  • D. Levac, H. Colquhoun, K. O'Brien (2010). "Scoping studies: advancing the methodology". Implementation Sci, 5(1). doi:10.1186/1748-5908-5-69

  • N. Lewin, N. Akhtar (2021). "Neurodiversity and deficit perspectives in The Washington Post's coverage of autism". Disability & Society, 36(5). doi:10.1080/09687599.2020.1751073

  • C. Jessica Lewis, J. Arday (2023). "We'll see things they'll never see: Sociological reflections on race, neurodiversity and higher education". The Sociological Review, 71(6). doi:10.1177/00380261231184357

  • E. Loiacono, H. Ren (2018). "Building a Neurodiverse High-tech Workforce". MISQE, 2018(4). doi:10.17705/2msqe.00001

  • S. Macdonald (2019). "From 'disordered' to 'diverse': Defining six sociological frameworks employed in the study of dyslexia in the UK." Insights into Learning Disabilities, 16(1). (Source)

  • N. Masataka (2018). "Neurodiversity and Artistic Performance Characteristic of Children With Autism Spectrum Disorder". Front. Psychol., 9. doi:10.3389/fpsyg.2018.02594

  • C. McAuliffe, R. Walsh, E. Cage (2023). "'My whole life has been a process of finding labels that fit': A Thematic Analysis of Autistic LGBTQIA+ Identity and Inclusion in the LGBTQIA+ Community". Autism in Adulthood, 5(2). doi:10.1089/aut.2021.0074

  • H. McConachie, C. Wilson, D. Mason, D. Garland, J. Parr, A. Rattazzi, J. Rodgers, S. Skevington, M. Uljarevic, I. Magiati (2020). "What Is Important in Measuring Quality of Life? Reflections by Autistic Adults in Four Countries". Autism in Adulthood, 2(1). doi:10.1089/aut.2019.0008

  • C. McMahon, M. Linthicum, B. Stoll (2022). "Developmental disability vs. neurodiverse identity: how cognitive lens affects the general public's perceptions of autism". Disability & Society, 37(9). doi:10.1080/09687599.2021.1881882

  • T. Meads (2022). "The autosomamediality of neurodivergent folks' Facebook pages". Australasian Journal of Popular Culture, 11(1). doi:10.1386/ajpc_00049_1

  • L. Meinen (2023). "Experiences of Neurodivergent People When Playing an Educational Video Game About Their Own Diagnosis". Scandinavian Journal of Disability Research, 25(1). doi:10.16993/sjdr.1037

  • D. Mellifont (2021). "A Qualitative Study Exploring Neurodiversity Conference Themes, Representations and Evidence-Based Justifications for the Explicit Inclusion and Valuing of OCD". IJIDI, 5(2). doi:10.33137/ijidi.v5i2.35067

  • D. Moher, A. Liberati, J. Tetzlaff, D. Altman (2009). "Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement". Journal of Clinical Epidemiology, 62(10). doi:10.1016/j.jclinepi.2009.06.005

  • C. Moore, N. McIntyre, S. Lanivich (2021). "ADHD-Related Neurodiversity and the Entrepreneurial Mindset". Entrepreneurship Theory and Practice, 45(1). doi:10.1177/1042258719890986

  • Z. Munn, M. Peters, C. Stern, C. Tufanaru, A. McArthur, E. Aromataris (2018). "Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach". BMC Med Res Methodol, 18(1). doi:10.1186/s12874-018-0611-x

  • R. Nelson (2021). "A Critique of the Neurodiversity View". J Applied Philosophy, 38(2). doi:10.1111/japp.12470

  • Autistic Self Advocacy Network (2021). "For whose benefit? Evidence, ethics, and effectiveness of autism interventions." (Source)

  • M. Oliver, B. Sapey, P. Thomas (2012). "Social Work with Disabled People". Palgrave Macmillan

  • M. Orsini (2012). "Autism, Neurodiversity and the Welfare State: The Challenges of Accommodating Neurological Difference". Can J Pol Sci, 45(4). doi:10.1017/s000842391200100x

  • F. Ortega (2009). "The Cerebral Subject and the Challenge of Neurodiversity". BioSocieties, 4(4). doi:10.1017/s1745855209990287

  • S. Pripas-Kapit (2020). "Historicizing Jim Sinclair's 'Don't Mourn for Us': A Cultural and Intellectual History of Neurodiversity's First Manifesto". Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0_2

  • T. Priscott, R. Anthony Allen (2021). "Human capital neurodiversity: an examination of stereotype threat anticipation". ER, 43(5). doi:10.1108/er-06-2020-0304

  • J. Richards, K. Sang, A. Marks, S. Gill (2019). "'I've found it extremely draining'". PR, 48(7). doi:10.1108/pr-08-2018-0289

  • H. Bertilsdotter Rosqvist*, L. Hultman, S. Österborg Wiklund, A. Nygren, P. Storm, G. Sandberg (2023). "Intensity and Variable Attention: Counter Narrating ADHD, from ADHD Deficits to ADHD Difference". The British Journal of Social Work, 53(8). doi:10.1093/bjsw/bcad138

  • K. Runswick-Cole (2014). "'Us' and 'them': the limits and possibilities of a 'politics of neurodiversity' in neoliberal times". Disability & Society, 29(7). doi:10.1080/09687599.2014.910107

  • J. Saldaña (2021). "The coding manual for qualitative researchers" (4th ed.). SAGE.

  • C. Shiloh, A. Blythe LaGasse (2014). "Sensory Friendly Concerts: A community music therapy initiative to promote Neurodiversity". International Journal of Community Music, 7(1). doi:10.1386/ijcm.7.1.113_1

  • S. Shmulsky, K. Gobbo, A. Donahue, F. Klucken (2021). "Do neurodivergent college students forge a disability identity? A snapshot and implications." Journal of Postsecondary Education and Disability, 34(1).

  • S. Silberman (2018). "Neurodiversity rewires conventional thinking about brains." In L. J. Davis (Ed.), "Beginning with disability: A primer" (pp. 51–52). Routledge.

  • J. Singer (1998). "Odd people." In "The birth of community amongst people on the 'Autistic spectrum'." University of Technology, Sydney.

  • E. J.S. Sonuga‐Barke, S. Becker, S. Bölte, F. Xavier Castellanos, B. Franke, J. Newcorn, J. Nigg, L. Augusto Rohde, E. Simonoff (2023). "Annual Research Review: Perspectives on progress in ADHD science – from characterization to cause". Child Psychology Psychiatry, 64(4). doi:10.1111/jcpp.13696

  • S. Wright Stein, R. Alexander, J. Mann, C. Schneider, S. Zhang, B. Gibson, S. Gabison, P. Jachyra, D. Mosleh (2022). "Understanding disability in healthcare: exploring the perceptions of parents of young people with autism spectrum disorder". Disability and Rehabilitation, 44(19). doi:10.1080/09638288.2021.1948114

  • L. Tisoncik (2020). "Autistics.Org and Finding Our Voices as an Activist Movement". Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0_5

  • A. Tricco, E. Lillie, W. Zarin, K. O'Brien, H. Colquhoun, D. Levac, D. Moher, M. D.J. Peters, T. Horsley, L. Weeks, S. Hempel, E. Akl, C. Chang, J. McGowan, L. Stewart, L. Hartling, A. Aldcroft, M. Wilson, C. Garritty, S. Lewin, C. Godfrey, M. Macdonald, E. Langlois, K. Soares-Weiser, J. Moriarty, T. Clifford, Ö. Tunçalp, S. Straus (2018). "PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation". Ann Intern Med, 169(7). doi:10.7326/m18-0850

  • N. Walker* (2021). "Neuroqueer heresies: Notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities." Autonomous Press.

  • A. Yücel (2023). "Online News Media Portrayal of ADHD on the Websites of BBC and CNN International during the COVID‐19 Pandemic". Perspectives in Psychiatric Care, 2023(1). doi:10.1155/2023/4338593

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