Faire autrement: des études sur l’autisme émancipatrices au sein d’un espace académique neurodivers

Ajouté le 14/12/2024

Type de contenu

Article de revue du type Recherche scientifique ( ; anglais)

Hanna Bertilsdotter Rosqvist * , Marianthi Kourti * , David Jackson-Perry , Charlotte Brownlow , Kirsty Fletcher , Daniel Bendelman * , Lindsay O'Dell
Doing it differently: emancipatory autism studies within a neurodiverse academic space publié dans la revue "Disability & society" n°34, vol.7, 20 pages , doi: 10.1080/09687599.2019.1603102

*Trois co-auteur·rices se sont publiquement identifié·es comme autistess. [En savoir plus sur cette mention]

Résumé/Présentation

Dans le climat de recherche actuel, dans lequel de nombreuses communautés autistes et sur l’autisme appellent de plus en plus à des formes de recherche collaboratives, nous examinons comment une communauté épistémologique informelle pourrait servir à remettre en question le "fonctionnement habituel" dans le milieu académique. Conscients de la nécessité de dépasser la théorie, nous utilisons cette expérience pour réfléchir concrètement à la manière dont les connaissances sur l’autisme et la neurotypicalité peuvent être co-produites significativement, et rendues accessibles à la fois à la communauté de recherche et aux communautés autistes. Ici, nous utilisons notre propre co-production de cet article pour explorer comment l’expérience autistique peut perturber les significations normatives de la production de connaissances académiques. Nous examinons également les limites et les possibilités d’une collaboration de recherche neurodiverse afin de réfléchir aux manières dont un espace épistémologique informel pourrait contribuer aux connaissances sur l’autisme et la neurotypicalité, enrichissant ainsi le débat sur la recherche collaborative.

Pour information:

(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

  • L. Arnold* (2016). "The Application of Video in the Education of Autistic Adults." (Doctoral dissertation, University of Birmingham).

  • L. Barton (2005). "Emancipatory research and disabled people: some observations and questions". Educational Review, 57(3). doi:10.1080/00131910500149325

  • K. Marie Bone (2017). "Trapped behind the glass: crip theory and disability identity". Disability & Society, 32(9). doi:10.1080/09687599.2017.1313722

  • F. Branfield (1998). "What Are You Doing Here? 'Non-disabled' people and the disability movement: A response to Robert F. Drake". Disability & Society, 13(1). doi:10.1080/09687599826966

  • F. Branfield (1999). "The Disability Movement: A movement of disabled people - a response to Paul S. Duckett". Disability & Society, 14(3). doi:10.1080/09687599926226

  • K. Bratton, L. Ray (2002). "Descriptive Representation, Policy Outcomes, and Municipal Day-Care Coverage in Norway". American Journal of Political Science, 46(2). doi:10.2307/3088386

  • E. Brewer, C. L. Selfe (2014). "Creating a Culture of Access in Composition Studies." Composition Studies, 42(2), 151–154.

  • K. Celis, S. Childs (2008). "Introduction: The Descriptive and Substantive Representation of Women: New Directions". Parliamentary Affairs, 61(3). doi:10.1093/pa/gsn006

  • K. Celis, S. Childs, J. Kantola, M. Lena Krook (2008). "RETHINKING WOMEN'S SUBSTANTIVE REPRESENTATION". Representation, 44(2). doi:10.1080/00344890802079573

  • E. Chaloupka (2015). "Imagining Cognitive Disability: Recursive Reading and Viewing Processes in Henry H. Goddard's The Kallikak Family: A Study in the Heredity of Feeblemindedness". cea, 77(3). doi:10.1353/cea.2015.0026

  • S. Childs, G. Waylen, K. Celis, J. Kantola, S. L. Weldon (2013). "Political Representation." In "The Oxford Handbook of Gender and Politics." Oxford: Oxford University Press.

  • N. Chown*, J. Robinson, L. Beardon, J. Downing, L. Hughes, J. Leatherland, K. Fox, L. Hickman, D. MacGregor (2017). "Improving research about us, with us: a draft framework for inclusive autism research". Disability & Society, 32(5). doi:10.1080/09687599.2017.1320273

  • F. Cilliers, H. Greyvenstein (2012). "The impact of silo mentality on team identity: An organisational case study". SA j ind psychol, 38(2). doi:10.4102/sajip.v38i2.993

  • L. Cooks, J. Warren (2011). "SomeBodies(') in School: Introduction". Text and Performance Quarterly, 31(3). doi:10.1080/10462937.2011.573183

  • A. Danieli, C. Woodhams (2005). "Emancipatory Research Methodology and Disability: A Critique". International Journal of Social Research Methodology, 8(4). doi:10.1080/1364557042000232853

  • P. Duckett (1998). "What Are You Doing Here? 'Non disabled' people and the disability movement: A response to Fran Branfield". Disability & Society, 13(4). doi:10.1080/09687599826641

  • M. Foucault (1979). "The History of Sexuality Volume 1: An Introduction." London: Allen Lane.

  • M. Foucault, J. Miskowiec (1986). "Of Other Spaces". Diacritics, 16(1). doi:10.2307/464648

  • L. Hall (2014). "'With' not 'about' – emerging paradigms for research in a cross-cultural space". International Journal of Research & Method in Education, 37(4). doi:10.1080/1743727x.2014.909401

  • D. Halperin (1995). "Saint Foucault".

  • F. G.E. Happé (1993). "Communicative competence and theory of mind in autism: A test of relevance theory". Cognition, 48(2). doi:10.1016/0010-0277(93)90026-r

  • F. Happé, J. Briskman, U. Frith (2001). "Exploring the Cognitive Phenotype of Autism: Weak 'Central Coherence' in Parents and Siblings of Children with Autism: I. Experimental Tests". Child Psychology Psychiatry, 42(3). doi:10.1111/1469-7610.00723

  • Interagency Autism Coordinating Committee (2013). "IACC/OARC Autism Spectrum Disorder Publications Analysis: The Global Landscape of Autism Research." Washington, DC: Interagency Autism Coordinating Committee, US Department of Health and Human Services.

  • J. Jivraj, L. Sacrey, A. Newton, D. Nicholas, L. Zwaigenbaum (2014). "Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review". Autism, 18(7). doi:10.1177/1362361314539858

  • A. Lorde (2012). "Sister Outsider: Essays and Speeches." Berkeley: Crossing Press.

  • A. Georgia MacLeod, A. Lewis, C. Robertson (2014). "'CHARLIE: PLEASE RESPOND!' Using a participatory methodology with individuals on the autism spectrum". International Journal of Research & Method in Education, 37(4). doi:10.1080/1743727x.2013.776528

  • C. J. Mitchell, L. Kedan (2012). "Access All Areas: Live Art and Disability." London: Live Art Development Agency.

  • L. H. Nelson (1993). "Epistemological Communities." In L. Alcoff & E. Potter (Eds.), "Feminist Epistemologies." New York: Routledge.

  • L. O'Dell, H. B. Rosqvist*, C. Brownlow, F. Ortega, M. Orsini (2016). "Critical Autism Studies: Exploring Epistemic Dialogues and Intersections, Challenging Dominant Understandings of Autism." Disability & Society, 31(2), 166–179.

  • A. Odenstedt (2005). "Gadamer on the Limits of Reflection". Journal of the British Society for Phenomenology, 36(1). doi:10.1080/00071773.2005.11007463

  • M. Oliver (1992). "Changing the Social Relations of Research Production?". Disability, Handicap & Society, 7(2). doi:10.1080/02674649266780141

  • E. Pellicano, L. Crane, K. Gaudion (2017). "Participatory Autism Research: A Starter Pack." London: UCL Institute of Education.

  • D. Raymaker*, C. Nicolaidis (2013). "Participatory Research With Autistic Communities." In J. Davidson & M. Orsini (Eds.), "Worlds of Autism: Across the Spectrum of Neurological Difference." Minneapolis: University of Minnesota Press.

  • A. Samek, T. Donofrio (2013). "'Academic Drag' and the Performance of the Critical Personae: An Exchange on Sexuality, Politics, and Identity in the Academy". Women's Studies in Communication, 36(1). doi:10.1080/07491409.2012.754388

  • J. Seale, M. Nind, L. Tilley, R. Chapman* (2015). "Negotiating a third space for participatory research with people with learning disabilities: an examination of boundaries and spatial practices". Innovation: The European Journal of Social Science Research, 28(4). doi:10.1080/13511610.2015.1081558

  • E. Silfver, M. Jacobsson, L. Arnell, H. Bertilsdotter-Rosqvist*, M. Härgestam, M. Sjöberg, U. Widding (2019). "Classroom Bodies: Affect, Body Language, and Discourse When Schoolchildren Encounter National Tests in Mathematics." Gender and Education, 14(1), 139–155.

  • A. J. Smith, P. Flowers, M. Larkin (2009). "Interpretive Phenomenological Analysis: Theory, Method and Research." London: Sage Publishing.

  • S. Leigh Star (2010). "This is Not a Boundary Object: Reflections on the Origin of a Concept". Science, Technology, & Human Values, 35(5). doi:10.1177/0162243910377624

  • E. Stone, M. Priestley (1996). "Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers". The British Journal of Sociology, 47(4). doi:10.2307/591081

  • R. Garland Thomson (1996). "Freakery: Cultural Spectacles of the Extraordinary Body." New York: New York University Press.

  • R. Garland Thomson (1997). "Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature." New York: Columbia University Press.

  • G. Zarb (1992). "On the Road to Damascus: First Steps towards Changing the Relations of Disability Research Production". Disability, Handicap & Society, 7(2). doi:10.1080/02674649266780161

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