Quality-of-life measurement in randomised controlled trials of mental health interventions for autistic adults: A systematic review

Added on 24/10/2024

Type de contenu

Journal article of the type Scientific literature review ( ; english)

Amanda Timmerman * , Vasiliki Totsika , Valerie Lye , Laura Crane , Audrey Linden , Elizabeth Pellicano
Quality-of-life measurement in randomised controlled trials of mental health interventions for autistic adults: A systematic review published in the journal "Autism" Preprint, 17 pages , doi: 10.1177/13623613241287586

*One co-author has publicly identified as autistic. [Learn more about this mention]

Summary/Presentation

Autistic people are more likely to have co-occurring mental health conditions compared to the general population, and mental health interventions have been identified as a top research priority by autistic people and the wider autism community. Autistic adults have also communicated that quality of life is the outcome that matters most to them in relation to mental health research and that they want to be involved more actively in the research process. Our systematic review aimed to determine the extent and nature of (1) quality of life measurement in randomised controlled trials of mental health interventions for autistic adults and (2) community involvement taking place within identified randomised controlled trials. We searched Medline, Embase, APA PsycInfo, Web of Science and grey literature sources. After screening over 10,000 records, 19 studies were eligible and five of those studies measured quality of life as an outcome. Of those five, three included community involvement and two did not report on community involvement. We conclude there is a need for increased use of quality of life measurement when trialling mental health interventions, including the use of measures validated for autistic adults – which would be facilitated by greater autistic involvement in the research process.

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(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.

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