À qui revient l'expertise? Evidences que les adultes autistes sont des experts critiques de l'autisme

Ajouté le 24/10/2024

Type de contenu

Article de revue du type Développement théorique ( ; anglais)

Kristen Gillespie-Lynch , Steven Kapp * , Patricia Brooks , Jonathan Pickens , Ben Schwartzman
Whose expertise is it? Evidence for autistic adults as critical autism experts publié dans la revue "Frontiers in psychology" n°8, 14 pages , doi: 10.3389/fpsyg.2017.00438

*Un.e co-auteur·rice s'est publiquement identifié·e comme autiste. [En savoir plus sur cette mention]

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Résumé/Présentation

L'accord entre les adultes autistes et non autistes avec les connaissances scientifiques sur l'autisme, leur définition de l'autisme et leur approbation des conceptions stigmatisantes de l'autisme n'a pas été examiné auparavant. À l'aide d'une enquête en ligne, nous avons évalué les connaissances et la stigmatisation liées à l'autisme chez 636 adultes ayant des relations variées avec l'autisme, y compris des personnes autistes et des membres de la famille proche. Les participants autistes ont montré des connaissances plus basées sur la science que les autres. Ils étaient plus susceptibles de décrire l'autisme de manière expérientielle ou comme une différence neutre, et s'opposaient plus souvent au modèle médical. Les participants autistes et les membres de la famille ont signalé une stigmatisation moindre. Une plus grande adhésion à l'importance de normaliser les personnes autistes était associée à une stigmatisation accrue. Les résultats suggèrent que les adultes autistes doivent être considérés comme des experts en autisme et impliqués en tant que partenaires dans la recherche sur l'autisme.

Pour information:

(1) Les références en bleu sont des ressources référencées sur notre site.

(2) Les auteur·rices repris dans cette bibliographie dont le nom est en couleur ont publié d'autres ressources référencées sur le site. Cliquer sur le nom permet de voir la liste des ressources publiées et partagées sur le site.

(3) Les auteur·rices dont le nom est suivi d'une astérisque ont publiquement divulgué être autistes.

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