Introduction à la neurodiversité : Une liste de lecture annotée

Ajouté le 12/08/2024

Type de contenu

Article de revue du type Revue de la littérature ( ; anglais)

Mirela Zaneva, Tao Coll-Martín, Yseult Héjja-Brichard, Tamara Kalandadze, Andrea Kis, Alicja Koperska, Marie Manalili*, Adrien Mathy*, Christopher Graham, Anna Hollis, Robert Ross, Siu Yeung, Veronica Allen, Flavio Azevedo, Emily Friedel*, Stephanie Fuller*, Vaitsa Giannouli, Biljana Gjoneska, Helena Hartmann, Max Korbmacher, Mahmoud Elsherif, Alyssa Hillary Zisk* , Introduction to Neurodiversity: An Annotated Reading List publié dans la revue "PsyArxiv", Preprint, 24 pages , doi:10.31234/osf.io/ugkxp

*Cinq co-auteur·rices sont autistes. [En savoir plus sur cette mention]

=> Accès libre et gratuit

Depuis sa création, le concept de neurodiversité a été défini de manière variable et largement débattu, ce qui peut provoquer de la confusion chez ceux qui ne sont pas familiers avec le sujet. De plus, apprendre sur la neurodiversité est un défi en raison du manque d'informations bien organisées et contextualisées de manière appropriée, ainsi que de la prévalence de la désinformation sur le sujet. Pour surmonter ces obstacles, nous présentons une liste de lecture annotée, élaborée en collaboration par un groupe de recherche neurodiverse. Les neuf thèmes abordés dans la liste de lecture couvrent l'histoire de la neurodiversité et les compréhensions contemporaines de celle-ci. Les sujets abordés dans ces thèmes incluent : l'importance des expériences vécues, ainsi que des domaines de recherche spécifiques tels que l'autisme, le TDAH, la dyslexie, le bégaiement, les lésions cérébrales et la santé mentale. Les derniers thèmes sont orientés vers des moyens de renforcer le domaine de la neurodiversité, y compris des considérations concernant l'anti-validisme, la nécessité d'une théorie et de méthodes de recherche solides, et l'intégration de travaux ouverts, inclusifs et participatifs. Nous espérons que cette ressource pourra aider les lecteurs à comprendre certaines des idées et des sujets clés au sein de la neurodiversité, et qu'elle pourra également orienter les chercheurs vers des pratiques scientifiques plus rigoureuses, déstigmatisantes, accessibles et inclusives.

Since its inception, the concept of neurodiversity has been variably defined and widely discussed, which may cause confusion among those unfamiliar with the topic. Further, learning about neurodiversity is challenging given the lack of well-curated, appropriately contextualized information and the prevalence of misinformation on the topic. To address such barriers, we present an annotated reading list that was developed collaboratively by a neurodiverse research group. The 9 themes covered in the reading list span across the history of neurodiversity and contemporary understandings of it. Topics covered in the themes include: the importance of lived experiences, as well as specific research areas such as autism, ADHD, dyslexia, stuttering, traumatic brain injury, and mental health. The final themes are oriented towards ways of strengthening the area of neurodiversity, including considerations regarding anti-ableism, the need for robust research theory and methods, and integration with open, inclusive, and participatory work. We hope this resource can support readers in understanding some of the key ideas and topics within neurodiversity, and that it can further orient researchers towards more rigorous, destigmatizing, accessible, and inclusive scientific practices.

Pour information:

(1) les références en bleu sont des ressources référencées sur notre site;

(2) les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la listes des ressources publiées et partagées sur le site;

(3) les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes. [En savoir plus sur cette mention]

  • K. Asasumasu (2015, June 12). "PSA from the actual coiner of ‘neurodivergent’". Lost in My Mind TARDIS. (Source)

  • A. Baggs (2005). "To the Kit Weintraubs of the World". Autism Information Library. (Source)

  • D. Bemme, T. Roberts, K. Ae-Ngibise, N. Gumbonzvanda, K. Joag, A. Kagee, ..., R. Burgess (2023). "Mutuality as a method: advancing a social paradigm for global mental health through mutual learning". Social Psychiatry and Psychiatric Epidemiology, 1-9, doi:10.1007/s00127-023-02533-4

  • M. Botha*, B. Dibb, D. Frost (2022). "'It’s being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness". Autism, 26(8), doi:10.1177/13623613221080248

  • H. Blume (1998). "Neurodiversity: On the neurological underpinnings of geekdom". The Atlantic, 30.

  • J. Chamberlin (1978). "On Our Own: Patient-Controlled Alternatives to the Mental Health System". New York: McGraw-Hill.

  • Y. Cheng, B. Gelaye Tekola, A. Balasubramanian, L. Crane, K. Leadbitter (2023). "Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships". Autism, 27(3), doi:10.1177/13623613221140929

  • D. Clouder, M. Karakus, A. Cinotti, M. Ferreyra, G. Fierros, P. Rojo (2020). "Neurodiversity in higher education: a narrative synthesis". Higher Education, 80(4), doi:10.1007/s10734-020-00512-1

  • C. Constantino (2018). "What can stutterers learn from the neurodiversity movement?". Seminars in Speech and Language, 39(4), doi:10.1055/s-0038-1667166

  • S. Crüwell, J. van Doorn, A. Etz, M. Makel, H. Moshontz, J. Niebaum, ..., M. Schulte-Mecklenbeck (2019). "Seven easy steps to open science". Zeitschrift für Psychologie, doi:10.1027/2151-2604/a000387

  • E. Cutler (2019). "Listening to Those with Lived Experience". In S. Steingard (Ed.), Critical Psychiatry: Controversies and Clinical Implications (pp. 179–206). Springer International Publishing, doi:10.1007/978-3-030-02732-2_8

  • M. Elsherif, S. Middleton, J. Phan, F. Azevedo, B. Iley, M. Grose-Hodge, ..., M. Dokovova (2022). "Bridging neurodiversity and open scholarship: How shared values can guide best practices for research integrity, social justice, and principled education".

  • M. Gernsbacher, M. Yergeau (2019). "Empirical failures of the claim that autistic people lack a theory of mind". Archives of Scientific Psychology, 7(1), doi:10.1037/arc0000067

  • A. Green, A. Zisk*, L. Dura, P. Harris, L. Heilig, B. Kirby, J. McClintick, ..., R. Carrasco (2020). "Teaching and researching with a mental health diagnosis: Practices and perspectives on academic ableism". Rhetoric of Health & Medicine, 3(2), 1. (Source)

  • H. Hartmann, K. Darda, V. Meletaki, Z. Ilchovska, N. Corral-Frías, G. Hofer, ..., S. Sauvé (2024). "Incorporating feminist practices into (psychological) science-the why, the what and the how". (Source)

  • S. Heraty, A. Lautarescu, D. Belton, A. Boyle, P. Cirrincione, M. Doherty*, ..., E. Jones (2023). "Bridge-building between communities: Imagining the future of biomedical autism research". Cell, 186(18), 3747-3752, doi:10.1016/j.cell.2023.07.009

  • A. Hunt, T. Procyshyn (2024). "Changing perspectives on autism: Overlapping contributions of evolutionary psychiatry and the neurodiversity movement". Autism Research, 17(3), doi:10.1002/aur.3078

  • P. Jaarsma, S. Welin (2012). "Autism as a natural human variation: Reflections on the claims of the neurodiversity movement". Health Care Analysis, 20, 20–30, doi:10.1007/s10728-011-0169-9

  • R. Johnson (2023). "Dyslexia is not a gift, but it is not that simple". Infant and Child Development, 32(5), e2454, doi:10.1002/icd.2454

  • T. Kalandadze, S. Hart (2024). "Open developmental science: An overview and annotated reading list". Infant and Child Development, 33(1), e2334, doi:10.1002/icd.2334

  • U. Kathawalla, P. Silverstein, M. Syed (2021). "Easing into open science: A guide for graduate students and their advisors". Collabra: Psychology, 7(1), 18684, doi:10.1525/collabra.18684

  • D. Kidd (2018). "Neurodivergence Enminded/Embodied: Living with Severe Traumatic Brain Injury". Word and Text, A Journal of Literary Studies and Linguistics, 8(01), 48-60.

  • M. Manalili*, A. Pearson*, J. Sulik, L. Creechan, M. Elsherif, I. Murkumbi, F. Azevedo, K. Bonnen, J. Kim, K. Kording, J. Lee, M. Obscura, S. Kapp*, J. Röer, T. Morstead (2023). "From puzzle to progress: How engaging with neurodiversity can improve cognitive science". Cognitive Science, 47(2), Article e13255, doi:10.1111/cogs.13255

  • D. Mellifont (2019). "Shifting neurotypical prevalence in knowledge production about the mentally diverse: a qualitative study exploring factors potentially influencing a greater presence of lived experience-led research". Canadian Journal of Disability Studies, 8(3), 66-94, doi:10.15353/cjds.v8i3.609

  • S. Middleton, B. Iley, J. Sulik, M. Elsherif, F. Azevedo (2024). "The Academic Wheel of Privilege: An equity-based tool for authorship order". (Source)

  • C. Montgomery (2005, June 30). "Defining Autistic Lives". The Ragged Edge. (Source)

  • C. Montgomery (2001). "Critic of the Dawn". The Ragged Edge, 2001(2). (Source) Also available in Loud Hands: Autistic People Speaking (2012).

  • M. Monzel, C. Dance, E. Azañón, J. Simner (2023). "Aphantasia within the framework of neurodivergence: Some preliminary data and the curse of the confidence gap". Consciousness and Cognition, 115, doi:10.1016/j.concog.2023.103567

  • S. Neumeier (2018). "‘To Siri with love’ and the problem with neurodiversity lite". Newswire. (Source)

  • T. Odegard, M. Dye (2024). "The gift of dyslexia: what is the harm in it?". Annals of Dyslexia, 1-15, doi:10.1007/s11881-024-00282-0

  • P. Shah, M. Boilson, M. Rutherford, S. Prior, L. Johnston, D. Maciver, K. Forsyth (2022). "Neurodevelopmental disorders and neurodiversity: Definition of terms from Scotland's National Autism Implementation Team". The British Journal of Psychiatry, 221(3), 577-579, doi:10.1192/bjp.2022.43

  • R. Shenker, N. Rodgers, B. Guitar, M. Onslow (2023). "Contemporary clinical conversations about stuttering: Neurodiversity and ableism". Journal of Fluency Disorders, 78, doi:10.1016/j.jfludis.2023.106014

  • S. Silberman (2015). NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. Penguin.

  • J. Sinclair (1993). "Don't mourn for us". Our Voice, 3(1). Retrieved from (Source)

  • A. Singer, A. Lutz, J. Escher, A. Halladay (2023). "A full semantic toolbox is essential for autism research and practice to thrive". Autism Research, 16(3), 497-501, doi:10.1002/aur.2876

  • E. Sonuga-Barke (2023). "Paradigm ‘flipping’ to reinvigorate translational science: Outlining a neurodevelopmental science framework from a ‘neurodiversity’ perspective". Journal of Child Psychology and Psychiatry, 64(10), doi:10.1111/jcpp.13886

  • T. Tamir (2023). "Being Neurodivergent in Academia: Working with my brain and not against it". eLife, doi:10.7554/eLife.95068

  • H. Taylor, A. Zaghi, S. Rankin (2023). "Marginalising dyslexic researchers is bad for science". eLife, 12, Article e93980, doi:10.7554/eLife.93980

  • G. Trundle, K. Jones, D. Ropar, V. Egan (2023). "Prevalence of victimisation in autistic individuals: A systematic review and meta-analysis". Trauma, Violence, & Abuse, 24(4), 2282-2296, doi:10.1177/15248380221142998

  • R. van Gorp (2022). "My journey and the value of a community where neurodiversity is celebrated". Scope Contemporary Research Topics: Learning and Teaching, 11, 42-49.

  • N. Walker* (2021). "Neurodiversity: Some basic terms & definitions". In Neuroqueer Heresies. Autonomous Press.

  • S. Silberman (2023). "How My Mother’s Dementia Showed Me Another Side of Neurodiversity". Scientific American. (Source)

  • A. Zisk* (2019, September 6). "Dimensionality Reduction". Yes, That Too. (Source)


 
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