Added on 01/11/2024
Journal article of the type Scientific research ( ; english)
*Three co-authors had publicly identified as autistic. [Learn more about this mention]
Background. Diagnosis of autism falls under the remit of psychiatry. Recognition that psychiatrists could be autistic is recent. Psychiatrists are the second largest specialty group in Autistic Doctors International, a peer support group for autistic doctors.
Aims. To explore the experiences of autistic psychiatrists in relation to recognising themselves and others as autistic.
Method. This was a qualitative study using loosely structured interviews and an interpretive phenomenological analysis.
Results. Eight autistic senior psychiatrists based in the UK participated. One had a childhood diagnosis, two had been diagnosed in adulthood and the remainder self-identified as autistic as adults. Recognition of autism followed diagnosis of their children or encounters with autistic patients. Barriers to self-recognition included lack of autism training, the deficit-based diagnostic criteria and stereotypical views of autism. Recognising that they were autistic led to the realisation that many colleagues were also likely to be autistic, particularly in neurodevelopmental psychiatry. All participants reported the ability to quickly recognise autistic patients and to develop a good rapport easily, once they were aware of their own autistic identity. Difficulties recognising patients as autistic occurred before self-recognition when they shared autistic characteristics and experiences. ‘If we don't recognise ourselves as autistic how on earth can we diagnose patients accurately?’
Conclusions. Autistic psychiatrists face multiple barriers to recognising that they are autistic. Lack of self-recognition may impede diagnostic accuracy with autistic patients. Self-recognition and disclosure by autistic psychiatrists may be facilitated by reframing the traditional deficit-based view of autism towards a neurodiversity-affirmative approach, with consequent benefits for autistic patients.
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(1) References in blue are resources listed on our site.
(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.
(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.
-
M. Barrett, A. Sharma, S. Gnanavel, A. van Hoorn (2023). "Training matters: neurodevelopmental disorders in psychiatric practice". BJPsych advances, 29(5). doi:10.1192/bja.2023.37
-
C. Beale (2022). "Magical thinking and moral injury: exclusion culture in psychiatry". BJPsych Bull, 46(1). doi:10.1192/bjb.2021.86
-
E. Bourke, D. Say, A. Carison, A. Hill, S. Craig, H. Hiscock, F. Babl, S. O'Donnell (2021). "Emergency mental health presentations in children with autism spectrum disorder and attention deficit hyperactivity disorder". J Paediatrics Child Health, 57(10). doi:10.1111/jpc.15535
-
L. Crane, R. Batty, H. Adeyinka, L. Goddard, L. Henry, E. Hill (2018). "Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals". J Autism Dev Disord, 48(11). doi:10.1007/s10803-018-3639-1
-
L. Crane, I. Davidson, R. Prosser, E. Pellicano (2019). "Understanding psychiatrists' knowledge, attitudes and experiences in identifying and supporting their patients on the autism spectrum: online survey". BJPsych open, 5(3). doi:10.1192/bjo.2019.12
-
A. David, Q. Deeley (2024). "Dangers of self-diagnosis in neuropsychiatry". Psychol. Med., 54(6). doi:10.1017/s0033291724000308
-
I. Davidson, M. Doherty*, C. Haydon (2024). "Autism". Seminars in General Adult Psychiatry. doi:10.1017/9781911623861.024
-
C. James Joseph Davidson, P. Carpenter, R. Mohan (2022). "Autistic psychiatrists: Royal College of Psychiatrists response". Br J Psychiatry, 221(3). doi:10.1192/bjp.2022.84
-
C. Davidson (2023). "Autistic psychiatrists are an asset to medicine — but we need to better support them". Spectrum. doi:10.53053/stdm4605
-
M. Doherty*, M. Johnson*, C. Buckley (2021). "Supporting autistic doctors in primary care: challenging the myths and misconceptions". Br J Gen Pract, 71(708). doi:10.3399/bjgp21x716165
-
S. Fellowes (2024). "Establishing the accuracy of self-diagnosis in psychiatry". Philosophical Psychology. doi:10.1080/09515089.2024.2327823
-
M. First, L. Yousif, D. Clarke, P. Wang, N. Gogtay, P. Appelbaum (2022). "DSM‐5‐TR: overview of what's new and what's changed". World Psychiatry, 21(2). doi:10.1002/wps.20989
-
A. Flood (2010). "Understanding phenomenology". Nurse Researcher, 17(2). doi:10.7748/nr2010.01.17.2.7.c7457
-
L. Fusar-Poli, N. Brondino, P. Politi, E. Aguglia (2022). "Missed diagnoses and misdiagnoses of adults with autism spectrum disorder". Eur Arch Psychiatry Clin Neurosci, 272(2). doi:10.1007/s00406-020-01189-w
-
D. Gilmore, A. Longo, M. Krantz, D. Radford, B. Hand (2022). "Five Ways Providers Can Improve Mental Healthcare for Autistic Adults: A Review of Mental Healthcare Use, Barriers to Care, and Evidence-Based Recommendations". Curr Psychiatry Rep, 24(10). doi:10.1007/s11920-022-01362-z
-
F. Happé, U. Frith (2020). "Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research". Child Psychology Psychiatry, 61(3). doi:10.1111/jcpp.13176
-
J. Hayes, T. Ford, R. McCabe, G. Russell (2022). "Autism diagnosis as a social process". Autism, 26(2). doi:10.1177/13623613211030392
-
G. Kriegel, S. Paul, K. Leonard, P. Sandor (2023). "Prevalence of Autism Spectrum Disorder (ASD) in Inpatient Adolescent Psychiatric Population". J Autism Dev Disord. doi:10.1007/s10803-023-05923-w
-
M. Lai, S. Baron-Cohen (2015). "Identifying the lost generation of adults with autism spectrum conditions". The Lancet Psychiatry, 2(11). doi:10.1016/s2215-0366(15)00277-1
-
C. Lord, T. Charman, A. Havdahl, P. Carbone, E. Anagnostou, B. Boyd, T. Carr, P. de Vries, C. Dissanayake, G. Divan, C. Freitag, M. Gotelli, C. Kasari, M. Knapp, P. Mundy, A. Plank, L. Scahill, C. Servili, P. Shattuck, E. Simonoff, A. Tepper Singer, V. Slonims, P. Wang, M. Celica Ysrraelit, R. Jellett, A. Pickles, J. Cusack*, P. Howlin, P. Szatmari, A. Holbrook, C. Toolan, J. McCauley (2022). "The Lancet Commission on the future of care and clinical research in autism". The Lancet, 399(10321). doi:10.1016/s0140-6736(21)01541-5
-
S. McCowan*, S. Shaw*, M. Doherty*, B. Grosjean*, P. Blank, M. Kinnear (2022). "A full CIRCLE: inclusion of autistic doctors in the Royal College Of Psychiatrists' values and Equality Action Plan". Br J Psychiatry, 221(1). doi:10.1192/bjp.2022.14
-
S. Moore, M. Kinnear, L. Freeman (2020). "Autistic doctors: overlooked assets to medicine". The Lancet Psychiatry, 7(4). doi:10.1016/s2215-0366(20)30087-0
-
S. Motulsky (2022). "Is member checking the gold standard of quality in qualitative research?". Qualitative Psychology, 8(3). doi:10.1037/qup0000215
-
NHS England (2023). "Meeting the Needs of Autistic Adults in Mental Health Services". (Source)
-
NHS England (2023). "Operational Guidance to Deliver Improved Outcomes in All-Age Autism Assessment Pathways: Guidance for Integrated Care Boards". NHS England (Source)
-
J. Nyrenius, J. Eberhard, M. Ghaziuddin, C. Gillberg, E. Billstedt (2022). "Prevalence of Autism Spectrum Disorders in Adult Outpatient Psychiatry". J Autism Dev Disord, 52(9). doi:10.1007/s10803-021-05411-z
-
E. O'Nions, I. Petersen, J. E.J. Buckman, R. Charlton, C. Cooper, A. Corbett, F. Happé, J. Manthorpe, M. Richards, R. Saunders, C. Zanker, W. Mandy, J. Stott (2023). "Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data". The Lancet Regional Health - Europe, 29. doi:10.1016/j.lanepe.2023.100626
-
R. AG O’Connor, M. Doherty*, T. Ryan-Enright, K. Gaynor (2024). "Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience". Autism, 28(4). doi:10.1177/13623613231215026
-
M. Pruette (2022). "'Know Thyself': Supporting Personal Psychotherapy During Psychiatry Residency". APT, 75(4). doi:10.1176/appi.psychotherapy.20220022
-
M. Rutherford, L. Johnston (2022). "Rethinking autism assessment, diagnosis, and intervention within a neurodevelopmental pathway framework" In Autism Spectrum Disorders – Recent Advances and New Perspectives.
-
S. Shaw* (2018). "Phenomenological research in medical education: an overview of its philosophy, approaches and conduct". In In SAGE Research Methods Cases Part Two: 1–12. SAGE Publications
-
S. Shaw*, A. Fossi, L. Carravallah*, K. Rabenstein, W. Ross, M. Doherty* (2023). "The experiences of autistic doctors: a cross-sectional study". Front. Psychiatry, 14. doi:10.3389/fpsyt.2023.1160994
-
S. Shaw*, M. Doherty*, S. McCowan*, J. Eccles (2022). "Towards a Neurodiversity-Affirmative Approach for an Over-Represented and Under-Recognised Population: Autistic Adults in Outpatient Psychiatry". J Autism Dev Disord, 52(9). doi:10.1007/s10803-022-05670-4
-
S. CK Shaw*, L. Carravallah*, M. Johnson*, J. O’Sullivan, N. Chown*, S. Neilson, M. Doherty* (2024). "Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study". Autism, 28(7). doi:10.1177/13623613231205629
-
J. Smith, I. Nizza (2022). "Essentials of interpretative phenomenological analysis"
-
J. Smith, M. Fieldsend (2021). "Interpretative phenomenological analysis.". Qualitative research in psychology: Expanding perspectives in methodology and design (2nd ed.).. doi:10.1037/0000252-008
-
D. Spain, G. Stewart, D. Mason, J. Robinson, S. Capp, N. Gillan, I. Ensum, F. Happé (2022). "Autism Diagnostic Assessments With Children, Adolescents, and Adults Prior to and During the COVID-19 Pandemic: A Cross-Sectional Survey of Professionals". Front. Psychiatry, 13. doi:10.3389/fpsyt.2022.789449
-
S. Stagg, H. Belcher (2019). "Living with autism without knowing: receiving a diagnosis in later life". Health Psychology and Behavioral Medicine, 7(1). doi:10.1080/21642850.2019.1684920
-
R. Street, H. Gordon, P. Haidet (2007). "Physicians' communication and perceptions of patients: Is it how they look, how they talk, or is it just the doctor?". Social Science & Medicine, 65(3). doi:10.1016/j.socscimed.2007.03.036
-
A. Thurm, C. Farmer, E. Salzman, C. Lord, S. Bishop (2019). "State of the Field: Differentiating Intellectual Disability From Autism Spectrum Disorder". Front. Psychiatry, 10. doi:10.3389/fpsyt.2019.00526
-
S. Tromans, V. Chester, R. Kiani, R. Alexander, T. Brugha (2018). "The Prevalence of Autism Spectrum Disorders in Adult Psychiatric Inpatients: A Systematic Review". CPEMH, 14(1). doi:10.2174/1745017901814010177
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