Autistic perspectives on the future of clinical autism research

Added on 19/09/2024

Type de contenu

Journal article of the type Editorial ( ; english)

Heta Pukki * , Jorn Bettin * , Avery Grey Outlaw , Joshua Hennessy * , Kabie Brook * , Martijn Dekker * , Mary Doherty * , Sebastian Shaw * , Jo Bervoets * , Silke Rudolph * , Thibault Corneloup * , Kylieanne Derwent , Onemoo Lee , Yadira Garcia Rojas * , Wenn Lawson * , Monica Vidal Gutierrez * , Kosjenka Petek * , Myria Tsiakkirou , Annikka Suoninen * , Jo Minchin * , Rainer Döhle * , Silke Lipinski * , Heini Natri * , Emma Reardon * , Giovanna Villarreal Estrada , Ovidiu Platon * , Nick Chown * , Ayaya Satsuki * , Damian Milton * , Nick Walker * , Ondrej Roldan , Bárbara Herrán * , Citlali Limón Cañedo * , Sue McCowan * , Mona Johnson * , Eleanor Turner , Jessy Lammers , wn-ho Yoon *
Autistic perspectives on the future of clinical autism research published in the journal "Autism in adulthood" n°4, vol.2, 9 pages , doi: 10.1089/aut.2022.0017

*Thirty co-authors had publicly identified as autistic. [Learn more about this mention]

- 10% of authors cited in the bibliography of this resource have publicly identified as autistic (35 out of 350 authors).
- 36% of references cited in this resource contain at least one author who has publicly identified as autistic (27 out of 76 references).

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Summary/Presentation

[First lines of the Edito]
The Lancet Commission on the Future of Care and Clinical Research in Autism recently published their recommendations for what should be done in the next 5 years to address the current needs of autistic individuals and families.1 Although the Commission includes many prominent clinicians and researchers from around the world, as well as some autistic advocates and parents of autistic people, there have been widespread expressions of dissatisfaction among autistic people and communities regarding these recommendations.
We, the Global Autistic Task Force on Autism Research are a group of autistic professionals and representatives of organizations run by and for autistic people. We are autistic clinicians, therapists, educators and researchers, parents, and family members of autistic people of all ages and with all types of support needs, as well as individuals with high support needs. Among us are also autistic people of color, autistic people from the Global South and Asia, autistic women, and autistic people belonging to gender minorities.
Despite aiming at bringing together different stakeholders, representation within the Lancet Commission was limited in these respects. We hope to bring more voices to the discourse. We previously wrote an open letter to the Commission to draw attention to our main concerns.2 In this editorial, we offer a more detailed discussion of the Commission's report, as well as our own recommendations for future directions in autism research and care.

For your information:

(1) References in blue are resources listed on our site.

(2) Authors listed in this bibliography whose names are in color have published other resources referenced on the site. Clicking on the name allows you to see the list of resources they have published and shared on the site.

(3) Authors whose names are followed by an asterisk have publicly disclosed being autistic.

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